Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Couldn't Tolerate Coffe But Now I Can?


Poppi

Recommended Posts

Poppi Enthusiast

I am just shy of 11 months gluten free and one thing I noticed when I went gluten free was that coffee also made me feel awful. I would feel glutened for 2-3 hours complete with brain fog, sour stomach, big D, back ache and headache.

A few months ago I start experimenting a bit because I really, really miss coffee. I found that I could tolerate a decaf a couple times a week and be fine. So when I was out with friends I would occasionally indulge a decaf latte and feel okay. Sometimes I'd get a headache but no big deal.

This past week I have had a terrible head cold. This morning I found myself with a terrible Benadryl hangover and decided to go ahead and grab a cup of coffee. So I busted out the French Press and made a cup of medium strength regular caffienated coffee. It was amazing and I felt fine. I'm on my second cup of the day and I still feel fine. Great in fact! I probably won't sleep tonight as this is my first regular coffee in almost a year but I am enjoying it immensely.

Is this a result of my gut healing? I have noticed my gluten reaction changing as well. I accidentally glutened myself with the chicken feed last month and had horrible D which wasn't a normal symptom for me before. Healing gut = changing reactions?

Anyway, I'm just curious what the experts say.

For what it's worth, I can't ask my doctor about this because she refuses to acknowledge that I might have a gluten problem unless I do a gluten challenge/bloodwork/biopsy.

Edited because caffienated fingers can't spell.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

Well congratulations!

I'm very happy for you!

I never gave up the coffee.

But yeah, I have read that you can get a gluten-like reaction from coffee..or some people have.

I skipped right over that part though, and probably made myself another cup of coffee.

I hope you can keep enjoying it. :)

IrishHeart Veteran

A ravaged gut can't tolerate MOST things, including coffee. (My list of "nopes" was very long, and it has become shorter). I added back coffee last month, but decaf. Caffeine makes my heart race too much.

So, YES, I believe you are healing your gut and therefore, able to enjoy coffee once more! :)

Cheers!

Skylark Collaborator

I had trouble with coffee when my stomach was all irritated from gluten. Now it's fine. It would have helped tremendously 20 years ago if my stupid doctor had told me to go off wheat rather than coffee when he diagnosed me with gastritis. :lol:

GFinDC Veteran

You probably will need to be on it for a couple weeks to find out if it affects you. Some things don't happen right away but build up over time. But you may be just fine too. We are all individuals and react as individuals. Personally I can't do caffeine of any kind but I never had the GI symptoms from it that you described. So we is different.

Kjas Newbie

I had trouble with coffee and tea.

I've always been somewhat sensitive to caffeine but until my gut was screwed up I was never intolerant of it. I can handle a good quality decaf with both coffee and tea now, although I keep it to once a month. I'm still hoping I will be able to heal completely and go back to coffee even if it's on a one day a week basis at some stage.

dilettantesteph Collaborator

Coffee is hard on the stomach. It is probably because you are healed that you can drink it again. I gave it up at first and now can drink it too. It does bother me a bit when I am glutened, but I drink it anyway.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I am just shy of 11 months gluten free and one thing I noticed when I went gluten free was that coffee also made me feel awful. I would feel glutened for 2-3 hours complete with brain fog, sour stomach, big D, back ache and headache.

A few months ago I start experimenting a bit because I really, really miss coffee. I found that I could tolerate a decaf a couple times a week and be fine. So when I was out with friends I would occasionally indulge a decaf latte and feel okay. Sometimes I'd get a headache but no big deal.

This past week I have had a terrible head cold. This morning I found myself with a terrible Benadryl hangover and decided to go ahead and grab a cup of coffee. So I busted out the French Press and made a cup of medium strength regular caffienated coffee. It was amazing and I felt fine. I'm on my second cup of the day and I still feel fine. Great in fact! I probably won't sleep tonight as this is my first regular coffee in almost a year but I am enjoying it immensely.

Is this a result of my gut healing? I have noticed my gluten reaction changing as well. I accidentally glutened myself with the chicken feed last month and had horrible D which wasn't a normal symptom for me before. Healing gut = changing reactions?

Anyway, I'm just curious what the experts say.

For what it's worth, I can't ask my doctor about this because she refuses to acknowledge that I might have a gluten problem unless I do a gluten challenge/bloodwork/biopsy.

Edited because caffienated fingers can't spell.

Yeah!

:D

GFinDC Veteran

Well, I opened my mouth and stuck my foot in again. I ended up drinking caffeine last night and survived. It doesn't usually cause me a problem unless I drink it for a week or so straight. Here's what I did, some of you may like this.

So I have been drinking herbal teas (caffeine free) for a while now. I took to keeping a kettle of hot water on the stove this winter. I got the idea of adding some cinnamon to the kettle water since they say it is good for blood sugar control. And some ginger because it can help digestion. Then yesterday I got the bright idea of adding some powdered Hershey's cocoa. Just a couple teaspoons. So I put a little stevia in my tea cup, a mint tea bag, and add the chocolate - ginger - cinnamon hot water from the kettle. Dang tasty stuff people! Not as rich as regular cocoa made with dairy, but I haven't had that in years due to avoiding milk. But tasty-tasty.

Then after a kettle of this tea and a refill noticed I was feeling kinda wired. Feeling better than I had in a while in fact. More energy. More alert. That caffeeiney feeling you get. Thought about it and remembered chocolate is supposed to have some caffeine in it.

So found this wise geek page talking about it. There is a little caffeine in chocolate, but much less then coffee or tea. So this might be something to try for people who like that sort of chocolatey, dairy-free, low caffeine hot drink stuff. You know who you are, no need to spell out names. I did get pretty buzzed before I realized what was happening so it is not without affect. Took me a while to get to sleep.

The cinnamon does leave a little grit in the bottom of the tea cup but I don't mind that . It is just ground up tree bark after all.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.