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Anyone In Md Or East Coast?

KaitiUSA

By KaitiUSA
in Introduce Yourself / Share Stuff

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par18 Apprentice
par18
Posted

I'm right down the road outside Richmond , Va. Married and semi-retired. Play lots of golf and build bluebird houses and study the species. Enjoy life and good health thanks to gluten-free diet. Looking foward to cooler weather.

Tom

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  • Replies 136
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debbiewil Rookie
debbiewil
Posted

Hi Kaiti and everyone,

Well, I live in Frederick, Maryland and worked there until last month. Now I work in Myersville, just a few minutes away. So, yeah, I know Frederick and Mt. Airy and the rest of the area. I'm 50 but still going to school part time. I was dumb and didn't go at 18, so finally went several years ago and got my AA (at Frederick Community) Now I'm trying to finish my BA from UMUC. I only have 9 more credits, so I'm going to try to finish in May. But that leaves little time for anything else right now. Sigh. A couple of friends and I were thinking of seeing Serenity at that movie theater Friday night, if anyone else wants to join us.

I'm new to this board - actually I haven't been diagnosed celiac yet, but I'm pretty sure I have it. Also DH - I've had this skin condition for 25 years now, little blisters on my hands, arms, legs and feet that itch like crazy - I scratch, and end up with sores all over. I told my doctor 10 years ago I couldn't eat pasta because it gave me a stomach ache but now after several more celiac symptoms have shown up the doc finally thinks maybe I should get tested. After reading about celiac disease, my only response was, "well, if there's anything here I don't have, I guarantee you someone in my family does!" Going down the symptoms and related diseases was like going over my family's medical history - Type I diabetes, thyroid disease, colon and stomach cancers, Addison's disease - every member of my family has one of them by age 50, and many much younger. Anyway, what I'm working on is getting the skin test - if that's positive, then I've got it and don't have to go through the intestinal biopsy. Either way, the dermatologist and the gastroentologist that my doctor uses both have a couple of months waiting period for appointments. I made an appointment with the dermatologist, and have been trying to eat gluten-free for the past few weeks (the skin biopsy, from what I've been told, will be positive for several months, maybe years, unlike the intestinal biopsy where if the villi heal in a few weeks, won't show the disease if you're gluten-free.) I have noticed a difference, I feel much better gluten-free and can already tell big time if something with gluten accidently slips in - which has happened a couple of times. I haven't figured out all the "hidden gluten" tricks yet. But I'm working on it.

Sorry this is so long, but thought I'd introduce myself.

Debbie

happygirl Collaborator
happygirl
Posted

Also in the area.

dlb64 Newbie
dlb64
Posted
Hi Beth,

We have a lot in common! I live in MA as well. But west of Boston. I Work in Newton as a Sales Engineer in high tech (Geek  :D ). I am 37 (almost 38) and married with 2 stepsons.

I had positive ELISA IGA and IGG tests about 4 weeks ago.

I don't know anyonw with Gluten Intolerance or Celiac's and my diagnosis is new. I would love to chat sometime.

KJ

<{POST_SNAPBACK}>

Hi KJ,

I live in MA too.....in the Western part of the state. I was diagnosed 9/20 after losing 18 lbs! Unfortunately, I didn't need to lose any weight. :)

I changed my diet immediately and have noticed a difference. Have you changed your diet? I just had an upper GI done today and am having an endoscopy procedure in a couple of weeks....just to rule out anything else that may be going on.

I have 2 teenagers who were tested yesterday.

I have a pretty bland diet at the moment, but do have access to a few people who also have celiac so hopefully I can get "product" info from them.

Let me know how you are doing.

Donna :)

Guest BERNESES
Guest BERNESES
Posted

Hey- I saw all the Massachusetts people on here so I revived the thread. I'm in Portsmouth NH but grew up in Lynnfield, MA and all my family and my husband's family is in MA too- Peabody, Beverly, Reading. I love Manchester and my therapist (I need one after this year!) is right on the Swampscott/Lynn line too. I'm down there all the time if you guys want to get together and form our own little support group. Or just email back and forth. Feel free to email me through the board. Hope to hear from you, Beverly

gluegluten Newbie
gluegluten
Posted

i am from south carolina, i used to go to school in savannah, ga.

