Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Two Months Gluten Free, Still Have Issues

sce2012

Recommended Posts

sce2012 Newbie
sce2012
Posted

I am gluten and dairy free and still passing mucus in stools and still have stomach pain...doc thinks I have ibs in addition to celiac. Does anyone else still have these problems at two months?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


krystynycole Contributor
krystynycole
Posted

Have you tested for other intolerances?

sce2012 Newbie
sce2012
Posted
  • Author

I haven't. I asked my gi doc but I guess I have to go to an allergist? That doesn't seem right to me, but maybe it is?

IrishHeart Veteran
IrishHeart
Posted

Two months is very early in your recovery.

Healing takes anywhere from 6 months to several years, depending on the severity of the damage.

IBS is just a collection of symptoms. Unless you have some other inflammatory bowel disease or intestinal infection, (has your doctor ruled those out?) I would say you are still healing. IMHO

In answer to your question, yes, I had continuing issues and symptoms for many months. Everyone heals at different rates.

Allergists diagnose food allergies, not food intolerances. They are two different things.

Give it time, hon.

sce2012 Newbie
sce2012
Posted
  • Author

Thank you, that is what I needed to hear. I have been so anxious about all of this. It seems as though everyone has this amazing quick fix after going gluten free and while I have had some improvement, I am still very stressed. My first gi doctor scared the life out of me about celiac potentially being lymphoma and I've never really recovered from that.

sce2012 Newbie
sce2012
Posted
  • Author

How do you test for intolerances?

Meggielynn13 Rookie
Meggielynn13
Posted

I am two months gluten-free too. I noticed I had the same problems as you a few weeks ago and realized it was from greasy food. Also if you don't have a gallbladder that could make that happen too. One of my doctors also told me to eat naturally gluten-free foods too and eat every few hours to keep everything alright. It will get better. Mine is starting to subside but since I no longer have a GB it will probably still happen sometimes.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Thank you, that is what I needed to hear. I have been so anxious about all of this. It seems as though everyone has this amazing quick fix after going gluten free and while I have had some improvement, I am still very stressed. My first gi doctor scared the life out of me about celiac potentially being lymphoma and I've never really recovered from that.

Being anxious is understandable, but you can't let it take over. (believe me, I know) You are healing and it takes time.

I do not know a single celiac (and I know lots of them) who had a "quick fix". None.

Well, you do not have lymphoma, do you? Okay, then...time to let it go! Focus on today.

Hon, part of this recovery is mindset. You KNOW what this is and you know how to manage it.

The body can recover, but it needs time to repair itself. The damage didn't happen overnight and you do not heal overnight.

Sorry, but that is the way it works.

Just stick to the diet, eat healthy foods, do things you love, drink water, take probiotics and digestive enzymes before meals. Be good to yourself. Get a massage.

Stress serves no purpose, hon. Hang in there!

IH

Skylark Collaborator
Skylark
Posted

Grains and starches can be really troublesome and trigger IBS problems. You could try the Specific Carbohydrate Diet. A lot of people find it really helpful. Open Original Shared Link

krystynycole Contributor
krystynycole
Posted

How do you test for intolerances?

I was just thinking about ruling them out personally. Like removing it from your diet and see if it helps.

sce2012 Newbie
sce2012
Posted
  • Author

For awhile I was eating just chicken and rice...I will probably have start something similar to that again. Thank you :-)

sce2012 Newbie
sce2012
Posted
  • Author

Meggielynn, you don't get the mucous anymore?

TeknoLen Rookie
TeknoLen
Posted

I am four months into it and there are still challenging days, but fewer of them with each passing week. If you remain strict and steadfast, the improvements will show up. Good luck.

sce2012 Newbie
sce2012
Posted
  • Author

Thank you everyone for taking the time to respond...very helpful and greatly appreciated!

IrishHeart Veteran
IrishHeart
Posted

Don't know if you have tried this, but digestive enzymes before a meal aid digestion and taking probiotics helps to heal the imbalance in our guts.

Just a thought! :)

sce2012 Newbie
sce2012
Posted
  • Author

I am taking a probiotic, Culturelle, although it only has one strain of bacteria so I am not sure if it is the best. I looked for digestive enzymes at the grocery store yesterday and didn't see any. Maybe I was looking in the wrong place. I see people talk about L-glutamine, too...does it work?

IrishHeart Veteran
IrishHeart
Posted

L-glutamine is thought to aid in mucosal repair in the gut. Some people report it helps. It won't hurt!

Digestive enzymes can be purchased over the internet, if you are having trouble finding them in the drug store. (I use Enzymedica Digest Gold, but others may have suggestions for you)

Culturelle is a good OTC probiotic. Drs. Sherwood L. Gorbach and Barry R. Goldin are two researchers who have clinically proven that the Lacobacillus GG strain was strong enough to survive the stomach acids and colonize the intestines successfully. (gosh, I sound like a spokesperson--I'm not, honest! :) ) But there are many others to choose from as well.

