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Updated Silly Yaks Restaurant List


celiac3270

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Roo Explorer

celiac3270,

Could you send me a copy too?

Thanks,

Deblieb@aol.com


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  • Replies 82
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Bette Explorer

Hi celiac3270,

You sent me a copy of the previous list. Being a newbie at the time (and still struggling now) that list was soooo helpful. I would love a copy of the new one :D

Thanks,

Bette @ bboophsd@earthlink.net

celiac3270 Collaborator

Bette...your's didn't go through. I don't believe, though, that a correct e-mail address can have two at signs (@) in it. And is there a space between the Bette and the @ and then the @ and the subsequent B?

pixiegirl Enthusiast

Hi celiac3270,

I can't even get to the web page (url) supplied here the one that starts with f2.. blah blah. I get the page not found thingy.

I can't understand why this happens, I've spoken to the owner of the yahoo group, I do get all their mail and can go to the start page of the silly yaks yahoo group but when I click on the link my adobe opens but stays blank. She said it was because I didn't have the latest version, well I got it and the same thing happens. My adobe works fine for other web sites so I'm not sure what the issue is I open lots of .pdf files.

My address is bailey@cape.com

Thanks, Susan

celiac3270 Collaborator

Weird... well, I'll send it to you via e-mail and you'll see if you can open it.

Bette Explorer
Bette...your's didn't go through.  I don't believe, though, that a correct e-mail address can have two at signs (@) in it.  And is there a space between the Bette and the @ and then the @ and the subsequent B?

<{POST_SNAPBACK}>

celiac3270,

ooops :rolleyes: I signed my name Bette then meant to skip a space and write my email address. I ended up putting it all on one line. It is bboophsd@earthlink.net.

Thanks,

Bette

celiac3270 Collaborator

Oh, of course! Sent...


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coreyjilda Rookie

please snd it to me at coreyjilda@yahoo.com

swittenauer Enthusiast

Thanks! We got it!

musikate Apprentice

celiac3270, Dahlink, please send me a copy...tcherkate@yahoo.com

redheadheather Explorer

Could you please send it to me too? Best address would be Heather.Wiersma@usdoj.gov (work).

Thanks!!!

LRgirl Explorer

Hi,

Could you please send me a copy? Email is lovelife62001@yahoo.com. Thank you so much!!

celiac3270 Collaborator

Sent through here -------------->

familee3 Newbie

Could you please email me this guide? My 5-year-old daughter was diagnosed on Friday and I'm struggling with all of this information. I appreciate the help! Thanks!

Lori

gteam63@hotmail.com

misskris Apprentice

celiac3270, you're so awesome to do this. I know it must get tiring, but could I pretty please have a copy as well?

Email is kristen_varney@yahoo.com

Thanks SOOOOOOO much!! MWAH! (That's a kiss!) :D

celiac3270 Collaborator

Sent ----->

Thanks SOOOOOOO much!! MWAH! (That's a kiss!) biggrin.gif

Thank you, but you didn't have to, lol :lol:

kosmokitty Newbie

[We haven't got the first list! Please could you e-mail this list to us! Thanks so much!

studskousen@hotmail.com

celiac3270 Collaborator

Sent through here -------------->

Maureen73 Apprentice

Hi celiac3270!

Me too please!!! Would you please send it to chuckst@earthlink.net.

You are fabulous!

Thanks so much,

Maureen :)

emmirose2008 Rookie

hey!

Can you e-mail it to me????

emmirose2008@aol.com!!

thanks

<3emily

Guest JlazyH

Very much could use a copy.Thanks jlazyh1@earthlink.net

mouse Enthusiast

celiac3270,

Could I also have a new updated list. Thank you. armettaz@msn.com :)

celiac3270 Collaborator

Sent

  • 2 weeks later...
AN616 Rookie

Hello,

Can you please send it to me also?

ahanson616@yahoo.com

Thank-you very much!

celiac3270 Collaborator

Done.

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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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