GFinVA Newbie
GFinVA
Posted

Hi everyone - I'm new to the forum and have found all the information very helpful. I've been gluten-free since April 2003. It's nice to that there are other people like me out there!

I'm 24 years old and I recently moved from Philadelphia to Fairfax, VA (not too far from Kaiti). I really enjoy reading what you all have to say. Take care!

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KaitiUSA Enthusiast
KaitiUSA
Posted
  • Author
Hi everyone - I'm new to the forum and have found all the information very helpful.  I've been gluten-free since April 2003.  It's nice to that there are other people like me out there!

I'm 24 years old and I recently moved from Philadelphia to Fairfax, VA (not too far from Kaiti).  I really enjoy reading what you all have to say.  Take care!

<{POST_SNAPBACK}>

Welcome to the board :D You will love it here...the people on here are so knowledgeable and supportive. Feel free to contact me anytime...you don't live to far away from me...there are quite a few celiacs I know that also live around here

There should be like a gluten free state where all the celiacs live in the U.S ..that would be cool.

jerseyangel Proficient
jerseyangel
Posted

Hi, everyone! I saw New Jersey mentioned. I live in Burlington Twp. which is midway between Phila. and Trenton. I'm a 49 yr. old married mom of 2 sons. I grew up in central NY and have lived in the Atlanta, GA area as well as in northern NJ-Warren Co. My husband was transferred around a bit. We've been here for almost 10 yrs. now and absolutely love it here. Its so nice that we have this forum to go to as I, also, have never met anyone else with celiac disease.

Katefreeman Newbie
Katefreeman
Posted

Hi, Kaiti!!

I love the way you spell your name! :) I live in Richmond, VA. I'm 25, and I recently graduated from Oklahoma City University with a Master's in Musical Theatre. I work with regional theatres around the metro area, and I'm a substitute teacher in one of our local counties. Like you, I don't know a SOUL with celiac disease. I've been gluten-free since July of 2004. It's hard to go through it alone, but it seems we're both making the best of a unique situation! Best of luck to you. Stay in touch, okay?!

Katie

maxcarr Newbie
maxcarr
Posted

Hi Beverly, there is an awesome restaurant in Beverly MA with tons of gluten-free food, and a very understanding staff - let me know if you are going to be in the area and we can have lunch there! It's called the Organic Garden, it's on Cabot Street. My email is mscarr@verizon.net.

MaryAnn

  • 4 weeks later...
francelajoie Explorer
francelajoie
Posted

Hi there MA people

I live in Leominster MA. I was just diagnosed with Celiac though I am not 100% sure about the diagnosis. Just a blood test and "you have celiac". Sould I get a seond opinion on this?

I did start the gluten free diet and I'm looking for local support groups...any suggestions?

France

Nemi555 Newbie
Nemi555
Posted

Hi!

I'm excited to see there are folks from Massachusetts here! I'm from Western MA too - Springfield area and have just begun the testing for celiac disease. My son too. We'be been gluten free for almost a month and have felt great but now have to go back to eating gluten in order for the doc to see how sick we are and for the tests to register properly. ugh.

I'm glad to have found this site as I know of only one person so far who has celiac disease and it sure would be nice to get to know more folks with this and learn how to live with celiac disease!

Cathy

francelajoie Explorer
francelajoie
Posted

Hi Cathy,

Where are you getting your tests done? I think I might need further testing.

The gluten free diet seems to be working but certain things like coffee make me ill and coffee is suppose to be safe.

France

swittenauer Enthusiast
swittenauer
Posted

Sorry no east coast here.....I can't seem to find anyone on here from Kentucky.

Guest BERNESES
Guest BERNESES
Posted

MaryAnn- I went to the Organic Garden cafe last week and had falafel for the first time in almost a year! I almost died of happiness. thanks for the recommendation! Beverly

danikali Enthusiast
danikali
Posted

Hi everyone! I'm also new to this whole thing. It's been 2 weeks now? Anyway, I live in NYC; I saw some New Jersey and a lot of MA, anyone from NYC or anywhere close to the city? New Jersey is close.

I'm 21 and almost done with my undergraduate degree. I also work at a law firm and I'm engaged! I live in Manhattan and love to do all the "city stuff." Anyone else?

