According To Recent Data, Gluten-Free Doesn't Seem To Be Enough

[Gfresh404]

Just wanted to share Open Original Shared Link. Frankly, I found it a little frightening and a bit of an eye opener as I was under the impression that a gluten-free diet should return a person to normal. I probably shouldn't of been so naive.

[Skylark]

Dang, that's some impressive marketing of a 70-year old diet that's available for free.

I've pretty much put that story together in my head from reading the same articles. It's really nice to see someone post it with all the literature references. This stuff about not healing is for real. I was diagnosed with vitamin D deficiency 4 years after I went gluten-free.

[mushroom]

I agree with you Skylark. I think the time period posited was way too short. Healing continues to take place long after the two-year mark. I am still healing over four years into it. Depending on the level of damage and the degree of deficiencies, and the other intolerances we develop due to leaky gut, and healing what they do to our body, it takes a loooongg time. And from what I have read, we may not ever re-attain the ability to absorb all nutrients to the levels we formerly did, and will need to supplement maybe forever, scd or not. So really, there's nothing new I learned there that I haven't already learned here or just in general reading. I probably don't need to read the rest of his series - I could probably write it

It is only the most over-optimistic who think that when you turn off the gluten faucet the water stops flowing

[Skylark]

I take supplements by the handful or I do not feel good at all. My insomnia creeps back and I get depressed. I never understood why I needed so many vitamins until I hung around here and realized that gluten-free takes a long time and that it's not enough for everyone.

I really like how I feel on SCD. My asthma goes away! I'm challenging salicylates this week and if I tolerate them I will have enough foods on this elimination diet to stop eating starches again.

[mommida]

I have been gluten free about 7 years. You really have to supplement vitamins and minerals. Gallbladder still had to be taken out 2 years ago too.

Is it just me or does it seem like there has been "sales trolls" here lately?

[Skylark]

I have been gluten free about 7 years. You really have to supplement vitamins and minerals. Gallbladder still had to be taken out 2 years ago too.

Is it just me or does it seem like there has been "sales trolls" here lately?

Gfresh isn't a troll at all, and it's unfair to accuse him of such. He's young, smart, and trying to figure out why he's still sick. That article is really good, even if it is from a site trying to sell meal plans.

[mommida]

I think the blocked post from yesterday has me suspicious.

Sorry Gfresh, didn't mean to call you a troll.

[tom]

Does no one else see that article as overly alarmist?

We see plenty of highly-affected celiacs/NCGIs online but percentages have to be skewed by the more affected being online more, continuing the search for health.

I was amazed when I joined yahoo's bay area celiac group. Seemed out of ~30 ppl, only 2 or 3 still had any celiac-related problems at all.

It shouldn't be a news flash that scarred tissue doesn't always 100% heal.

Thinking not so much flattened villi as scalloping would/could be analogous to scarring, but I don't know enough biology to know. I know my own past gut pain felt more seriously physiological than flattened villi.

[Skylark]

I guess I don't see it as alarmist because I still have some GI trouble gluten-free that GAPS/SCD style eating addresses. I also developed Hashimoto's and a vitamin D deficiency two years after going off gluten.

[Takala]

I was so messed up, pre gluten free, I continue to be pleased with what I have at least achieved, and didn't expect. I have read literature claiming that once I had "x, y, z" problems that I was going to be stuck with it, and I have been told by physicians the same thing, that I could not make myself better with diet. Hmmmph.

Do I even want to bother to look at this link ? I still have to take vitamin mineral supplements, duh !

[tom]

I guess I don't see it as alarmist because I still have some GI trouble gluten-free that GAPS/SCD style eating addresses. I also developed Hashimoto's and a vitamin D deficiency two years after going off gluten.

Oh I have plenty of post-gluten-free GI & non-GI issues as well. I'm saying that most celiacs don't, imo, and that makes the article alarmist for most ppl.

[jackisue]

I might be more inclined to take the medical research quoted more seriously if they didn't always refer to your intestines as your "gut." LOL. Just saying.

J

[Gemini]

Does no one else see that article as overly alarmist?

We see plenty of highly-affected celiacs/NCGIs online but percentages have to be skewed by the more affected being online more, continuing the search for health.

