Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

4 Year Old Immunoglobin A Deficiency Celiac?

Kate129

Recommended Posts

Kate129 Newbie
Kate129
Posted

My 4 yearold daughter has had problems complaining of stomachs and diarrhea for the last 6 months or so on and off. I tested positive for celiac bloodwork but had a negative biopsy and my cousin is celiac with positive biopsy. Since my cousin had a positive biopsy and my blood work was so positive my GI doc said to go gluten free so I have been for 8 months.

Here is the part where I am not sure what to do. Last week I had her tested at the pediatrician and her immunioglobin A came back 60 the range is 66- 440.. Her other tests the ttg and the antiglidan IGG were both normal.. What should I do? Could she still have celiac ? Do i bother taking her to a gi doc or get genetic testing done? I really don't want her to go on having stomach issues because the peditrician shrugged off the low immunoglobin A.. thanks for any advice!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mom2J112903 Newbie
Mom2J112903
Posted

My personal feelings are-if any symptom has gone on long enough to cause a change in daily life style, a specialist needs brought in. A pediatrician is for simple childhood things, not something like this. It can still be Celiac but the testing will not be accurate as the IgA is low. There are MANY other GI disorders it could be as well, so a GI is a good thing to have involved.

Kate129 Newbie
Kate129
Posted
  • Author

My personal feelings are-if any symptom has gone on long enough to cause a change in daily life style, a specialist needs brought in. A pediatrician is for simple childhood things, not something like this. It can still be Celiac but the testing will not be accurate as the IgA is low. There are MANY other GI disorders it could be as well, so a GI is a good thing to have involved.

Yeah I was thinking the same thing it is just a hard call because she is completely healthy looking. she just gets diarrhea.. I guess we will be going to the gi doc and get all of this figured out. Thanks for the advice

Mom2J112903 Newbie
Mom2J112903
Posted

Has she ever had *any* type of allergy testing? I would get the delayed allergens pulled as well as immediate. A good allergist will know what to draw and how to write up the lab slip. Some delayed allergies can and do cause GI problems.

Kate129 Newbie
Kate129
Posted
  • Author

Has she ever had *any* type of allergy testing? I would get the delayed allergens pulled as well as immediate. A good allergist will know what to draw and how to write up the lab slip. Some delayed allergies can and do cause GI problems.

She has never had any allergy testing but that is good idea.. I just automatically go to celiac when I think diarrhea just because I was that way.. It is frustrating because the pediatricain didn't seem concerned at all since she is completely healthy just has diarrhea.. She usually will bend over in pain and say my tummy hurts over and over.. Then she runs to the bathroom and afterwards is running around like nothing ever happened.. I thought maybe I was just paranoid but then my mom agreed with me that it wasn't normal and she was concerned too.. It seems like it is up to me to figure it out since the pediatrician doesn't seem to care. I will definitely look into allergy testing and the GI doc I want to figure this out for her while she is little and not when she is an adult..

Mom2J112903 Newbie
Mom2J112903
Posted

I guess you could say that thanks to our experinces with the little man we are "outside the box" thinkers. We started at birth with GI problems but he has been seen by many other specialities over the years because of different things.

Kate129 Newbie
Kate129
Posted
  • Author

I guess you could say that thanks to our experinces with the little man we are "outside the box" thinkers. We started at birth with GI problems but he has been seen by many other specialities over the years because of different things.

Well thanks for all the advice I really appreciate it! :-)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,266
    • Most Online (within 30 mins)
      7,748
    Barbara lynn
    Newest Member
    Barbara lynn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.