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Seattle Doc


JT09

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JT09 Newbie

I was hoping someone could suggest a good MD and/or ND in the Seattle/Bellevue area... or just Washington State!

I have not been officially diagnosed with Celiac but I would be willing to bet my right arm I have it and just need a good doc that will work with me.

I had a pretty bad experience with Eastside Gastro in Kirkland, so Im not really looking to go back there - short version of the story is my doc at the time mis heard, and incorrectly documented my symptoms I told him I was having so he insisted I only needed a colonoscopy and not an endoscopy - at the time I had not done much looking into all of this so I trusted he knew what he was doing. Needless to say as both a patient and an RN I am totally not impressed.

Any and all suggestions would be much appreciated!

  • 2 weeks later...

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WitsEnd Rookie

I like Dr Koch at Virginia Mason, however he admitted to not having a lot of experience with gluten intolerance (my issue) but he does have a few Celiac patients. He was very nice and actually listened to me though, which is more than I got elsewhere. Unfortunately there seems to be a shortage of celiac docs in the Seattle area.

As a side note, I would not go to Dr Zisman at UWMC...he treated me very poorly.

Juliebove Rising Star

Puget Sound Gastroenterology. They have offices in Edmonds and Mill Creek and possibly North Seattle. I see Dr. Chaffee there. So does my dad. My daughter sees Dr. Schnier. So does my Sis in law.

cyberprof Enthusiast

I go to Susan McCormick MD at Virginia Mason. I went to see her after seeing another GI doc at VM who diagnosed me. Since I was only Marsh I, he said that I "didn't have to be strict on the gluten-free diet" since I wasn't showing much GI damage and he also refused to order biopsies for colitis when he was ordering my age 50+ routine colonoscopy.(I wanted to rule out colitis, as celiacs have a higher risk of getting some types of colitis.)

At VM, the coloscopies and Endoscopies are pot-luck, you get whoever is on that day and that's how I got my first GI doctor. When Dr. McCormick saw me to do the colonoscopy, the first words out of her mouth were "We're going to biopsy for colitis, because with celiac you're at higher risk." I had been planning to ask/plead for it but she beat me to it. So she may not be a specialist but she is aware of celiac and adults. When I saw her for follow-up, she wanted to know my symptoms if I get gluten accidentally and asked other health questions related to celiac (like osteoporosis) and ordered vitamin screening for deficiencies, 5+ years after diagnosis and gluten-free diet.

burdee Enthusiast

Dr. Stephen Wangen, ND founded the IBS Treatment Center (located in North Seattle near Northgate Mall). He has celiac disease and several food allergies. So he understands the confusing symptoms and frustrating diagnostic process. I saw him for 4 years while he diagnosed my food allergies (with ELISA tests) and diagnosed and treated my 8 different gastrointestinal infections (bacteria, parasites and fungus).

Dr. Wendy Ellis, ND works at the Tahoma Clinic North (near Lake City in No. Seattle). She figured out why I got so many gastro infections (8) over a 4 year period and understands all the complications of long undiagnosed celiac disease (nutritional deficiencies, leaky gut problems and other autoimmune conditions which can also impair immunity). She's very knowledgable about hormonal problems (estrogen/progesterone, thyroid, adrenal fatigue, etc.).

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    • trents
      Welcome to the forum, @terrymouse! Your GI doc is correct. Going gluten free now will allow healing to occur in the villous lining of the small bowel such that the endoscopy/biopsy may not show the damage to the villous architecture that is characteristic of celiac disease. Since your celiac blood antibody tests results are on the low side and don't "scream" of celiac disease I think it is important to go forward with the endoscopy/biopsy while still consuming gluten to ensure it will not be a wasted effort. The last thing you want is to have two different test modalities that unnecessarily contradict one another. So, unless the continued consumption of gluten poses an immediate and significant threat to your health, my advice is to (excuse the pun) "gut it out" until the endoscopy/biopsy happens. There is also the option of temporarily going gluten free and then undertaking a "gluten challenge" in the weeks leading up to the appointment in September. Current guidelines for the gluten challenge are the daily consumption of at least 10g of gluten (the amount found in about 4-6 slices of wheat bread) for at least 2 weeks leading up to the day of the procedure. But I would certainly give it longer than two weeks to be sure. And in view of the fact that it could happen sooner if there is a cancellation, I would encourage you to not go gluten free until after the procedure if your health permits. By the way, what are your symptoms? What led you to investigate celiac disease as the cause of your medical issues?
    • RMJ
      I had an endoscopy where there was no visible damage but biopsies showed damage. I even asked beforehand if the endoscope had good enough magnification to see the villi!  I hope you get a clear answer from the biopsies.
    • terrymouse
      I have an endoscopy booked for mid-September to test for Celiac. My gp seems convinced it is celiac and I should eliminate gluten right away, but the gastroenterologist I was referred to says if I'm totally gluten-free then they won't be able to detect celiac from the endoscopy, and I should load up on gluten 2 weeks before the test. So I guess I shouldn't eliminate gluten then? Or stop and start again closer to the appointment date. But I'm also on the wait list in case they can get me in sooner, because I'm losing weight. I don't want to have to go back and do it over again if I can help it. They also were unsure if there isn't something else wrong with my stomach, so that's a possibility. I don't have the details but from what I understood my blood tests results were positive but on the low end. So I'm getting mixed up here, do I go gluten-free or not? Would 2.5 months of being gluten-free make any noticable difference? 
    • knitty kitty
      Being low in B12, Folate B9, ferritin, zinc and copper sounds consistent with anemia which can often occur with Celiac.  What did your doctor recommend? What about your Vitamin D?  It helps regulate the immune system.  
    • ehb
      @knitty kitty thank you I am exploring these options, I really appreciate all the suggestions and info. I am only slightly below the normal range for folate, zinc and copper. And in the low end of the normal range for B12, ferritin, and vitamin A. I’m good for carotene magnesium and iron, but I’ve been taking 400 mg magnesium daily 
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