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Most Gluten-Free-Friendly City


kdonov2

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kdonov2 Contributor

Originally posted in travel, but I thought it would get more hits here.

Anyone know what cities (U.S.) are the safest for Celiacs? This includes safe options in restaurants, products offered in stores, labelling laws, public knowledge (of the disease), acceptance of the public/medical community, and promotion of general healthy living. I am sure I am missing something, but you get the idea. I am considering moving from my native Chicago. I am not happy here.

Thanks


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DougE Rookie

It's not the U.S. but I think my home city of Halifax in Canada has to rank near the top. But the absolutely best Celiac-friendly city I ever visited was Boulder CO.

bartfull Rising Star

I don't blame you for wanting to get out of Chicago. The traffic alone is good enough reason!

From what I've seen here, San Diego is another celiac friendly city. I used to live there many years ago, long before I was hit with celiac, but I can tell you that San Diego is a beautiful city with the best weather in the country. It's a lot more crowded than it was when I lived there, but it's still beautiful.

mamaupupup Contributor

Hawaii! Our vacation there was amazing (Maui). Loved it, found all the foods we needed, the chefs at restaurants were great...so many fresh fruits and veggies!

I think Boulder and San Diego are also good choices (though less tropical!).

YoloGx Rookie

Portland, Oregon is another great celiac aware city. Very good for the arts, health and all things progressive. Community oriented. Lots of biking and excellent rapid transit. Cosmopolitan population. Beautiful landscape and lots of bridges -- two rivers with the Columbia and the Willamette. Wonderful parks. Lots of celebrations. Its an affordable, down to earth, progressive city. It rains, but considerably less than Seattle. The ocean too is within easy driving distance, as are the desert and mountains. Smaller cities like Eugene are nice too, but its harder to get jobs in Eugene, plus Eugene is more lilly white.

Salax Contributor

I live in Vegas and although we have alot of places to eat, the doctors here suck. ;)

I traveled to Seattle last summer and they have alot of gluten free places there as well...I wanna move there myself...maybe one day. :D

ravenwoodglass Mentor

Upstate NY is pretty gluten freindly. Rochester is good midsized city and there are smaller cities that as long as they have a Wegmans you would be able to shop with ease. The owners of Wegmans have celiac in the family and they are very good at labeling their store brand items. The Finger Lakes area is really pretty and has a pretty low cost of living if you want to get away from big city life.


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GottaSki Mentor

Great thread!

I'm a native San Diegan - San Diego is becoming much more gluten friendly - my daughter lives in Santa Rosa (hour north of San Francisco) - our family finds that the entire Bay Area is much more gluten friendly/knowledgeable in comparison with San Diego.

sa1937 Community Regular

My daughter (also celiac) lives in Denver and it sure sounds like a gluten-free haven to me. She has no idea how fortunate she is.

BTW, Denver is the home of Udi's, Rudi's is located in Boulder and Canyon Bakehouse is in Loveland, CO.

mamaupupup Contributor

And I think WOW bakery is also in Colorado...and our pediatric GI said there is a higher incidence of Celiac in the Denver population than other places!

mamaw Community Regular

University of Chicago is very celiac friendly... New York City has many dining/bakeries... Denver has many bakeries.....

sa1937 Community Regular

And I think WOW bakery is also in Colorado...and our pediatric GI said there is a higher incidence of Celiac in the Denver population than other places!

Actually WOW Baking Co. is in Kent, WA. I've tasted their Oatmeal Cookies and they're really good.

Huggenkiss27 Rookie

I'm actually from Loveland but living in Houston right now. I had no idea all those bakeries were from Colorado. It's intersting that Denver has a higher rate of Celiac too; wonder why? Maybe more doctors diagonosing?

kdonov2 Contributor

Thank you all for your input! I have some research to do. I did not even consider Boulder before.

RonSchon Explorer

I'm actually from Loveland but living in Houston right now. I had no idea all those bakeries were from Colorado. It's intersting that Denver has a higher rate of Celiac too; wonder why? Maybe more doctors diagonosing?

I wish my doctor of 15+ years in Denver had diagnosed me, or even suggested the possibility.

I developed several of the symptoms while living there - bloating, constipation, joint pain, other unexplained pains, inability to absorb nutrients.

I assumed my body simply couldn't handle the altitude, but maybe there is something to the environment if it has a higher diagnosis rate.

kareng Grand Master

My son goes to CSU in Ft Collins. CO. The dorms do a good job of gluten-free food. The school has a professor who studies gluten-free grains and cooking. They offer gluten-free cooking & baking classes to the community.

mamato4 Rookie

I live in San Diego. I am new to this, but I am not finding it hard at all to find gluten-free products in stores or gluten-free restaurants. I think SoCal is an excellent place to live with any kind of food restrictions. In general, people here are very health conscious and there are LOTS of resources for fresh foods of all kinds.

Cara in Boston Enthusiast

Boston is getting better. Many local places offer gluten-free food (and actually train their staff to keep it safe) and on a recent trip to Fenway Park, my son and I enjoyed a hot dog on a gluten free bun. They had a separate Gluten Free cart that sold hot dogs, cookies, brownies, etc. We also have a few bakeries that are 100% gluten-free in the area. On the Cape, there is a place in Chatham that fries everything using a gluten-free batter. We can finally get fried clams and good french fries when on vacation. We also have the Celiac Center at Beth Israel and one for kids at Children's Hospital Boston.

People from Chicago seem to fit in well in Boston . . .

Cara

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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