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- terrymouse replied to terrymouse's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Probably celiac but also confused
Update: I got a call on Monday from the GI doctor's office, they had a cancellation and an appointment opened up for Tuesday. Not much time to prepare, but I went ahead and did it anyway. I haven't been gluten free at any point, but I haven't really loaded up as much as was recommended, either. It takes another 6-8 weeks to get the results, so I'd rather... -
- rjane replied to The Logician's topic in Related Issues & Disorders15Gluten Sensitivity
thank you kind sir for replying to my post , it seems like a mine field at the moment, I gave him hard boiled eggs yesterday maybe that caused him to have a flair up today, I am feeling a bit overwhelmed at the moment, trying to keep him feeling better , -
- trents replied to The Logician's topic in Related Issues & Disorders15Gluten Sensitivity
Welcome to the forum, @rjane! Making gluten free bread from scratch that both tastes good and holds together is a real challenge. There are some pretty good commercially made choices in the stores these days. Once the big food companies figured out there were enough of us out there for them to generate a profit, they went to work developing some good... -
- rjane replied to The Logician's topic in Related Issues & Disorders15
Gluten Sensitivity
my husband who is 67 has just been diagnosed with CELIAC'S and I am finding it very difficult to make meals for him, I have a new bread maker and finding it hard to make something edible from it, I am 81 and find now I have to eat the same as him ,as making meals is hard work and making 2 different meals even harder, he has been on the gluten free food for... -
- knitty kitty replied to mytype1diabetes's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results
Welcome to the forum, @mytype1diabetes, Your statement that your daughter has become itchy and has hair loss made me think of iron deficiency. Those were the same symptoms i had when I was iron deficient. Was she tested for iron deficiency anemia at the time of her diabetes diagnosis? Seems in the early stages of iron deficiency anemia, blood...
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thank you kind sir for replying to my post , it seems like a mine field at the moment, I gave him hard boiled eggs yesterday maybe that caused him to have a flair up today, I am feeling a bit overwhelmed at the moment, trying to keep him feeling better ,
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Welcome to the forum, @rjane! Making gluten free bread from scratch that both tastes good and holds together is a real challenge. There are some pretty good commercially made choices in the stores these days. Once the big food companies figured out there were enough of us out there for them to generate a profit, they went to work developing some good recipes that are hard to emulate at home. However, the commercially made breads are expensive! One thing to to realize is that gluten free flours often contain ingredients that are hard to digest (polysaccharides) and can cause gas, bloating and the runs. Things like xanthan gum and gar gum that are used as texturing agents. The other thing to understand is that your hubby may have developed intolerance to foods in addition to those that contain gluten. This is common among celiacs and especially in the early stages of recovery. The most common offenders are dairy, oats (even gluten free oats), soy, corn and eggs with dairy and oats being the most prevalent offenders. So, you might experiment with eliminating some of these things. As healing of the villous lining of the small bowel progresses, secondary food intolerances can disappear but full healing can take two years or longer for older adults. You might find this helpful: https://www.celiac.com/forums/forum/27-gluten-free-recipes-cooking-tips/ and this: https://www.celiac.com/forums/forum/51-food-intolerance-leaky-gut/
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my husband who is 67 has just been diagnosed with CELIAC'S and I am finding it very difficult to make meals for him, I have a new bread maker and finding it hard to make something edible from it, I am 81 and find now I have to eat the same as him ,as making meals is hard work and making 2 different meals even harder, he has been on the gluten free food for over a month and today he had a bad bout of the runs I am wondering if its my fault, I thought I was being so careful , I am finding it like a minefield trying to sort out what to give him when he has a bad day , any idea's would be welcome thank you
