Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ankle Problems


dietju

Recommended Posts

dietju Newbie

For more than 10 years I have been twisting my left ankle, For years I am doing fine and then all of a sudden I twist

it and keep on twisting it. I have been to a holistic clinic and did acupuncture. They both said that the problem was in my intestines and that I had problems absorbing the nutrients and vitamins. They didn't make the link to celiac disease (have had stomach aches, mouth ulcers, apin in my legs, etc, for years)

Through a natural health practioner I was diagnosed with celiac disease. Since may 2011 I have been on a gluten free diet.

Last week I twisted my right ankle. It is not broken, but can't walk normally for 5 weeks.

I was wondering if my ankle problems can be linked to celiac disease, maybe osteoporosis or reuma or maybe someone has an idea?

Thanks in advance for your reactions


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

I've never really considered that any problems with my ankles were related to celiac. I don't to go to doctor every time I have an issue because frankly, if it isn't broken they're just going to tell my to put it up, put ice on it, baby it for a few days, then stop babying it. Same crap, every time. This has been happening since I was pretty little. I did actually break one of my ankles once, but I jumped off the top of the swingset because I apparently have a hearing problem. (My mom told me like a thousand times not to.)

But yeah, I seem fine then seemingly randomly a foot will twist under me for absolutely NO REASON. I faceplant myself on the ground as gracefully as possible and notice then when I try to get up that standing on that let just is not going to happen. I won't even speculate on if it's the same sort of issue causing both our problems or what that issue is. But I am paranoid now because it's been a good few years since this has happened. :ph34r:

GFinDC Veteran

Hi,

I really don't know the answer to your question about the relation to twisted ankles. I guess another way to think of that would be weak or extra stretchy tendons. But it seems like it could be possible,. Celiac can affect any area of the body. Mal-nourishment (meaning lack of essential vitamins) not underweight), can make it difficult for the body to heal and maintain itself. Seems to me that could cause a problem with tendons.

I used to twist my ankles fairly often as a teen running up and down the hills in SE Ohio on our family farm. I haven't had a problem with it for many years though. Maybe because I like to let the hills have their quiet time these days. But running through the woods can do that to you. :)

lil'chefy Apprentice

Not sure if it is related, but I too have had problems with my ankles most of my life. No warning, just all the sudden fall down because one of my ankles will just give. Interesting

~**caselynn**~ Enthusiast

Hmmm it's an interesting thought, I lean towards the loose tendon process, myself. I always had ankle trouble as a kid, but it was attributed to sports, as I was a basketball player and hadn't been diagnosed until my twenties. I am at the present moment battling a knee/tendon issue. I have one knee that feels the need to dislocate once and a while and lock. Clean MRI except swelling, but lots of physical therapy to strengthen the ligaments/tendons/joint....I'll be interested to see if the orthopedic doc thinks there's a connection to my celiac, I'll let you know! ?

GottaSki Mentor

I also have had weak/many twisted ankles - always thought I was just klutzy - interesting thing is I had rubber knees my entire life - they would dislocate often - even get knocked out by my husband's legs bumping mine while sleeping -- that hasn't happened in the past couple years! I'd lean toward the tendons being effected by the mal-aborption of nutrients caused by Celiac theory.

Wow...hadn't added my rubber knees to my list of symptoms that were improved gluten-free - nice.

ravenwoodglass Mentor

I have a hypermobility syndrome and when on gluten I was constantly dislocating. My ankles were the worst and I had braces to wear when I slept. My knees were also a problem. I now rarely dislocate anymore. My drawer of ankle, knee and wrist supports is really getting very dusty. My joints don't snap, crackle and pop anymore either.

I don't know for sure but I wonder if the excess water weight and swelling from inflammation I had contributed to the dislocations. Don't know just glad they don't happen as often.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gatita Enthusiast

I have a dysfunctional tendon syndrome known as PTTD that cause twisting ankles a lot. It's related to flat-footedness. I finally had to go to podiatrist because I could barely walk due to pain. I was fitted with prescription orthotics and ankle brace. If I hadn't gone, I wouldn't be walking today. Now I call walk okay but will probably always have to wear the orthotics.

I too, am hesitant to throw good money at doctors when half the time the thing goes away on its own.

But I just wonder if a visit to a podiatrist isn't in order. Mine diagnosed me immediately. If I had gone to one years earlier, I might not have deteriorated as badly as I have :( Live and learn.

kittty Contributor

It's very possible that the past damage to your ankle has caused permanent damage, and that could cause you to keep re-hurting it.

When I was about 11 I twisted my left ankle really badly, and it was black with deep bruises and very swollen. An x-ray showed that it had a small fracture. Since then it has continued to give me problems. When I was a teen it was always turning over or getting re-fractured. My parents just accused me of being clumsy (they didn't bother to try and find out what was making me so clumsy...sigh).

The last time I fractured it was about 3 years ago, and that time I started to see a physical therapist. She said that the damage over the years had caused the tendons to stretch and the whole area to be arthritic. My left leg is also now about 1/2" longer than the right leg, which probably doesn't help with balancing. She gave me some stretches to do, which help, and I try to keep active on it without too much strain (elliptical machine at the gym is great).

As for the cause, I really don't know. It could have been gluten-related clumsiness, gluten-related bone issues, or just a bad fall that caused a chain-reaction of other events. I read quite a bit recently about gluten-related stress fractures, which makes me think it might be gluten related.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748

    Blough
    Newest Member
    Blough
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.