Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Swelling Of Ankles And Hands?

Mjohnson73

By Mjohnson73
in Coping with Celiac Disease

Recommended Posts

Mjohnson73 Apprentice
Mjohnson73
Posted

Hey all,

my ankles and hands have been swelling lately and I was wondering if that would be a symptom of my fibromyalgia or my Gluten Intolerance...

anyhow... let me know what you guys think....

--Maya

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cdford Contributor
cdford
Posted

I have both FMS and GI...and my hands and feet swell something fierce, especially during the summer months. My shoes are loose in the morning yet leave whelps by evening and I am just now getting to where I can wear my wedding band again after several years.

Mjohnson73 Apprentice
Mjohnson73
Posted
  • Author

ok so it is from both or one or the other but not sure which one :)

got it ... thanks...

it is just frustrating cause it is painful...

thanks for the info...

--Maya

ravenwoodglass Mentor
ravenwoodglass
Posted
ok so it is from both or one or the other but not sure which one :)

got it ... thanks...

it is just frustrating cause it is painful...

thanks for the info...

--Maya

<{POST_SNAPBACK}>

Yea, I get both, by the way my fibro was caused by the gluten and has been gone now for a while so you may see that resovle. Hears what my PT told me to do and I found it helps a bit. I would lie on my bed with my legs straight up at the hips against the wall and my hands on 3 pillows to keep them as high as possible, She had me do this a couple times a day and again 3 hours before bed. This would help drain some of the fluid which I could then pee out before sleeping instead of waking up 3 or 4 times a night. Also cut your salt intake sharply in the summer months or when glutened. A massage therapist may be able to show you how to do a lympahtic massage on your arms and legs also to rid your body of the excess fluid. I found after about a year gluten-free this was no longer an extreme occurance. Unless I am glutened now I find I only sweel the 'normal' amount everyone else does.

VydorScope Proficient
VydorScope
Posted

Lots and lots of things can cause that, too much salt in your for examlpe, diabeates is another. So realy hard to blame it on anything. :(

Guest kfrancisvt
Guest kfrancisvt
Posted

I find that if I don't eat gluten free my fingers will swell and my joints will ache like you wouldn't believe. Once I get the gluten out of my system, my swelling and aches go down.

Eliza13 Contributor
Eliza13
Posted

Kfran....

The EXACT same thing happens to me. That was the final straw that got me complaining to my doc prior to diagnosis. Bad joint pain, swollen feet and hands, and itchy legs. I was never checked for the fibrom though....wondering if I should now, but all of that is gone by going gluten-free (and I have yo-yoed!!!).

:)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


zakismom Newbie
zakismom
Posted

I was the same way before finding out I had celiac. It was so bad my hands cramped into one shape and I could barely hold on to anything (I'm an optician so this was a HUGE problem.) Also, my feet were so big I couldn't wear my regular shoes. A few a the medical people I saw actually started to think I had a heart problem because of them. After going gluten free the swelling went down within a month or so but, the pain didin't really go away until a year or so. It is much better now so keep the gluten out of your diet!

Guest kfrancisvt
Guest kfrancisvt
Posted

Skarlet13...

You mentioned the itchy legs ... I too have that at times but I thought it was because I wore nylon trouser socks during the day (and I don't usually wear them when I am in Florida) and that I was in a different, drier environment. But the itchy legs do tend to correspond when I have eaten something with gluten.

Thanks for the insight!!!!

bluelotus Contributor
bluelotus
Posted

I don't get the swelling, but I do get sore joints - esp. my ankles and knees. I remember seeing a physical therapist years prior to celiac disease diagnosis and she couldn't figure out what was up with my ankle (usually my left one that is most bothersome, kind of weird that it is not symmetrical). Anyway, nice to know that I wasn't the only one with these odder symptoms.

Here's an ignorant question - what is fibromyalgia? Is that related to your celiac disease?

nettiebeads Apprentice
nettiebeads
Posted

[(usually my left one that is most bothersome, kind of weird that it is not symmetrical). Anyway, nice to know that I wasn't the only one with these odder symptoms.

Here's an ignorant question - what is fibromyalgia? Is that related to your celiac disease?

<{POST_SNAPBACK}>

  • 2 weeks later...
de caps Contributor
de caps
Posted

I had very severe swelling in my lower legs. I could put a hand print on my shin it was so bad. After being gluten free for one week it went away completely.