Meggielynn13 Rookie
Meggielynn13
Posted

Meggielynn, you don't get the mucous anymore?

Sometimes I do. Maybe once a week especially if I eat a meal out or I eat a really heavy meal. I've noticed smaller meals with rice/potatoes and fish/chicken are easier on my stomach.

sce2012 Newbie
sce2012
Posted
  • Author

Yes, I have been doing a lot of rice. I took the suggestion about eliminating something, and I eliminated corn. It seemed to help for a few days, but now the pain is back. This is going to make me totally batty!!!

IrishHeart Veteran
IrishHeart
Posted

Try the digestive enzymes before each meal.

Mucus in stool can be from any number of things. It can be from the Celiac, or it could be from greasy foods. If your doctor has ruled out Crohn's, diverticulitis and other inflammatory bowel disease or infections, I'd say you are still healing.

But if it persists, call your doctor.

sce2012 Newbie
sce2012
Posted
  • Author

I had held off on getting the enzymes b/c I was waiting the results of a fecal fat test...I figured he may write a prescription anyhow. The results still aren't in, so I guess I will go ahead and get them since the lab results are taking forever!

sce2012 Newbie
sce2012
Posted
  • Author

I tried the digestive enzymes last night for the first time with dinner...had terrible diarrhea this morning. Is that normal when starting on them?

IrishHeart Veteran
IrishHeart
Posted

I tried the digestive enzymes last night for the first time with dinner...had terrible diarrhea this morning. Is that normal when starting on them?

They have no side effects and I never had D from them.

What brand are they?

More importantly, what did you eat last night?

sce2012 Newbie
sce2012
Posted
  • Author

The brand you mentioned - digest gold. I just ate a plain chicken breast, peas, and homemade gluten free brownies. I had been taking pamelor but stopped because I was getting dry mouth. I don't know if withdrawal from that can cause D. I am also on my period (sorry if this is tmi) which usually upsets my stomach, but today has been pretty excessive. Feeling pretty blue. I am really not sure I am getting better at all. :-(

IrishHeart Veteran
IrishHeart
Posted

Not TMI--it explains a lot!

W/d from Pamelor (nortryptiline) can cause side effects like D

and your period can bring that on, too.

DO not stop it abruptly! You need to taper down from that drug.

Did you doctor tell you to stop this drug???

Chocolate may be too much for your system. Dairy may be too much for you right now.

I am sure you feel down hon, your body is going through a lot and you feel discouraged. Try to pamper yourself.

It will get better as you go along. Hang in there.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. thejayland10
      - thejayland10 replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      TTG IgA and IGA elevated mildy

      my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening thank you for attaching...
    2. HilaryM
      - HilaryM posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      New onset constant gas

      Hi all, I’ve been following a strict gluten-free diet for 1.5 years since I was diagnosed. The last few weeks though I’ve suffered almost continual bloated stomach and flatulence. It literally is almost constant - and I was never this way before. I can’t think of any change to my diet, activity, etc. I’m dying - it’s so uncomfortable and embarrassing to feel l...
    3. knitty kitty
      - knitty kitty replied to Bindi's topic in Super Sensitive People
      43

      Refractory or super sensitive?

      @Levi, How are you doing? Sorry I missed your posts. How's your thyroid? Did your Vitamin D stabilize? Do you have long hauler syndrome after Covid? Consider switching to Vitamin D 3, the natural form of Vitamin D. Vitamin D 2 is the synthetic form of Vitamin D which the body can have difficulty changing to an active form. Also, Thiamine...
    4. lizzie42
      - lizzie42 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Gluten free and oat free bars not sugary?

      I'm looking for bars or non perishable snacks for my 2 kids. They are 5 and 3. The 3 year old seems sensitive to oats also. We do a lot of long hikes and bike rides. They eat mostly fresh foods but for these rides and hikes we need easy and non perishable. Also that taste good! We do a lot of larabars and freeze dried apples but those are getting old. Any...
    5. knitty kitty
      - knitty kitty replied to MagsM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Inflammation and Menier’s disease link?

      Oh, @MagsM, Sorry you had that happen with Niacin. 500mg is the maximum amount of Niacin one should take. Niacin works hand in hand with Thiamine, so a big influx like that can imbalance thiamine if not supplemented at the same time. All the B vitamins work together in concert. Niacin in doses at 500 mg or above have been used by doctors to lower...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,769
    • Most Online (within 30 mins)
      7,748
    Francie Bailey
    Newest Member
    Francie Bailey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening  thank you for attaching this, could this happen randomly even after being gluten-free for so long ? my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening 
    • HilaryM
      New onset constant gas

      By HilaryM · Posted

      Hi all, I’ve been following a strict gluten-free diet for 1.5 years since I was diagnosed. The last few weeks though I’ve suffered almost continual bloated stomach and flatulence. It literally is almost constant - and I was never this way before. I can’t think of any change to my diet, activity, etc. I’m dying - it’s so uncomfortable and embarrassing to feel like I have zero control over this. Any ideas? Thank you!
    • knitty kitty
      Refractory or super sensitive?