Also, if anyone lives in or near the city, do you know of any gluten free resturants? I "used" to eat out all the time, every meal, but starting Thursday, I'm going to have to change my whole lifestyle! It's going to be hard always being on the run.........any tips from anyone? Or quick easy and healthy gluten free food?

-Danielle (Dani)

darlindeb25 Collaborator
darlindeb25
Posted

I am on Long Island--about 40 miles maybe from Dani--I live in East Islip--Deb

Nemi555 Newbie
Nemi555
Posted
Hi Cathy,

Where are you getting your tests done? I think I might need further testing.

The gluten free diet seems to be working but certain things like coffee make me ill and coffee is suppose to be safe.

France

<{POST_SNAPBACK}>

Hi France,

What kind of coffee? Plain coffee? There may be something else in there that is bothering you and it's not gluten. Do you add any creamer or anything? Those can have gluten. I have other food allergies so have to watch out for those too. Anyone else have issues with coffee? I can't drink it on an empty stomach but I don't suppose that is the same thing.

I am having my tests done here in Springfield, through Baystate Medical Center and they sent my results to a lab in Cambridge.

What kind of tests are you looking to have done?

Cathy

Lisa Mentor
Lisa
Posted

I living in the northeast coast of North Carolina ( I think most everyone here knows that).

Guest BERNESES
Guest BERNESES
Posted

France- Coffee makes me violently ill. I've never been able to figure it out. I can handle caffeine in diet Coke, but coffee rips my GI tract to shreds. I've always been that way.

jkmunchkin Rising Star
jkmunchkin
Posted

I live in NY - just outside of the city, but work in the city. I'm 28, and just got married a couple weeks ago.

I work as a business manager for a magazine - which basically consumes the majority of my life, but for fun I like to go to concerts (preferably hard rock and heavy metal - you would never know by looking at me that is what I listen to). I'm an expert shopper, and love to just watch movies and be social : )

I feel like I just wrote a personal ad - lol!!!

mookie03 Contributor
mookie03
Posted
Hi everyone! I'm also new to this whole thing. It's been 2 weeks now? Anyway, I live in NYC; I saw some New Jersey and a lot of MA, anyone from NYC or anywhere close to the city? New Jersey is close.

I'm 21 and almost done with my undergraduate degree. I also work at a law firm and I'm engaged! I live in Manhattan and love to do all the "city stuff." Anyone else?

Also, if anyone lives in or near the city, do you know of any gluten free resturants? I "used" to eat out all the time, every meal, but starting Thursday, I'm going to have to change my whole lifestyle! It's going to be hard always being on the run.........any tips from anyone? Or quick easy and healthy gluten free food?

-Danielle (Dani)

<{POST_SNAPBACK}>

Hey Dani,

Not only do i live in NYC, but I am in my last year at Fordham Law school. I just turned 24. Are you planning on going to law school? I also know several gluten-free restaurants in NY- risotteria is downtown, supposed to be great. Also Sambuca on W72nd- ive been there and they have a good gluten-free menu. Where in manhattan do u live? i have a great grocery store in midtown, and a good one on the upper east side too...feel free to email me if u want more info: stefikaplan@gmail.com

cant believe there arent more NYC people on this site!!!

jkmunchkin Rising Star
jkmunchkin
Posted

Dani - if you need a wedding planner I'm still in the whole planning mode so ask any questions you want - hehehe!!!

No but seriously, where I work we have more engaged girls than you can possibly imagine. I'm already helping 1 of my good friends with her wedding. She literally has recruited me as her planner.

I had the most amazing vendors so if you need any recommendations let me know. And if you want we can meet up for gluten-free pizza at Risotteria : )

mookie03 Contributor
mookie03
Posted
Dani - if you need a wedding planner I'm still in the whole planning mode so ask any questions you want - hehehe!!!

No but seriously, where I work we have more engaged girls than you can possibly imagine. I'm already helping 1 of my good friends with her wedding. She literally has recruited me as her planner.

I had the most amazing vendors so if you need any recommendations let me know. And if you want we can meet up for gluten-free pizza at Risotteria : )

<{POST_SNAPBACK}>

We should all meet up there...ive heard its delicious! (and then on to dessert at happyhappyhappy or babycakes!)

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • knitty kitty
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      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
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      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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