My Primmary Care MD , didn't consider celiac disease. It was my oncologist( I have Melanoma) who diagnosed me. MY primary MD still won't admit this was from the celiac disease. I'm now looking for a new Primary care doctor.

judy05 Apprentice
judy05
Posted
I was the same way before finding out I had celiac.  It was so bad my hands cramped into one shape and I could barely hold on to anything (I'm an optician so this was a HUGE problem.)  Also, my feet were so big I couldn't wear my regular shoes.  A few a the medical people I saw actually started to think I had a heart problem because of them.  After going gluten free the swelling went down within a month or so but, the pain didin't really go away until a year or so.  It is much better now so keep the gluten out of your diet!

<{POST_SNAPBACK}>

I used to get the cramps in my hands, I would have to massage them and it really hurt, as long as I stay on the diet I'm OK..

GC1 Rookie
GC1
Posted

Maya,

I've been gluten-free for about 9 weeks. My hands had stated swelling (and turning 'white') about 3 yrs ago. They no longer swell, unless I eat a large meal of beef or pork (or naturally gluten--2 times since gluten-free). To show how long it had been effecting me, that I didn't even realize; a ring that I wear everyday, now fits very loosely, and it was bought over 5 yrs ago.

As others stated, many things cause swelling, but if it's not something fully controllable, you might consider Black Cohosh as an aid... but get an OK from a professional; BC is VERY potent. It is an excellent anti-inflamatory, but is one of the most potent 'herbs' available. I take it about every 3 days, and have no doubt it is helping me heal from yrs of gluten posioning.

GC

Mjohnson73 Apprentice
Mjohnson73
Posted
  • Author

Thanks for all the information!

I am glad I am not the only one with swollen ankles and hands...

Lately my right ankle has been really bad even tho I have been 100% gluten free.... but it could just be edema too (I have been diagnosed with that in the past too...)

somedays I keep telling my hubby that the first day they offer brain implants into other bodies...sign me up! Altho a lot of it is "In the head" so I guess that won't work after all....

sigh...

oh well...

--Maya

  • 2 weeks later...
Stephanie1 Newbie
Stephanie1
Posted

I've only been gluten-free for about a week and a half. Blood work points to celiac, but waiting for the biopsy until next week. My swelling of ankles and hands didn't start until AFTER I went on the gluten-free diet...is that weird? It seemed like once my vomitting and diarrehea symptoms went away when I stopped eating gluten, the swelling started, and I've never retained water like this! (I just delivered a baby 2 months ago...was NEVER swollen) Am I doing something obviously wrong? It's really getting frustrating because when I get rid of one problem, it seems another comes along! Help!!

aikiducky Apprentice
aikiducky
Posted

Give it more time before you panic, Stephanie. It could be that with the vomiting and D that you just couldn't retain that much fluid before... <_< Hopefully it'll improve when you start to heal.

Pauliina

  • 10 years later...
AnitaL Newbie
AnitaL
Posted

Just learning about all this...I had intense achiness, fatigue, and swelling in my ankles and feet yesterday within an hour of eating some bagels. So I googled Celiac + ankle swelling, and this article came up. But for Maya and anyone else who may be interested in finding out more, I'm halfway through reading a (lengthy) article called "Celiac Disease 101: A Beginner's Guide" by the folks at SCD lifestyle (probably won't be able to post the link here, otherwise I would). Sounds like they're saying that edema and FMS (I have it too) are both caused by Celiac. And WebMD.boots mentions swelling being a serious side effect of Celiac, due to an inability to absorb nutrients, including protein. Yikes!

kareng Grand Master
kareng
Posted
1 hour ago, AnitaL said:

Just learning about all this...I had intense achiness, fatigue, and swelling in my ankles and feet yesterday within an hour of eating some bagels. So I googled Celiac + ankle swelling, and this article came up. But for Maya and anyone else who may be interested in finding out more, I'm halfway through reading a (lengthy) article called "Celiac Disease 101: A Beginner's Guide" by the folks at SCD lifestyle (probably won't be able to post the link here, otherwise I would). Sounds like they're saying that edema and FMS (I have it too) are both caused by Celiac. And WebMD.boots mentions swelling being a serious side effect of Celiac, due to an inability to absorb nutrients, including protein. Yikes!

Before you self diagnoses yourself with an autoimmune disease, please see a doctor for some blood work.  Celiac usually doesn't just "pop-up" one day after a bagel.  Keep eating a regular gluten diet until all testing is finished

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon. I did no't have any bread It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right...
    2. dixonpete
      0

      Inoculation and video development

    3. Juliane
      - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    4. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    5. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,842
    • Most Online (within 30 mins)
      7,748
    JenKnight
    Newest Member
    JenKnight
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Stomach burning and neuropathy

      By Juliane · Posted

      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.