      By knitty kitty · Posted

      @Levi, How are you doing?  Sorry I missed your posts.   How's your thyroid?  Did your Vitamin D stabilize?  Do you have long hauler syndrome after Covid? Consider switching to Vitamin D 3, the natural form of Vitamin D.  Vitamin D 2 is the synthetic form of Vitamin D which the body can have difficulty changing to an active form.  Also, Thiamine is needed to active Vitamin D.   Hypothyroidism can be caused by Thiamine deficiency.  The thyroid is an organ that uses lots of thiamine.  sometimes thyroid deficiency can also cause hyperthyroidism, or swings between both hyper- and hypo-thyroidism. We need more Thiamine when we're sick with an infection (like Covid) or injured.  We need more Thiamine when we're physically active.  We need more Thiamine when we're emotionally stressed or worried.  Our brain uses the more Thiamine just thinking than our muscles do while running a marathon.  Thiamine is extremely important in fighting infections.  Covid patients and long haulers have found taking Thiamine has improved their survival rate and long term symptoms.   Consider taking a Thiamine supplement like Benfotiamine which has been scientifically shown to promote intestinal healing.  Damaged villi need thiamine to grow back.   Be sure to take a magnesium supplement, too.  Thiamine and magnesium make life sustaining enzymes together.  You also need magnesium to keep calcium in the bones.  The thyroid regulates calcium.  A wonky thyroid can lead to reduced bone density.   Remember the B vitamins all work together in concert so adding a B Complex to Benfotiamine and magnesium supplements and Vitamin C would be great in improving absorption of nutrients while we're dealing with celiac disease. Namaste
    • lizzie42
      Gluten free and oat free bars not sugary?

      By lizzie42 · Posted

      I'm looking for bars or non perishable snacks for my 2 kids. They are 5 and 3. The 3 year old seems sensitive to oats also. We do a lot of long hikes and bike rides. They eat mostly fresh foods but for these rides and hikes we need easy and non perishable. Also that taste good! We do a lot of larabars and freeze dried apples but those are getting old. Any ideas? 
    • knitty kitty
      Inflammation and Menier’s disease link?

      By knitty kitty · Posted

      Oh, @MagsM, Sorry you had that happen with Niacin.  500mg is the maximum amount of Niacin one should take.  Niacin works hand in hand with Thiamine, so a big influx like that can imbalance thiamine if not supplemented at the same time.  All the B vitamins work together in concert.  Niacin in doses at 500 mg or above have been used by doctors to lower triglycerides levels and raise HDL, the good cholesterol.  Pharmaceuticals to do the same thing are more expensive and thus more profitable for physicians. Has your doctor tested you for H. Pylori?  An infection by H. Pylori can be tested for by your doctor.  H. Pylori can cause low tTg IgA results, too.   I would hold off on the microbiome test for now.  Your microbiome is going to change when you go gluten free.  Your microbiome will change when you start taking Thiamine.  Thiamine supplementation influences which microbes grow in the intestines, encouraging beneficial bacteria and getting rid of the bad ones.  Thiamine in the form Benfothiamine promotes intestinal healing, too.  Adopting the Autoimmune Protocol Diet (by Dr. Sarah Ballantyne, a Celiac herself) after diagnosis will also change your microbiome.  This is the best diet to heal and recover, IMO.   If you're going to have more testing done for vitamin deficiencies, don't take vitamin supplements beforehand, otherwise the tests will measure the vitamin supplements in your bloodstream and give false results.  Same thing will happen if you take B vitamin shots.  The supplements you mentioned (Arterosil HP and Vascanox HP) are herbal support and do not contain all eight B vitamins.  There's no harm in taking them, but I prefer a B Complex that contains all the B vitamins in activated forms like Life Extension's Bioactive Complete B Complex.  All the B vitamins work together in concert.  Magnesium is important to supplement as thiamine and magnesium make life sustaining enzymes together.  Do not buy supplements containing Thiamine Mononitrate because it is not biologically active.  It is very hard for the body to utilize.  Most of it (70%) passes out unused.    Yes, my Meniere's disease has not returned.  I was deficient in Vitamin D.  I took high doses of Vitamin D 3 to correct the deficiency quickly.  I also took TTFD (tetrahydrofurfuryl disulfide) which is a form of thiamine different from Benfotiamine.  TTFD can cross the blood brain barrier without a carrier, so it can get into the brain very easily.  TTFD helps the Vagus nerve function.  The Vagus nerve regulates the ears and balance, and also the digestive system.  I like Allithiamine by Ecological Formulas.  I also like Thiamax by Objective Nutrients.  You should have improvements within a hour with TTFD.  TTFD is much stronger, so lower doses will give amazing benefits (50-200 mg).   I hope this helps give you some direction to take on your journey!
×
×
  • Create New...