Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Trouble With Probiotics?

nursenation2

Recommended Posts

nursenation2 Rookie
nursenation2
Posted

So as some of you know I have been having trouble again after 2 years gluten free, but had got cc'd several times in a row. So started (after this big flare up) on probiotics and back on nexium and then later gastric enzymes. So then I was still having problems so tried grain and dairy free for a few days. Nothing was helping. I felt like I was taking more and more pills so I stopped everything. And then things got better. I added back nexium ,that is ok. I suspect the probiotics. Can that be possible? Was taking culturelle and acidophilous. I was to the point with bloating that I couldn't even sleep. Since I stopped taking them that is so much better. I know that can be a common reaction in the first few days of starting probiotics but was on them about 3 weeks. Tried dairy again today and did fine. Could this be? What should I do??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


raea2002 Apprentice
raea2002
Posted

I started taking Raw women's multivitamin, it has probiotics in it. I havent had a problem with them.

Lisa Mentor
Lisa
Posted

When first diagnosed, I tried probiotic and it did not settle with me well.

My pro biotics had dairy. I stopped it for a month and found one which did not contain dairy and continued with no issue.

I assume you have checked you meds. Even generics change frequently.

But, as we all know, not all roads lead to gluten. ;)

mamajchis Newbie
mamajchis
Posted

When first diagnosed, I tried probiotic and it did not settle with me well.

My pro biotics had dairy. I stopped it for a month and found one which did not contain dairy and continued with no issue.

I assume you have checked you meds. Even generics change frequently.

But, as we all know, not all roads lead to gluten. ;)

I started using align. Started having setbacks about the same time with no change in diet. I quit eating gluten March 12 2012 so still fairly new to this. I have most of the GI problems which are taking longer to improve on than I had hoped.

tom Contributor
tom
Posted

I had to switch to a 'vegan formula' one because I was getting dairy symptoms from regular ones.

So I use the green-topped PB8 from WhFds. Blue top is regular.

dilettantesteph Collaborator
dilettantesteph
Posted

What brand of probiotics was it? Could there be cc problems?

tom Contributor
tom
Posted

If that's for me it was multiple brands & my dairy symptoms are easily distinguishable from gluten symptoms.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mom23boys Contributor
Mom23boys
Posted

Is your diet high in sugars or the processed gluten-free subs? This will "feed" the bad bacteria that the probiotics are trying to get rid of which will make a little "war" in your digestive system.

nursenation2 Rookie
nursenation2
Posted
  • Author

Don't eat a lot of sugar unless you count natural sugars as in fruit. I eat the occasional schar chibata roll. None this week even. I don't like most of the gluten-free subs and never liked sweets. See the doc next week I'm hoping we can figure something out.

beachbirdie Contributor
beachbirdie
Posted

So as some of you know I have been having trouble again after 2 years gluten free, but had got cc'd several times in a row. So started (after this big flare up) on probiotics and back on nexium and then later gastric enzymes. So then I was still having problems so tried grain and dairy free for a few days. Nothing was helping. I felt like I was taking more and more pills so I stopped everything. And then things got better. I added back nexium ,that is ok. I suspect the probiotics. Can that be possible? Was taking culturelle and acidophilous. I was to the point with bloating that I couldn't even sleep. Since I stopped taking them that is so much better. I know that can be a common reaction in the first few days of starting probiotics but was on them about 3 weeks. Tried dairy again today and did fine. Could this be? What should I do??

I cannot take probiotics with FOS (fructo-oligosaccharides) in them, I get a lot of gut pain.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,825
    • Most Online (within 30 mins)
      7,748
    Aunsheen
    Newest Member
    Aunsheen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Disaccharide deficient, confusing biopsy results, no blood test

      By Scott Adams · Posted

      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      Thank you this really helped. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.