Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Means No Coffee?


moose07

Recommended Posts

IrishHeart Veteran

Before we all get carried away with this again, :lol: let's reiterate plain coffee does not contain gluten.

Can it be contaminated during the preparation process? sure, why not--- depends on who made the coffee.

If you are having pains, could it be you just cannot tolerate coffee??

I do not doubt you have pain, hon--not at all! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 79
  • Created
  • Last Reply
IrishHeart Veteran

Hook me up with an IV...LOL! :lol:

But seriously...The fact that my INSTANT NESCAFE FOLGERS CHOICE felt it nessasery to put gluten free on the lable for my INSTANT coffee, made me wonder if maybe OTHER instant coffees might have glutten as a binder/emulfifier to hold those lovely little crystals together!

Some products do carry "Gluten Free" labels without necessity.

I see it on cheeses, popcorn, meats, etc. --that sort of thing.

I do not know why they put it there, since those foods are inherently gluten-free , except perhaps to appeal to the gluten free consumers.

Jestgar Rising Star

Remember my post about new celiac pain a couple of days ago, even though I'm entirely glutenfree? With me it IS the coffee. I can not have coffee or I'm getting my old celiac pains.

Nice to see you back Stef!!

I used to get headaches from gluten, always in exactly the same spot. For a long time after I was gluten-free, whenever I'd get a a headache, it was always in that same place. I just figured I did some damage right there, and was more susceptible to inflammation (from anything). Finally, in the last year or so, I'm getting headaches in different areas of my head. Maybe I'm healing the last scraps of damage? :)

cavernio Enthusiast

If you'd pay closer attention to the article, you'd find that Dr. whatshisface neurologist is only name-dropped. It's clear that he is not the person responsible for the research that Moose is concerned about. Of course, neither is there a link to that research or even the person who conducted it which is a shame. But that doesn't prove it's a sham either. Neither does the fact that the site gets paid to exist mean everything it posts is false. It's not like they're advertising some coffee substitute in lieu of coffee.

I have no idea why I would trust the evening news to say that coffee is bad for you before you'd believe that coffee interacts with our immune system...I've never seen anything on the news about celiac disease itself, much less potential spin-off reactions to gluten from other food sources from tests done in petri dishes.

Comments about coffee not having enough protein to affect you is EXACTLY the same logic that people who think we're all being anal when you eat a bread crumb. How much wheat protein can a tsp of soy sauce have in it?

It makes a lot of sense to me actually. I react to a cup a coffee far stronger than I do to even 3 cups of tea. It makes even more sense with the findings that gluten, through expressing zonluin more, creates larger gaps between the cells lining the intestine. If coffee were to cause a similar reaction, it stands to reason that more caffeine would get into the bloodstream than if you just took the same amount of straight caffeine. And there's people here who have made posts about coffee specifically before, saying they had to quit it.

cavernio Enthusiast

There's info online that says instant coffee has flour in it. Maybe it was wrong. Maybe a brand of instant coffee did/does that.

Regardless though, there's clearly some sort of processing done to instant coffee, and that puts up alarm bells to anyone trying to be gluten free. If I owned a company, I'd label all my products as gluten free if they were.

Monklady123 Collaborator

If you'd pay closer attention to the article, you'd find that Dr. whatshisface neurologist is only name-dropped. It's clear that he is not the person responsible for the research that Moose is concerned about. Of course, neither is there a link to that research or even the person who conducted it which is a shame. But that doesn't prove it's a sham either. Neither does the fact that the site gets paid to exist mean everything it posts is false. It's not like they're advertising some coffee substitute in lieu of coffee.

I have no idea why I would trust the evening news to say that coffee is bad for you before you'd believe that coffee interacts with our immune system...I've never seen anything on the news about celiac disease itself, much less potential spin-off reactions to gluten from other food sources from tests done in petri dishes.

Comments about coffee not having enough protein to affect you is EXACTLY the same logic that people who think we're all being anal when you eat a bread crumb. How much wheat protein can a tsp of soy sauce have in it?

It makes a lot of sense to me actually. I react to a cup a coffee far stronger than I do to even 3 cups of tea. It makes even more sense with the findings that gluten, through expressing zonluin more, creates larger gaps between the cells lining the intestine. If coffee were to cause a similar reaction, it stands to reason that more caffeine would get into the bloodstream than if you just took the same amount of straight caffeine. And there's people here who have made posts about coffee specifically before, saying they had to quit it.

Oh well... since I have 2-3 cups of brewed coffee a day and never, ever have gluten symptoms from it I'm going with the thought that there's no gluten in my coffee. ;)

IrishHeart Veteran

Oh well... since I have 2-3 cups of brewed coffee a day and never, ever have gluten symptoms from it I'm going with the thought that there's no gluten in my coffee. ;)

Me, too. If there were gluten in coffee, or if we all "cross-react" to coffee, I'd be dead by now.

PEOPLE!!

Now we have 2 simultaneous equally-misleading threads going declaring "coffee is bad for celiacs" :rolleyes:

....it will die a nice, peaceful death if people would stop bringing it back to life with the paddles!! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

If you'd pay closer attention to the article, you'd find that Dr. whatshisface neurologist is only name-dropped. It's clear that he is not the person responsible for the research that Moose is concerned about. Of course, neither is there a link to that research or even the person who conducted it which is a shame. But that doesn't prove it's a sham either. Neither does the fact that the site gets paid to exist mean everything it posts is false. It's not like they're advertising some coffee substitute in lieu of coffee.

