Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Breastfed Infant With Celiac

LilleesMom

Recommended Posts

LilleesMom Newbie
LilleesMom
Posted

My daughter is now 7 months old but we started having unexplained (at the time) problems around 5 months of age. Out of the blue she started projectile vomiting and her white blood cell count was extremely high (20000-37000). On occasion she would have diarrhea with it. We were admitted overnight once and made numerous trips to the ER. We also spent almost 2 weeks in the childrens hospital where they performed surgery for a mild malrotation of her bowel to attempt to correct the vomiting. She has had several X-Rays,Upper GIs and small bowel studies and NO ONE could figure out what was going on. Finally her pediatrian who is just a PA mentioned Celiac disease. I got online and she had all of the symptoms: rash on her lower back/buttock, projectile vomiting, diarrhea, unexplained weight loss, skin color change, etc. We finally had a celiac panel done and her Total IGa was 88. We are now being refered to a different childrens hospital for the biopsy of her small intestine to confirm. She is breastfed full time and has eats baby food (veggies) which we stopped for a while because we didn't know if that was making her sick. Since I have cut gluten out of my diet going on 1.5 weeks she is now having solid bowel movements. Tho she has gone 2 weeks without an episode prior to gluten free she has more energy. I am so glad to have an answer now. From what I read gluten isn't good for you anyway. I still need some help with recipes and good gluten-free products. I hope this post will help someone else.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

If you are feeding her gluten free, the endoscopy, whenever you get one, will likely be negative. Hopefully you could get a doc to officially diagnose based on reaction to diet and blood tests?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,155
    • Most Online (within 30 mins)
      7,748
    nknight1298
    Newest Member
    nknight1298
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Scott Adams · Posted

      You don't need an official diagnosis to request a gluten-free diet in either a hospital or nursing home--this can be requested by anyone. The higher costs associated with existing conditions for life insurance is a reality, and regardless of your politics, it could become a reality again for health insurance in the USA. For many this could make health insurance unaffordable, thus, everyone who is undiagnosed should understand such potential consequences before they go the official diagnostic route. As mentioned, once it's on your medical record, it won't go away.
    • Jmartes71
      Disregarded

      By Jmartes71 · Posted

      Im beyond frustrated on so many levels. I have always checked labels , have to read everything. Allergic to everything foods and medications. My skin has sores, my body aches my eye is effected, im actively dealing with all these lovely issues, sibo positive, ibs, high blood pressure now dealing with depression because my new doctors after 25 years of many test dancing around my disregarded celiac disease that I was half ass told im 1994 by endoscopy and colonoscopy stating to stay away from wheat and Ill be fine Im not.I had to reprove my disease with another endoscopy and colonoscopy. Had blood work with new gi and of course blood work shows fabulous, nothing wrong. Im not eating the foods im not supposed too.Im stressed and fired of fighting of my disregarded celiac. 
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      @Joel K If the OP is ever in the hospital, and her celiac disease tests did come back positive and she does have celiac disease, she can just tell the doctors that she needs a gluten-free diet because she has celiac disease. They will listen to her, in all probability. And honestly, celiac disease is not taken very seriously inside hospitals, to say nothing of emergency departments, where in any case, the pt may not be able to verbalize anything, and the staff have to act right then.
    • Joel K
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Joel K · Posted

      It is illogical not to disclose a positive celiac disease finding to your doctor, particularly if you're 60 years old. Human beings generally begin failing in one form or another from 60 onward and you might find yourself as an in-patient in a hospital or at an emergency room. Drugs often have minute amounts of gluten and hospital and nursing home food certainly contains gluten.  Here's another scenario: Your doctor sends you for annual labs and your WBC count and others come back out of range.  I frankly think one should leave politics out of the equation when it comes to your health. (Insurance isn't about your health, by the way) Or go ahead and don't let your doctor know.  Only one person will have to deal with the results of that decision.
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Thanks @Beverage for checking in!  I haven't changed the dogs' food yet.  I'm still working through some of the other issues that I need to remedy (transitioning to an anti-inflammatory diet, being sure to get only gluten-free certified items, and buying some new cookware for my kitchen).  Somewhere after that, I have on my list to try out the dogs on a new dog food, but I haven't gotten there yet.  In the meantime, though, I can definitely see that some of my worst days seem to follow when there's a possibility of gluten cross-contamination (I'm still working to cut waaay down on these instances) OR when I eat anything with dairy/ milk protein in it.  So I think I need to really get a better handle on my day-to-day eating habits to reduce all gluten cross-contamination into my food and also any dairy intake, and then at that point, I think I'll start moving over to the dog food thing.  
×
×
  • Create New...