I was amazed when I joined yahoo's bay area celiac group. Seemed out of ~30 ppl, only 2 or 3 still had any celiac-related problems at all.

It shouldn't be a news flash that scarred tissue doesn't always 100% heal.

Thinking not so much flattened villi as scalloping would/could be analogous to scarring, but I don't know enough biology to know. I know my own past gut pain felt more seriously physiological than flattened villi.

I haven't even bothered to look at this article because there has already been enough alarmist stuff printed about Celiac without adding to it with another. I do agree with you Tom and if people have the expectation that they probably won't heal, then they probably won't.

I was in pretty bad shape at diagnosis with virtually no villi left yet, after 7 years, feel great. I also cannot tolerate much dairy either so I guess maybe I haven't healed healed 100%. Who cares? This is why God designed a back up plan for the small intestine. He gave us 22 feet, with overlap on the absorption front, so if a part of it were compromised, then another portion would take over. I think the numbers of those who don't heal to the point where they cannot function normally after giving time for healing, is pretty low. Maybe this is designed to keep people afraid and running to doctors all the time.....good for business. I have 3 other autoimmune problems besides Celiac so I'm not someone who only had symptoms for a week.

I suffered long term but once diagnosed, healed well enough over time that I live a completely normal life. I find that those who still consume gluten and eat like most Americans are always complaining about their medical problems and have many more problems than I do.

As you age, body parts are not always going to work perfectly. That's normal for everyone. I think if gluten free were not enough, there would be an epidemic of people who just would not heal. The incidence is small and is usually the result of other conditions that come with a delayed diagnosis of celiac or illnesses that co-exist with it, like Crohn's or colitis.

[mushroom]

I might be more inclined to take the medical research quoted more seriously if they didn't always refer to your intestines as your "gut." LOL. Just saying.

J

I don't know.... it takes 'guts' to deal with celiac!

[jackisue]

I don't know.... it takes 'guts' to deal with celiac!

Ha!! True story!!

[sreese68]

I don't know.... it takes 'guts' to deal with celiac!

So true. Some days I'm not sure I have the stomach for it.

[GFinDC]

There was a paper linked a while back about celiacs developing some kind of brain/nueral issues even after being on the gluten-free diet. Brain rot? Not sure, it was something like that. Another article posted here recently said something about the villous crypt spacing not returning to normal after a couple years.

I don't think I have ever been "normal" myself so I guess I won't worry about it. The truth is I feel much better on the gluten-free diet regardless of being normal or not. I figure it is good to be aware of these things but not get too concerned about it either.

Hmm, seems like they said most of those bad effects were only likely to happen to people new to the gluten-free diet though? OK, I made that last one up, just kidding!

[Gfresh404]

I think the blocked post from yesterday has me suspicious.

Sorry Gfresh, didn't mean to call you a troll.

No offense taken

Does no one else see that article as overly alarmist?

We see plenty of highly-affected celiacs/NCGIs online but percentages have to be skewed by the more affected being online more, continuing the search for health.

I was amazed when I joined yahoo's bay area celiac group. Seemed out of ~30 ppl, only 2 or 3 still had any celiac-related problems at all.

It shouldn't be a news flash that scarred tissue doesn't always 100% heal.

Thinking not so much flattened villi as scalloping would/could be analogous to scarring, but I don't know enough biology to know. I know my own past gut pain felt more seriously physiological than flattened villi.

I do see as a bit over alarmist, but it also seems to bring up some good points - the main that for a large portion of gluten-free people, eliminating gluten alone is not enough. That probably seems pretty obvious for most of us here, but I'm guessing it's a different story for the general population.

I haven't even bothered to look at this article because there has already been enough alarmist stuff printed about Celiac without adding to it with another. I do agree with you Tom and if people have the expectation that they probably won't heal, then they probably won't.

I was in pretty bad shape at diagnosis with virtually no villi left yet, after 7 years, feel great. I also cannot tolerate much dairy either so I guess maybe I haven't healed healed 100%. Who cares? This is why God designed a back up plan for the small intestine. He gave us 22 feet, with overlap on the absorption front, so if a part of it were compromised, then another portion would take over. I think the numbers of those who don't heal to the point where they cannot function normally after giving time for healing, is pretty low. Maybe this is designed to keep people afraid and running to doctors all the time.....good for business. I have 3 other autoimmune problems besides Celiac so I'm not someone who only had symptoms for a week.

