Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Back After Being Gone A While


txplowgirl

Recommended Posts

txplowgirl Enthusiast

Hidy everbody,

Well, i'm back, i've been gone awhile, a liitle over a year and I came back because i'

m having some issues and i'm alittle ashamed because I knew better.

Oh man, lets see if I can get all yall up to speed.

Was a truck driver battling Fibromyalgia, Chronic fatigue and supersensitive gluten issues. Well, it got down to where a little over a year ago I had to come off the truck due to back problems as well as the Fibro and found out that I have not 1, not 2, not 3 but 6 bulging discs in my neck and back. Can anyone say OWWW? Lol

3 in my neck with a bone spur and 3 in my lower back. Been seeing a Chiropractor, also I have an appointment in a couple of weeks with a nuerologist. See what he has to say and discuss whether or not if I should try for disability and blah, blah blah, on that.

Made the mistake of having the Celiac test due to family bugging me and of course it was negative which I totally expected but shouldn't have done because you can guess what happened next.

Yep, went back on the gluten and here I am right back where I was where I started. Have gained back 25 lbs of the 50 I lost, back on blood pressure meds, back on anti depressants, anemic again and feeling like crap on top of everything else.

So, gearing up to do this again and I plan on being gluten free from now on no matter what anybody says. So, I came back for the great moral support.

To help with this I ordered the Nutribullet to help get me started, (was wondering if anyone here has tried it?) Now, just gonna wait until it comes in, doing research and pysching myself up to do this.

Oh, and I got married to the ole Goat about 3 months ago. (Ducking behind the couch). I'm a glutton for punishment ain't I? :P

So, how's everyone doing? :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tom Contributor

The ole goat lol. I remember you tx tho we didn't talk much. You've really had a lot goin on. Welcome back.

justlisa Apprentice

Hi there!

Sorry you're having so much trouble! I hope you can get some relief for your neck and back...

Tell the Ol' Goat that you know best...it's been proven now...you have to be gluten free... ;)

flowerqueen Community Regular

Sorry you are having such a bad time. Can I just ask, when you had a test for Coeliacs disease, was it a blood test or a biopsy? (As the blood tests are not reliable) presumably you were eating gluten in your diet prior to the test also?

Hidy everbody,

Well, i'm back, i've been gone awhile, a liitle over a year and I came back because i'

m having some issues and i'm alittle ashamed because I knew better.

Oh man, lets see if I can get all yall up to speed.

Was a truck driver battling Fibromyalgia, Chronic fatigue and supersensitive gluten issues. Well, it got down to where a little over a year ago I had to come off the truck due to back problems as well as the Fibro and found out that I have not 1, not 2, not 3 but 6 bulging discs in my neck and back. Can anyone say OWWW? Lol

3 in my neck with a bone spur and 3 in my lower back. Been seeing a Chiropractor, also I have an appointment in a couple of weeks with a nuerologist. See what he has to say and discuss whether or not if I should try for disability and blah, blah blah, on that.

Made the mistake of having the Celiac test due to family bugging me and of course it was negative which I totally expected but shouldn't have done because you can guess what happened next.

Yep, went back on the gluten and here I am right back where I was where I started. Have gained back 25 lbs of the 50 I lost, back on blood pressure meds, back on anti depressants, anemic again and feeling like crap on top of everything else.

So, gearing up to do this again and I plan on being gluten free from now on no matter what anybody says. So, I came back for the great moral support.

To help with this I ordered the Nutribullet to help get me started, (was wondering if anyone here has tried it?) Now, just gonna wait until it comes in, doing research and pysching myself up to do this.

Oh, and I got married to the ole Goat about 3 months ago. (Ducking behind the couch). I'm a glutton for punishment ain't I? :P

So, how's everyone doing? :D

1desperateladysaved Proficient

There is nothing like desperation to help keep one in line. Sorry about the pressure that was on you. I am experiecing some of that, but it is starting to change. I feel better enough for others to notice since I have been gluten free 6 months and grain free 4.

You have some rather observeable problems. I can't wait to hear about them resolving.

Diana

psawyer Proficient

Welcome back, Vicky!

kareng Grand Master

Hey Vicky! I guess it wasn't a gluten-free wedding cake? :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Hey Girl! yeehaw!

I wondered where you went off to. I missed you!

Congrats to you and the old goat. :)

Glad to see you back on the gluten-free wagon and back on the forum.

...and you know what you need to do--it's just like riding a bike (or in your case, driving a big truck)

Cheers, IH

jerseyangel Proficient

Welcome back!

txplowgirl Enthusiast

Thanks everyone for the welcomes. I appreciate it.

Yes, I ate for gluten a good 2 months before the bloodtests. 2 cheeseburgers a day for 2 months plus Macaronie and cheese. The more gluteny the better and it didn't work. Just felt like crap and visiting the bathroom a lot.

And no, it wasn't a gluten free cake, but knowing how I would react I restricted the gluten stuff a couple days before and for the big day so wouldn't have a problem.

Anyway, back here to do the research again and get back on the bandwagon so to speak. It'll be easier to do this time I hope because I know to expect the withdrawals and cravings and everything that goes with it.

I've been spending a lot of my time the last year on a preparedness site. Getting prepared to try to live through an economical colapse, or even maybe the grid going down. Very interesting people.

Anyway good to be back and looking forward to a better life. So tired of feeling like crap. Hopefully, once i get my inner self working again my back and Fibro will settle down some also.

kareng Grand Master

My neighbor's doc tests his fibro patients for Celiac. But even if they test negative, he has them eat gluten free/lite (take the burger off the bun style gluten-free). He says it really helps the fibro.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.