Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergy Testing


Twoxxmom

Recommended Posts

Twoxxmom Rookie

Just wondering what experience people have had with allergy testing and possible further testing if wheat shows up as an allergen. I am scheduled to see an allergy doc in about a week and a half after my dermatologist has been unable to figure out what to do with me. Biopsy on lesion showed contact allergy dermatitis. Any advice? Should I be seeing a different kind of doc? The diagnosis phase seems much harder than just going gluten-free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Just wondering what experience people have had with allergy testing and possible further testing if wheat shows up as an allergen. I am scheduled to see an allergy doc in about a week and a half after my dermatologist has been unable to figure out what to do with me. Biopsy on lesion showed contact allergy dermatitis. Any advice? Should I be seeing a different kind of doc? The diagnosis phase seems much harder than just going gluten-free.

I think you need a new dermatologist who knows how to biopsy for DH. A biopsy ON the lesion is rarely positive; the sample needs to be taken from the skin immediately adjacent to an active lesion. You could well be allergic to wheat, too, but if you do have DH you wouldnl't be touching wheat anyway. When a biopsy is done for DH it requires a special staining technique. Just looking at the sample under a scope would not tell you anything, so if he did not specify DH then the procedure ON the lesion was worthless.

Twoxxmom Rookie

I think you need a new dermatologist who knows how to biopsy for DH. A biopsy ON the lesion is rarely positive; the sample needs to be taken from the skin immediately adjacent to an active lesion. You could well be allergic to wheat, too, but if you do have DH you wouldnl't be touching wheat anyway. When a biopsy is done for DH it requires a special staining technique. Just looking at the sample under a scope would not tell you anything, so if he did not specify DH then the procedure ON the lesion was worthless.

That's what I thought about the biopsy too. Do you think the allergy testing (with a different doctor, an allergist) will serve any purpose, or should I be seeing someone else?

mushroom Proficient

That's what I thought about the biopsy too. Do you think the allergy testing (with a different doctor, an allergist) will serve any purpose, or should I be seeing someone else?

It depends what you are hoping to learn from the allergist. I am not sure if you have had a celiac blood panel run? If you have not, I would start with that, and a new dermatologist as mentioned who knows how to do a DH biopsy. If you have some specific reason for allergy testing, i.e., you think you are having an allergic reaction to wheat, that wouold be important to khnow. As you probably know, celiac is an autoimmune reaction, not an allergic reaction.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,227
    • Most Online (within 30 mins)
      7,748

    Imr
    Newest Member
    Imr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.