Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee

Mrs. C

Recommended Posts

pricklypear1971 Community Regular
pricklypear1971
Posted

Okay, I called Gevalia. If anyone else calls just press 1.

Talked with a nice lady that answered "no" to my question "Do Gevalia coffees contain wheat, barley, or rye gluten"?

I then explained that a friend had sent a request through the website asking if their coffees were gluten-free and received a response they contain trace gluten. I then explained the article from 2009 about corn gluten.

She then checked somewhere else (including reading a box of coffee to see what it said) and came back with the response that the FLAVORED coffees contain gluten, but she didn't know what type of gluten.

She is having the question bumped up and someone is supposed to call me tomorrow.

BTW Gevalia hasn't ever called back. Or if they did, no message.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

They never emailed me back after the stupid response about the amount of gluten being suitable for diabetics. Any company that doesn't known the difference between gluten and glucose is scary for anyone consuming these products.

come dance with me Enthusiast
come dance with me
Posted

They never emailed me back after the stupid response about the amount of gluten being suitable for diabetics. Any company that doesn't known the difference between gluten and glucose is scary for anyone consuming these products.

Alarm bells there for sure!

psawyer Proficient
psawyer
Posted

The coffee bean is gluten-free without any doubt. While it is possible that the flavor contains hidden gluten as malted barley, it is not likely. Barley malt is expensive, so rather than hide it, manufacturers will usually highlight it.

I don't like flavor in my coffee, so this is not so much of a concern for me. But I do drink plain coffee all the time, and have never had an issue with it.

  • 3 weeks later...
CeliacAndCfsCrusader Apprentice
CeliacAndCfsCrusader
Posted

If a company says "may contain traces of gluten" AND someone is reporting a reaction, that's enough for me to choose another brand.

Thanks for the information!

  • 1 month later...
zamm0 Apprentice
zamm0
Posted

Have to say I have noticed less of a trend for reaction (and it is always so mild anyway with me) with my own coffee made in a cafetiere. I use Starbucks Verona blend from Asda with a little milk. I am more likely to get a reaction when buying a coffee out and particularly with ones with a higher milk content such as lattes and cappucinos (lactose issue rather than direct gluten issue?), being mindful not to add any 'sprinkles'. Haven't braved the flavoured coffees from such chains such as mochas - unsure as whether this may be a step too far with gluten in the flavouring. A dietician I saw earlier today recommended decaf for a few months (was diagnosed 6 weeks ago).

AandGsmomma Apprentice
AandGsmomma
Posted

Dunkin Donuts French Vanilla ground coffee isnt gluten free. The label just says "Natural and Artificial flavors" but I reacted to it several times. I couldnt figure out what was making me ill so I emailed and got a CYA explination that their flavored coffee can have gluten.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mbrookes Community Regular
mbrookes
Posted

Is Gevala really coffee? Wait, I'm thinking of Postum. That has grain, but I don't know what kind. I know I'm safe with my Community with Chicory.

psawyer Proficient
psawyer
Posted

Is Gevala really coffee? Wait, I'm thinking of Postum. That has grain, but I don't know what kind. I know I'm safe with my Community with Chicory.

Postum is made from wheat and wheat bran, among other ingredients. It is a Kraft brand, so any gluten will be clearly listed, but in this case the wheat is front and center.

Lisa Mentor
Lisa
Posted

Dunkin Donuts French Vanilla ground coffee isnt gluten free. The label just says "Natural and Artificial flavors" but I reacted to it several times. I couldnt figure out what was making me ill so I emailed and got a CYA explination that their flavored coffee can have gluten.

Can you post the reply, Please? I am not denying your illness, but often times, we react to different things. It does not always mean that a product or a drink contains gluten.

But it would make sense that there would be a CYA statement, when you buy a cup of coffee in a Donut Shop. :blink:

I would like to see their response. :)

zamm0 Apprentice
zamm0
Posted

Have to say I have noticed less of a trend for reaction (and it is always so mild anyway with me) with my own coffee made in a cafetiere. I use Starbucks Verona blend from Asda with a little milk. I am more likely to get a reaction when buying a coffee out and particularly with ones with a higher milk content such as lattes and cappucinos (lactose issue rather than direct gluten issue?), being mindful not to add any 'sprinkles'. Haven't braved the flavoured coffees from such chains such as mochas - unsure as whether this may be a step too far with gluten in the flavouring. A dietician I saw earlier today recommended decaf for a few months (was diagnosed 6 weeks ago).

Sorry this is only really applicable for UK readers but here goes and just for info really:

1. Tried two Costa Mochas over the last two days and did not get a reaction and felt fine (their 'Flat White' coffees have given me a mild lactose-like reaction). See here for details:

Open Original Shared Link

2. For the Cafe Nero chain see here for gluten details for their drinks (note: mocha here has wheat) unlike Costa: Open Original Shared Link

  • 3 weeks later...
sandiz Apprentice
sandiz
Posted

I have stopped drinking coffee as it made me sick to my stomach for days after. I also read some where that the roasting of coffee changes it some how and people who are gluten sensitive like me react to it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.