I suffered long term but once diagnosed, healed well enough over time that I live a completely normal life. I find that those who still consume gluten and eat like most Americans are always complaining about their medical problems and have many more problems than I do.

As you age, body parts are not always going to work perfectly. That's normal for everyone. I think if gluten free were not enough, there would be an epidemic of people who just would not heal. The incidence is small and is usually the result of other conditions that come with a delayed diagnosis of celiac or illnesses that co-exist with it, like Crohn's or colitis.

If God really had a plan he wouldn't of give us these bulls$#& disorders in the first place

[dilettantesteph]

It was interesting for me to read about how so many people did better with supplementation. I did better when I removed all my supplements and vitamins. I think it was because I am sensitive to tiny amounts of cc. I did later add back vitamin D in the winter and iodine year around, very carefully sourced.

[MJ-S]

With all of the studies I've seen, they talk about people "following" or "not following" the gluten free diet. Have any studies taken into consideration how strictly a person adheres to a diet? Some people have a higher risk acceptance and continue to eat out at friends' houses and restaurants, live in shared kitchens, eat processed foods with high cc risk, etc. Others do not. Every time I see a study I wonder what if they're factoring how successful someone is at following the gluten free diet.

[Skylark]

With all of the studies I've seen, they talk about people "following" or "not following" the gluten free diet. Have any studies taken into consideration how strictly a person adheres to a diet? Some people have a higher risk acceptance and continue to eat out at friends' houses and restaurants, live in shared kitchens, eat processed foods with high cc risk, etc. Others do not. Every time I see a study I wonder what if they're factoring how successful someone is at following the gluten free diet.

They ask, but people tend to lie in studies so you can never be sure.

[Gemini]

If God really had a plan he wouldn't of give us these bulls$#& disorders in the first place

God does have a plan.....maybe you don't see it? The world is not supposed to be perfect, otherwise, people would never learn from their mistakes.

Life is a learning process. I have never considered this a BS disorder because I have adapted well and live a normal life. Is it convenient? No, but that's the worst thing I can say I've encountered when learning to deal with Celiac Disease. I guess I have seen too much really serious illness in others to make me thankful that I was given something that I had such control over. And if you think that I wasn't that sick from Celiac, I can assure you that I was deathly ill at diagnosis. I am also mostly lactose intolerant so it's not just gluten I have to avoid. However, I've found the balance that keeps me from having a chip on my shoulder about it. There is life after a Celiac diagnosis.

[Skylark]

If God really had a plan he wouldn't of give us these bulls$#& disorders in the first place

He did have a plan. Unfortunately Satan messed it up by tempting Eve and it's been downhill ever since.

[Gfresh404]

God does have a plan.....maybe you don't see it? The world is not supposed to be perfect, otherwise, people would never learn from their mistakes.

Life is a learning process. I have never considered this a BS disorder because I have adapted well and live a normal life. Is it convenient? No, but that's the worst thing I can say I've encountered when learning to deal with Celiac Disease. I guess I have seen too much really serious illness in others to make me thankful that I was given something that I had such control over. And if you think that I wasn't that sick from Celiac, I can assure you that I was deathly ill at diagnosis. I am also mostly lactose intolerant so it's not just gluten I have to avoid. However, I've found the balance that keeps me from having a chip on my shoulder about it. There is life after a Celiac diagnosis.

Haha I love arguing with theists. Something good happens, thank God. Something bad happens, oh well it's all part of his plan.

He did have a plan. Unfortunately Satan messed it up by tempting Eve and it's been downhill ever since.

Haha I think you got that backwards. Read the Bible, God killed over 2 million - the Devil killed 10

[mushroom]

If God really had a plan he wouldn't of give us these bulls$#& disorders in the first place

He did have a plan. Unfortunately Satan messed it up by tempting Eve and it's been downhill ever since.

At least he didn't tempt her with pizza