Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Normal?


AfterAll

Recommended Posts

AfterAll Apprentice

to have a hard time adjusting to having Celiacs on an emotional level? I feel like I am almost in mourning sometimes. I never got to say goodbye to my favorite foods before cutting them out forever. Don't get me wrong... I am living my life, and most of the time I am fine, but sometimes I just don't want to be "different"... I want to be me, just a version of me that is more like everyone else.

I hate that my dietary needs and restrictions are constantly a topic of conversation among friends, family, and coworkers; that I need to think and plan ahead no matter where I go or what I do; and that sometimes if I don't plan ahead, I end up eating nothing and pretending that I am fine with it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Yes, it is normal. Grief or mourning is a normal reaction to the diagnosis. You will move through the stages. You seem to currently be at the anger stage. You will reach acceptance and recovery. It will take time.

GottaSki Mentor

Welcome AfterAll!

Yes, what you are feeling is completely natural. It is important to give yourself time to adjust. Time does makes it easier - time allows those around us to adjust, eventually your diet will not be the focus of conversation - the amount of time differs for everyone. While checking every label never ends it does become second nature and far less time consuming.

Hang in there - we've all gone thru it so feel free to come here to vent, ask questions and find some helpful hints to shorten the duration of transition frustration!

shadowicewolf Proficient

Very, but you'll find replacements or gluten free items that you can eat.

gfcolorado Newbie

It's totally normal and it does get better. For me, the first year was really hard. I wanted to eat everything that I couldn't eat. And the first of everything is hard....first dinner party, first vacation, first Thanksgiving. But, it does get easier and I really feel fortunate that I can control my health through my diet. I have several friends with cancer and I look at what they have to go through. It also has made my life more interesting. I have tried restaurants that I never would have gone too and when I travel I get to see areas I would never have gone to because they have a #gluten-free restaurant.

Another important thing is to always have emergency food with you. And eat before you go to parties so you don't get sad when you can't eat anything...and then you are pleasantly surprised if you can.

It's an adjustment but it gets easier! Good luck!

flowerqueen Community Regular

I agree, it's completely normal. Having said that, things do get better as you learn to adjust. I have adopted the 'attitude of gratitude' though, it makes me appreciate what I have got and not what I don't have. It's probably done me a favour, as I look very carefully at what I am eating now, and my diet has improved immensely - I didn't realise how much I'd let my diet 'slide' until I had to examine everything I ate. I eat food mainly prepared from scratch now and make healthful choices. Eleven months in and I still can't tolerate dairy and a lot of sugar but I'd much rather be healthy than indulgent, even if I have to remind myself of that fact ;) It will get better with time.

Celiac Mindwarp Community Regular

I am still doing anger and denial (though still gluten-free!!!) fairly regularly.

Seeing folks here who have got through it gives me hope though.

Good luck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AfterAll Apprentice

Thanks everyone! I wouldn't say that I am angry- anger is a strong word. I am just annoyed, haha.

I am also adjusting to people saying to me "My God, what DO YOU eat?"..."You mean you can't eat bread? I'd kill myself"... and the blank stare that ensues afterward when I am trying to contemplate what to say in response. :)

GottaSki Mentor

I am also adjusting to people saying to me "My God, what DO YOU eat?"..."You mean you can't eat bread? I'd kill myself"... and the blank stare that ensues afterward when I am trying to contemplate what to say in response. :)

The adjustment will come. Soon you'll your answers will roll off your tongue with a smile on your face.

"Well, I eat wonderful foods and have replaced bread quite nicely - I feel much better and know I can manage a serious health condition with the food I eat rather than with harsh medications - I feel lucky, not punished - there really is no reason to feel sorry for me, but I do appreciate your concern"

edited to add - yes I actually say things like this all the time - but it didn't come easy, naturally or quickly - it all took time.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    2. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,748
    • Most Online (within 30 mins)
      7,748

    NYC Sidewalk Repair
    Newest Member
    NYC Sidewalk Repair
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.