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Contamination On Food Boxes


heidi b

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IrishHeart Veteran

Indeed, and thank you very much! This is not only my first Celiac forum, but my first forum ever!

How 'bout that--mine too! :lol:


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  • Replies 53
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StephanieL Enthusiast

My overactive imagination has conjured up an image of a terrible accident with a chicken nugget delivery truck that left billions of those little frozen crumbed morsels bouncing all over the highway like ping pong balls.

lol

You forgot those little crumbs bouncing into the vents of oncoming cars and into the A/C and all over the person with Celiac driving in a great gluten filled cloud!

NickMcKinnis Rookie

lol

You forgot those little crumbs bouncing into the vents of oncoming cars and into the A/C and all over the person with Celiac driving in a great gluten filled cloud!

Great, now I'm going to have nightmares about an onslaught of chicken nuggets...

Jestgar Rising Star

I just wanted to take a minute to validate the captain's comments.

For some people, at certain stages in their healing, loved ones going completely gluten-free may just be the best support they could ask for. Also, many people here ask friends and family to take (what would seem to an outsider) crazy precautions. You could see the whole 'frozen food boxes' thing as paranoia, or the request of someone who is trying to figure out what's making them sick and is trying to cover all bases.

The OP did the best thing, she found out if the precaution was necessary before agreeing to do it. If her family isn't yet ready to accept that, and is still in the frame of mind that the captain presents, maybe she can come up with some compromise that will work for both.

Juliebove Rising Star

Using their logic, anything anywhere could have gluten on it. I could eat a sandwich then go touch something without washing my hands. But a prepared product in a sealed package? I wouldn't worry about it.

IrishHeart Veteran

For some people, at certain stages in their healing, loved ones going completely gluten-free may just be the best support they could ask for. Also, many people here ask friends and family to take (what would seem to an outsider) crazy precautions. You could see the whole 'frozen food boxes' thing as paranoia, or the request of someone who is trying to figure out what's making them sick and is trying to cover all bases.

Jess is right. I think none of us would disagree that we always hope ( and some of even demand it) that the GEs in our lives will take precautions around us.

I hope we have given the OP an answer that she and her family can work with. Maybe now, her celiac family will see that a frozen packaged item wrapped in a plastic bag in the trunk of her car will not be any more of a cross contamination issue than any other packaged items touching their packaged items on the grocery store shelves.

(with the exception of those leaky Gold Medal flour bags....now, those things make me shudder :ph34r: )

squirmingitch Veteran

As my grocery store is not exactly immaculate in the cleanliness dept. & I almost always see a layer or dust & who knows what on top of the canned goods; I make it a habit to rinse off the lids before opening anything. Besides the obvious, it's just good hygiene.


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Pac Apprentice

As my grocery store is not exactly immaculate in the cleanliness dept. & I almost always see a layer or dust & who knows what on top of the canned goods; I make it a habit to rinse off the lids before opening anything. Besides the obvious, it's just good hygiene.

I wash everything I can and I am quite paranoid about gluten (I am allergic and gluten in the air and on the surfaces seems to bother me more than traces of gluten in my food), but I honestly wouldn't worry about packaged food in the car, especially when I'm not in the car at the same time. There is so much low-level contamination everywhere - door handles, chairs, packaged gluten-free food, that a box of packages gluten food just won't make any difference.

NickMcKinnis Rookie

This seems to be a pretty complicated topic... I think any situation where you have to balance feelings and fact can be difficult. Plus the problem is one that makes it hard to know exactly where the line is. So just keep it simple and remember your final goal... The health and happiness of you and your loved ones. If you can all keep that in mind and keep the communication open then I am sure that you will be able to find the balance you are all looking for.

Good luck OP! :)

anabananakins Explorer

Great, now I'm going to have nightmares about an onslaught of chicken nuggets...

lol Stephanie, that's even better, I was just thinking about people being hit on the head.

Welcome Nick and sorry :)

NickMcKinnis Rookie

Welcome Nick and sorry :)

Haha, thank you and no sorry necessary. It's good to have a little fear now and then. B)

IrishHeart Veteran

Haha, thank you and no sorry necessary. It's good to have a little fear now and then. B)

methinks Nick "gets our humor" and will fit right in here. :)

squirmingitch Veteran

methinks Nick "gets our humor" and will fit right in here. :)

Methinks me agrees.smile.gif

NickMcKinnis Rookie

methinks Nick "gets our humor" and will fit right in here. :)

Methinks me agrees.smile.gif

Methinks you ladies are making me blush.

You ARE ladies right? :unsure:

IrishHeart Veteran

Methinks me agrees.smile.gif

well, of course you would, darlin!!

You have a big heart, a sense of humor and a spirit that soars above all adversity.

Lisa Mentor

This seems to be a pretty complicated topic... I think any situation where you have to balance feelings and fact can be difficult. Plus the problem is one that makes it hard to know exactly where the line is. So just keep it simple and remember your final goal... The health and happiness of you and your loved ones. If you can all keep that in mind and keep the communication open then I am sure that you will be able to find the balance you are all looking for.

Good luck OP! :)

Good advise offered to the OP, Nick. I think we have totally covered all the bases.

squirmingitch Veteran

Methinks you ladies are making me blush.

You ARE ladies right? :unsure:

We ARE ladies Nick! biggrin.gif

IrishHeart Veteran

Methinks you ladies are making me blush.

You ARE ladies right? :unsure:

I am a woman, yes. "Lady"--um, doubtful. ;) I would not mess with me. :)

NickMcKinnis Rookie

I am a woman, yes. "Lady"--um, doubtful. ;) I would not mess with me. :)

haha Growing up I lived with or next door to my mom, my aunt, my grandmother, three female cousins and my grandfather...I learned young not to underestimate a woman, as I'm sure my grandfather must have to have survived.

I can still recall the horrors of forgetting to put down the toilet seat... :ph34r:

IrishHeart Veteran

I can still recall the horrors of forgetting to put down the toilet seat... :ph34r:

:lol:

Good.

squirmingitch Veteran

LOL! Well, Irish can be what she wants. As for me, I'm jest a lil ol' southun belle who wouldn't hurt a fly.tongue.gifwink.gif

IrishHeart Veteran

LOL! Well, Irish can be what she wants. As for me, I'm jest a lil ol' southun belle who wouldn't hurt a fly.tongue.gifwink.gif

Bulloney!...if I were in a fight tomorrow, I'd want you as my wing man. I know you're a scrappy lil thing!!

but we are really, really HIGHJACKING this thread --so we need to FOCUS and stay ON TOPIC----and we need to ask the OP if her question was answered??

O P? well?? :)

heidi b Rookie

Yes, my question was answered. Thanks for all your input.

Lisa Mentor

Yes, my question was answered. Thanks for all your input.

...and then some! :o:P

FoodisLife12 Newbie

On another note, does your family's fear about gluten affect your habits when dining out? Do you even get to go out? Or have you adapted your lifestyle to accommodate the rest of your loved ones? If so, the possibility still exists for all of you to enjoy eating out a restaurant every once in a while. Most places, reputable ones anyway, will accommodate any food allergy/dietary restrictions.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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