Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Got My Period!

dani nero

Recommended Posts

dani nero Community Regular
dani nero
Posted

Without birth-control pills and without any medication! Only by being on a gluten-free diet! I was so worried that I was feeling anxiety yesterday.. I thought I was getting accidentally glutened, but it was actually my period!

I'm so happy + feeling period-crappy, but at least for the time, it's all natural period-crappy!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


UKGail Rookie
UKGail
Posted

Hey Dani - That is really great news. I am really happy for you. I think you said you had been without your periods for a very long time?

May I ask how long it is since you went gluten free?

dani nero Community Regular
dani nero
Posted
  • Author

Hey Dani - That is really great news. I am really happy for you. I think you said you had been without your periods for a very long time?

May I ask how long it is since you went gluten free?

Thank you! Yes I've been on birth-control treatment to get periods for 20 years, but I stopped taking the pills a month ago and went completely gluten-free. I got accidentally glutened about two weeks ago though, so I thought I wasn't going to get a period this month, but I did :-)

UKGail Rookie
UKGail
Posted

Yes, I know what you mean. I am still reacting at a lower level, so I keep thinking it may not happen next month. But it does...

For me, it is very light and short (well, at least compared to what I was used to earlier in life...). At this stage I don't know if it is because I am simply peri-menopausal, which is quite likely at my age of 47, or because I have not yet completely recovered. Time will tell.

I hope it goes well for you from now on. I would be interested to hear. PM me if you prefer. My rheumatologist was quite curious about this effect of going gluten free (he wasn't celiac-savvy), and he asked me to let him know how things progressed for me even though I am no longer actively under his care, as he wished to learn more. It would be really helpful if I could say that I am not the only one...

dani nero Community Regular
dani nero
Posted
  • Author

Yes, I know what you mean. I am still reacting at a lower level, so I keep thinking it may not happen next month. But it does...

For me, it is very light and short (well, at least compared to what I was used to earlier in life...). At this stage I don't know if it is because I am simply peri-menopausal, which is quite likely at my age of 47, or because I have not yet completely recovered. Time will tell.

I hope it goes well for you from now on. I would be interested to hear. PM me if you prefer. My rheumatologist was quite curious about this effect of going gluten free (he wasn't celiac-savvy), and he asked me to let him know how things progressed for me even though I am no longer actively under his care, as he wished to learn more. It would be really helpful if I could say that I am not the only one...

Sure Gail I'll let you know :-) XOXO

dilettantesteph Collaborator
dilettantesteph
Posted

Thanks for posting about this. This happened to someone I know and we hadn't connected it to gluten, but she was recently diagnosed and gluten free.

bartfull Rising Star
bartfull
Posted

Gail says: "My rheumatologist was quite curious about this effect of going gluten free (he wasn't celiac-savvy), and he asked me to let him know how things progressed for me even though I am no longer actively under his care, as he wished to learn more."

Now THAT is a good doctor!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Krystal K. Rookie
Krystal K.
Posted

came across this and well , just saying ..Im 25 and for the past 6 years I have had little to no cycle ..like 4-6 periods a year.was on the pill came off the pill in oct...and since nov. I have gotten it each month AND been gluten free since Nov. too interesting

dani nero Community Regular
dani nero
Posted
  • Author

came across this and well , just saying ..Im 25 and for the past 6 years I have had little to no cycle ..like 4-6 periods a year.was on the pill came off the pill in oct...and since nov. I have gotten it each month AND been gluten free since Nov. too interesting

Krystal do you know if you have Celiac or Non-Celiac gluten intolerance?

dani nero Community Regular
dani nero
Posted
  • Author

I hope it goes well for you from now on. I would be interested to hear. PM me if you prefer. My rheumatologist was quite curious about this effect of going gluten free (he wasn't celiac-savvy), and he asked me to let him know how things progressed for me even though I am no longer actively under his care, as he wished to learn more. It would be really helpful if I could say that I am not the only one...

A little update: The period seems very standard so far, as if I were still taking treatment. I'll post again next month to confirm this is permanent and not just a one time thing (I hope!). I also hope things go well for you too XOXO

kareng Grand Master
kareng
Posted

You know you have Celiac when.......

Everyone is so excited you are having a normal " crappy" period! :D

Lisa Mentor
Lisa
Posted

Using birth control for extended years (20), will diminish your menstrual cycle down to nothing.

After going off the birth control, within several months you should restore your normal cycle (if nothing additional has developed since then).