That would be because there is no research whatsoever. I looked up the so-cailed references and they document occasional allergies to green coffee beans among coffee workers. <_< It gives me even less respect for Dr. whatshisface because it's considered poor practice to pad bibliographies. Most people get over that in high school.

Coffee is considered fairly non-allergenic in the peer-reviewed literature. It's a bit irritant if you have gastritis or are trying to heal ulcers but that's about the only issue. Can we please lay this stupid idea of coffee and gluten cross-reactivity to rest? Please?

IrishHeart Veteran

Can we please lay this stupid idea of coffee and gluten cross-reactivity to rest? Please?

Amen to that, sister!!!!!!!!! :)

stef-the-kicking-cuty Enthusiast

Nobody was listening here. I didn't say there was gluten in the coffee, nor did I say gluten caused the pain. THE COFFEE (which was entirely glutenfree) caused the same pain that originally only gluten used to cause in my body. Any coffee for that matter. And no, it's not caffeine, I drink coke and Pepsi and have no problems.

Skylark Collaborator

Nobody was listening here. I didn't say there was gluten in the coffee, nor did I say gluten caused the pain. THE COFFEE (which was entirely glutenfree) caused the same pain that originally only gluten used to cause in my body. Any coffee for that matter. And no, it's not caffeine, I drink coke and Pepsi and have no problems.

I am sorry coffee makes you sick. Nobody is questioning your coffee intolerance or trying to tell you to drink it!

We are trying to make sure that people don't get paranoid because a crazy blogger posted a putative cross-reaction between gluten and coffee. Rumors on gluten spread like wildfire and then people start avoiding crazy stuff like teabags.

Mateto Enthusiast

I nearly fell off my chair when I seen the title of this thread, but I'm good now, having read the replies :)

I'm not a coffee person myself, but it's a nice treat, however the reason I think coffee would have gluten is because it could probably in the glue that holds the instant packets together, or the K-Cup kind, but I doubt it :lol:

IrishHeart Veteran

I'm not a coffee person myself, but it's a nice treat, however the reason I think coffee would have gluten is because it could probably in the glue that holds the instant packets together, or the K-Cup kind, but I doubt it :lol:

NOPE!!!!!!!!!! (groan) really?? <_< not funny.

Asolutely not, Keurig brand K cups ARE gluten-free!!

IrishHeart Veteran

Nobody was listening here. I didn't say there was gluten in the coffee, nor did I say gluten caused the pain. THE COFFEE (which was entirely glutenfree) caused the same pain that originally only gluten used to cause in my body. Any coffee for that matter. And no, it's not caffeine, I drink coke and Pepsi and have no problems.

At first, when I read what you wrote, it sure sounded as if you meant that. Then, I reread it again and decided otherwise.

But it may be confusing, I think because you used the phrase "my old celiac pain" is back and "it IS the coffee".... & that may have been confusing to some readers??

stef-the-kicking-cuty Enthusiast

Why would that imply that there is gluten in it? If that's the case, I would have written it like that.

stef-the-kicking-cuty Enthusiast

And thanks jestgar for welcoming me back. I guess, most people don't know, that I'm an old bird on here. Therefore, I'm also already healed and have no inflammation anymore either, like somebody mentioned, might be the case.

kareng Grand Master

Why would that imply that there is gluten in it? If that's the case, I would have written it like that.

Hi Steph! Hope you are still kicking butts! :D

You did put it on a thread about a blogger who says that coffee acts like gluten or some such nonsense. That might have made it look like you were maybe agreeing with the nonsense. I think we have established that it disagrees with you but has nothing to do with gluten, or fooling the intestines to think it's. gluten or a space alien take -over of earth.

I find the acid in coffee can be hard on my stomach. If I add a bit of milk, it seems to cut that.

Now someone will be upset I called it nonsense & brought space aliens into it. :o

IrishHeart Veteran

Why would that imply that there is gluten in it? If that's the case, I would have written it like that.

I don't know, hon--just guessing about what others may have read into your words...as I said, I did get what you meant!! :) Yes, I know you're a veteran. I saw some of your posts and these guys all know you well! :) Cheers, IH

IrishHeart Veteran

Now someone will be upset I called it nonsense & brought space aliens into it. :o

DOH! K, now you KNOW the space alien community will be all over this like a cheap suit. For pete's sake....this thread will just not die!! :lol: :lol: :lol:

pricklypear1971 Community Regular

DOH! K, now you KNOW the space alien community will be all over this like a cheap suit. For pete's sake....this thread will just not die!! :lol: :lol: :lol:

You know space aliens don't have Celiac because they make crop circles in wheat fields.

Jestgar Rising Star

You know space aliens don't have Celiac because they make crop circles in wheat fields.

:lol: :lol: :lol: :lol:

psawyer Proficient
For pete's sake....
Hey, leave me out of this. :ph34r:
IrishHeart Veteran

Hey, leave me out of this. :ph34r:

:lol: :lol: :lol: :lol:

I usually say "for the love of mike",

but he said the same thing....

Chad Sines Rising Star

*so tempted to start another thread labelled "So there is gluten in coffee" but my desire to live outweighs my desire to be mischievous.

ncallier Newbie

I'm gonna give the previous posts some serious reinforcements. I've never gotten any information off this forum that was harmful. Without the experience of the people here I would have still been lost and itching my skin into oblivion.

How did you get rid of the itch?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,337
    • Most Online (within 30 mins)
      7,748

    Susan1001
    Newest Member
    Susan1001
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.