Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

May Contain Wheat


Castle

Recommended Posts

Castle Newbie

I have been gluten free for almost 3 years now but I still struggle with this topic.

Do you eat foods that have labels with "May contain wheat" Or " May contains traces of wheat"

I don't have physical symptoms so I don't ever really know if I have been contaminated or not. I never purposely eat food that I know contains wheat but I will eat foods that have the label saying "May contain" occasionally. What's your take on this and what do you do? I know it's my choice in the end but I am curious to know what other people do when it comes to this!

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



alex11602 Collaborator

We don't in our house, but I also have two young children to think of and wouldn't take a chance with their health. I also find there are plenty of options without that warning, so why bother? That's my personal take on it.

psawyer Proficient

Castle, you said in a previous topic that you are in Canada.

Open Original Shared Link

There is no meaningful difference between "may contain x" and "may contain traces of x"--both indicate the possibility of accidental content at some low level.

I generally avoid products that "may contain wheat," especially if there is an alternative that does not have the warning. But, the warning is voluntary, so its absence does not necessarily mean anything.

ravenwoodglass Mentor

Do you eat foods that have labels with "May contain wheat" Or " May contains traces of wheat"

I also avoid stuff with this warning.

Hornet Rookie

I avoid all labels that say gluten-free but are not made in dedicated gluten-free facilities. I don't know in reality why it can be called gluten-free if there may be traces of gluten, soy or other allergens.

Ultimately you have to decide what is best for you and if eating traces of wheat poses a problem for your health.

~**caselynn**~ Enthusiast

I'm an avoider as well, any possible trace is a trace too much for me. ?

Castle Newbie

Thank you all for your posts! I appreciate the feedback. I am leaning towards avoiding those foods with such labels but it's hard sometimes when there isn't an alternative.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lpellegr Collaborator

You also have to consider that since plenty of labels don't say anything about other things that might share the lines or factory, you could be eating things that "may contain traces of wheat" all the time without knowing it, so while it's good to avoid the potential contamination that they tell you about, it still won't keep you 100% safe. That said, if the package states that there's a chance for cross-contamination, I mentally thank them for their honesty and step away from the product.

eatmeat4good Enthusiast

I'm 2 years gluten free.

Got sick from nuts contaminated...definitely gluten by my reaction.

So when I grabbed the Spaghetti sauce that proudly says Gluten free on the front, and I turn it over and it says Made in a facility that also processes wheat...um...no thank you.

I feel sorry that people believe that gluten free on the label means it IS gluten free.

I've been testing that off and on this last year and it's totally true for me that if it's made in a facility that processes wheat, I'll probably get sick.

So as painful as it is.....

I've decided only to eat Certified Gluten Free products.

Cause even if you don't find that warning on the label...and there are no gluten ingredients, it doesn't mean it isn't contaminated. Unfortunately.

I really wish it were not legal to use the Gluten Free on the label unless the product is tested.

Adalaide Mentor

I appreciate the honesty from companies and steer clear of the products with that label. I was curious about it and tested it for myself. When I was feeling pretty well I decided to eat some dried blueberries with that label and had a very strong reaction. It's sort of a mixed bag for me though, as I take those words on the label as a warning of possible cc.

Here's what I mean by that. Cheetos for instance. Regular, normal Cheetos have no gluten ingredients but aren't produced in a gluten free facility. Sure, they take every precaution but who knows? Heck, they don't even have the warning on the bag, but I still won't eat them. On the other hand, Cheetos Naturals I will eat. It isn't that they are produced elsewhere, they aren't. It is that every batch is tested and verified gluten free, where the regular ones are not. It's an assurance thing that promises the product I am getting really is gluten free.

It's why I appreciate "processed in a facility..." warnings. My health just isn't worth risking over something like the Cheetos that are a little cheaper or the X that is mildly more convenient or whatever. Sure, it could very well be perfectly fine. But why risk it?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,024
    • Most Online (within 30 mins)
      7,748

    Maus14
    Newest Member
    Maus14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.