Not too sure gluten plays a role here. :) It's pretty much hormone related. But, then I guess hormones could be out of wack due to deficiencies.

UKGail, I began Peri menopause at 35. A b%$@# long before my time. :lol: It lasted about ten years, until full onset menopause. But, then I have no family history as my mother died early. Probably just genetics.

I always get tickled with the word Men-0-Pause! :lol:

IrishHeart Veteran
IrishHeart
Posted

Dani,

I believe late-onset menses, amenorrhea and early peri-menopause ARE celiac-related. There is much written about it. Many Pub Med articles, but here are a few. One study states:

"In two large case control studies, researchers examined the incidence of delayed menarche, amenorrhea (cessation of the menstrual cycle for short periods of time), and early menopause. Both studies enrolled women with celiac disease who were following the gluten-free diet or eating a gluten-containing diet.

They found that women who were not on the gluten-free diet started their menstrual cycle up to a year and a half later than women with celiac disease who were following the diet. In addition, researchers found that up to 39% of women not on the diet experienced periods of amenorrhea, compared to only nine percent of women who were on the gluten-free diet. As you would expect, women with celiac disease who were not on the gluten-free diet were found to enter menopause four to five years earlier than women with celiac disease who were on the diet."

Also: " Untreated women with celiac disease may have obstetric and gynecological problems. Amenorrhea and spontaneous abortions are reported more often for untreated women than for controls. Infertility was shown to be more common among untreated celiac women. Fertility and ability to carry an infant to term, returned when the women followed a gluten-free diet. (Molteni, N., Bardella, M., Bianchi, P.: Obstetric and Gynecological Problems in Women with Untreated Celiac Sprue. J Clin Gastroenterol 12(1):37, 1990.)

"Females with celiac disease tend to have gynecological problems, including a shortened reproductive period—delayed onset of menstruation and premature menopause--and irregular periods." Peter Green, Celiac Disease: The Hidden Epidemic

I had MANY GYN problems and a very early menopause (I was only in my late 30's) and a total hysterectomy by 47. Sadly, I could never carry to term, despite several pregnancies and then, infertility treatments. They did not test for celiac disease when exploring the causes of recurrent miscarriages back in the 90's. :(

I think that your periods returning to normalcy may well continue as you remain gluten free. :) Fingers crossed!

So, "congrats" on your news. :lol: only another celiac who had wonky, erratic and miserable periods too would understand why this is good news to you. :)

Krystal K. Rookie
Krystal K.
Posted

Krystal do you know if you have Celiac or Non-Celiac gluten intolerance?

celiac but I have mostly neuro.symptoms.. its ataxia. idk if this makes any difference as far as cycles go but I have been dairy intolerant for years and recently learned gluten and also corn.

Lisa Mentor
Lisa
Posted

IH has posted some good information and very appropriate for this thread. But, aside from any gluten or Celiac issues, extended use of birth control will diminish you menstrual cycle. :)

dani nero Community Regular
dani nero
Posted
  • Author

IH has posted some good information and very appropriate for this thread. But, aside from any gluten or Celiac issues, extended use of birth control will diminish you menstrual cycle. :)

Hi Lisa! In my case the amenorrhea wasn't caused by the BC pills. I took them to induce periods. I got diagnosed with hypothalamic amenorrhea when I was 16. The first doctor was the one who diagnosed me, and prescribed BC pills (Diane 35) as treatment. The second told me there was no point in taking treatment because I was completely healthy, and "it is not even necessary to bleed every month".. I didn't listen to her. The third doctor diagnosed me with PMDD and put me on different BC pills (Yaz) + Paroxatin for the anxiety.

IrishHeart Veteran
IrishHeart
Posted

IH has posted some good information and very appropriate for this thread. But, aside from any gluten or Celiac issues, extended use of birth control will diminish you menstrual cycle. :)

I agree. :) those articles were for the readers' interest and was not meant to exclude that fact about BC pills. I hope that did not come across that way, dear Lisa. :)

Despite many attempts to regulate my own cycles and control some nasty Peri-menopause symptoms with BC pills, it just made things worse. :blink:

I wonder if I had known about the celiac back then, how much easier all if it would have been.

Lisa Mentor
Lisa
Posted

I hope that did not come across that way, dear Lisa. :)

Nope! ;):)

IrishHeart Veteran
IrishHeart
Posted

Nope! ;):)

whew! ;):wub:

dani nero Community Regular
dani nero
Posted
  • Author

Despite many attempts to regulate my own cycles and control some nasty Peri-menopause symptoms with BC pills, it just made things worse. :blink:

I wonder if I had known about the celiac back then, how much easier all if it would have been.