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By knitty kitty · Posted
Welcome to the forum, @mytype1diabetes, Your statement that your daughter has become itchy and has hair loss made me think of iron deficiency. Those were the same symptoms i had when I was iron deficient. Was she tested for iron deficiency anemia at the time of her diabetes diagnosis? Seems in the early stages of iron deficiency anemia, blood glucose levels can be falsely elevated. Treating Vitamin D deficiency can also help immensely. Vitamin D deficiency, iron deficiency, and deficiencies in the eight B vitamins, especially thiamine, can occur in Celiac disease. Changes in stool can be caused by iron or thiamine deficiency. I was diagnosed with type two diabetes and had the same deficiencies. I would not feel comfortable waiting three to six months for a recheck. I would get the iron deficiency checked right away. Hope this helps! Sending prayers! References: The Effect of Iron Deficiency Anemia on Hemoglobin Glycation in Diabetics and Non-diabetics https://pmc.ncbi.nlm.nih.gov/articles/PMC11513211/#:~:text=noted increased HbA1c in IDA individuals%2C which,IDA before adjusting diabetes treatment [ 11]. Effects of iron deficiency anemia on hemoglobin A1c in type 1 diabetes mellitus https://pubmed.ncbi.nlm.nih.gov/10453183/ Impact of vitamin D deficiency on iron status in children with type I diabetes https://www.nature.com/articles/s41598-024-61559-5#:~:text=Iron-deficiency anemia is the,both clinical conditions that coexist. Thiamine Level in Type I and Type II Diabetes Mellitus Patients: A Comparative Study Focusing on Hematological and Biochemical Evaluations https://pmc.ncbi.nlm.nih.gov/articles/PMC7282352/ -
So sorry and sending well wishes. Replying from the UK. The NHS Coeliac Screen test is igAttg (including total igA). Your toddler is unlikely igA deficient with a titer of 22, as a positive test. When the igA anti-tissue transglutaminase antibodies are raised above the reference value or positive, the endomysial test is performed. The TTG test is suggestive of coeliac disease BUT it can be transiently raised in type 1 diabetes, milk protein intolerance (common in early childhood. Can also cause malabsorption similar to coeliac disease). Can be slightly raised in other food sensitivity and food allergy and some other conditions. Whilst it is more specific for coeliac disease than the older anti-gliadin test the EMA test gives a high specificity for coeliac, but labour intensive test so is checked when the TTG shows positive as a further confirmation of a likelihood of Coeliac. Sometimes in children the anti-DGP (deaminated gliadin peptide) igA and IgG are performed as more likely positive in childhood coeliac disease. Unfortunately less used test these days in favour of ttg test. Though in research studies still utilised in addition to ttg and EMA. It usually follows that the EMA test will be positive in active coeliac disease later than the TTG shows positive. It may be classic transient antibodies with type 1. Likely what the Dr is counting on to not worry you or put your child through unnecessary testing. it also takes time as in weeks/months for antibodies to build up. The new guidelines by Gastroenterology Society say in children coeliac can be diagnosed without biopsy if the ttg is ten times the upper value. Plus positive EMA. EMA is usually positive after ttg. It’s a good sign it’s negative and the Doctor is doing the right thing to retest in three to six months. It’s the only way for a definite diagnosis and whether further testing is needed (endoscopy and biopsy). The Doctor is taking the wait and see approach as it is common in type 1s for the TTG antibodies to normalise too, and will be following standard practice. Return to your Dr sooner though, if there are signs of malabsorption and sudden deterioration. It wouldn’t be unreasonable to request another blood test sooner with symptoms of coeliac. It’s a tough one. Have you a family history? Re type 1, Dr Bernstein book invaluable, and type 1 grit online. If you’ve not heard of this elderly type 1 Dr (diagnosed as a child) and his story already you need to. Sadly he recently passed in his 90s still practicing and treating type 1s and 2s. Wealth of info on his diabetes university you tube channel. Was the first to start testing blood glucose numbers at home, he was an engineer and retrained as a Dr. He gave the information to the world and diabetics that its possible to have normal blood glucose numbers and prevent the complications. The law of small numbers. Hope this reply is helpful.
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