Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sad :( Aggressive Brain Tumor


Di2011

Recommended Posts

Di2011 Enthusiast

I thought I'd post because it puts all in perspective. My stepdad (as much my dad as my own) called tonight and his grandson has an aggressive brain tumor. 18 months old. His surgery last week went okay and he has been recovering well. I guess we all thought that things were going well. Who would have thought that the tumor was a terror??? His prognosis is not good.

Makes food intolerance/immune disorder seem insignificant.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

I'm so sorry to hear that Diane. My thoughts are with you all. Yes, it puts everything in perspective & I wish to heck it didn't b/c that would mean no brain tumor.

ravenwoodglass Mentor

I'm so sorry to hear this. I will keep the little guy and his family in my prayers.

StephanieL Enthusiast

I am so very sorry.

I have said before we have an gastroenterologist, immunologist, endocrinologist but it isn't an oncologist so really, it's manageable. It truly does put it in perspective for sure.

IrishHeart Veteran

Yes, it's so true. No matter how awful we may have it some days, it seems someone always has a bigger battle to fight.

So sorry about the little one, hon. I hold your family in my thoughts.

mamaupupup Contributor

I'm so sorry! Thinking of you all! Hugs from afar... Miracles do happen!

bartfull Rising Star

I just lost a dear friend to breast cancer at the young age of 54. But when it's a child!

Oh, when it's a child.

Prayers to you and your family. I am SO sorry!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria6102 Contributor

I'm so sorry! I will pray for you and I hope that this child will get well soon :)

Ninja Contributor

Kids are incredibly resilient

1974girl Enthusiast

I am so sorry! Prayers for your family. And yes, it does put this all in perspective!

deb445 Rookie

I am so sorry to hear your news.

Love and light to this child.

From my personal (yet relatively new) experiences and success with homeopathy, I have come across youtube videos and articles about successful treatment of brain tumours with homeopathic remedies. I just wanted to gently toss the idea out there in the event that your family may wish to explore treatment outside the conventional allopathic realm of medicine.

Di2011 Enthusiast

Thank you all for your thoughts & prayers.

What a calming, reassuring group of members on this forum - you continue to amaze and reassure me - 12 months since joining.

The little guy is home and they are working on a plan for treatment. Mum is being strong (relative), realistic but still hoping for a good outcome.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,107
    • Most Online (within 30 mins)
      7,748

    GF in Minneapolis
    Newest Member
    GF in Minneapolis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Roses8721
      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
    • rei.b
      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
    • rei.b
      As I said, I do not have any vitamin deficiency. I was already tested.
    • Wheatwacked
      Talk to your  Talk to your provider about testing for vitamin and mineral deficiency.  celiac disease causes malabsorption and eventually malnutrition.  Especially vitamin D. Having the gallbladder removed seems to be a common step on the way to a Celiac Disease Diagnosis,  Gallbladder is a sympton of deficient Choline. Eggs and red meat are the primary source..Choline makes up a majority of the bile salts.  The bile gets thick, doesn't get enough into intestine to digest fats well.  Can eventually back up into gallbladder, cause gallstones.  Without bile, bowel movements can become hard. Try to avoid all processed foods while you are healing, The gluten-free foods are not fortified with vitamins and use various ingredients to mimic fat that bothers many Celiacs.  Choose vegatables with low omega 6.  Optimum omega 6 to omega 3 ratio is less than 3:1.  Wheat flour is 22:1.  Grass fed milk is 1:1.   Commercial Dairies milk is 5:1.  They feed wheat, rye and barley Gluten as part of the food mix.  
    • trents
      Your DGP-G is also high. The thing to do now would be to trial the gluten-free diet for a few months to see if there is improvement in symptoms.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.