I wish you and UKGail all the best. The only thing we can do when we no longer have control to change the situation is accept life with it's imperfections, to be able to see the bright side of things, and focus on what's to come :-) My heart goes out to you. xoxo

IrishHeart Veteran
IrishHeart
Posted

I wish you and UKGail all the best. The only thing we can do when we no longer have control to change the situation is accept life with it's imperfections, to be able to see the bright side of things, and focus on what's to come :-) My heart goes out to you. xoxo

Oh hon, I made peace with all that stuff a long time ago. What's done is done. Can't be undone. Just learned from.

Believe me,there is no one who is more of an optimist than I am.

After all I have been through, I'm still kicking and screaming and laughing . :lol:

My focus now is on TODAY and getting well and getting my life back. B)

Besides, there is no point in looking backwards, as that is not the direction we are headed. ;)

Cheers,

IH

dani nero Community Regular
dani nero
Posted
  • Author

Oh hon, I made peace with all that stuff a long time ago. What's done is done. Can't be undone. Just learned from.

Believe me,there is no one who is more of an optimist than I am.

After all I have been through, I'm still kicking and screaming and laughing . :lol:

My focus now is on TODAY and getting well and getting my life back. B)

Besides, there is no point in looking backwards, as that is not the direction we are headed. ;)

Cheers,

IH

Good to hear that :-)

UKGail Rookie
UKGail
Posted

IH, you have had a tough time. I really admire your positive, forward looking attitude!

Lisa - I understand your point about BC pills interfering with the natural cycle. I took them for about 10 years, and stopped when we started trying for a family. I was one of the lucky ones in that my periods returned straight away. It did take a year for me to fall pregnant though, and I do think that would have been due to 3 factors a) age over 30 b)adjustment after being on bc pills and c) maybe some influence from gluten intolerance.

Just an observation: the posters in this thread seem to have/have had mainly neurologic celiac symptoms. I am also sero-negative, and I think IH may also be? Anyone else? Any thoughts on this?

IrishHeart Veteran
IrishHeart
Posted

IH, you have had a tough time. I really admire your positive, forward looking attitude!

Just an observation: the posters in this thread seem to have/have had mainly neurologic celiac symptoms. I am also sero-negative, and I think IH may also be? Anyone else? Any thoughts on this?

It's just the delirium from not being in GLUTEN HEAD HELL anymore. :lol:

Seriously, my symptoms were not mostly neurological. Those just manifested LAST and were the WORST. :(

They were symptoms of the blood system, cardiovascular system, digestive, dermatological, and integumentary systems, musculoskeletal, gynecological/reproductive, metabolic, pulmonary, sensory, glandular, and urinary systems. No body system on me was left unaffected.

It is also why I was seeing various dcotors throughout the years and being symptom-treated individually and never feeling well. I kept going down hill until I crashed.

If just ONE doctor had looked at the whole picture....and believe me, I gave them all my health history...but no one seemed to see the clues. I do not know why we bother to write those out AND fill out those damn forms when we go to their offices. :rolleyes:

I put it together myself. 35+ years of symptoms--all from celiac. And that is why I am a very VOCAL crusader for celiac awareness and I don't give a flying fig if anyone finds me annoying.

:lol:

But we should not "hijack" Dani's thread--this is her celebratory moment! :lol: If you wish to read more about neurological symptoms, check the Related Disorders section. ;)

dani nero Community Regular
dani nero
Posted
  • Author

I put it together myself. 35+ years of symptoms--all from celiac. And that is why I am a very VOCAL crusader for celiac awareness and I don't give a flying fig if anyone finds me annoying.

:lol:

But we should not "hijack" Dani's thread--this is her celebratory moment! :lol: If you wish to read more about neurological symptoms, check the Related Disorders section. ;)

You are not annoying and if anything being vocal is inspiring.. I feel very awful for my family who are not willing to let go of the poison they're eating (gluten), and I wish I was as vocal as you but I'm not that strong personality-wise.

I posted this thread out of joy to begin with but I think that providing others with information on different cases and symptoms is far more productive and helpful.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    2. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    4. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    5. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,015
    • Most Online (within 30 mins)
      7,748
    CravingADonut
    Newest Member
    CravingADonut
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.