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What Did I Eat Wrong?

DavinaRN

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DavinaRN Explorer
DavinaRN
Posted

I know it's advised to eat at home in beginning, but lunch date planned months ago. Had my blood work thins am (already decided going gluten free today-not willing to do biopsies when it doesn't change treatment). So I had Mexican buffet-lettuce, cheese, refried beans, beef with onions, chicken with onions/peppers, tortilla chips. That's it other than diet coke. Any ideas?

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frieze Community Regular
frieze
Posted

just the fact that it was a buffet would be enough. no control on CC.

GottaSki Mentor
GottaSki
Posted

It could have been anything. There is no way to know on your first day gluten-free. I would not consider a buffet to be gluten-free. The food could also just have been hard on your system. Eating out takes time to learn to do safely and even when all precautions are made, accidental gluten ingestion is a very real possibility.

Read the "Newbie 101" thread and ask questions where there is confusion. The transition to gluten-free living is not an easy one. You will make mistakes and you will likely become frustrated. It will get much easier with time.

Hang in there!

tylerevelyn Newbie
tylerevelyn
Posted

I know it's advised to eat at home in beginning, but lunch date planned months ago. Had my blood work thins am (already decided going gluten free today-not willing to do biopsies when it doesn't change treatment). So I had Mexican buffet-lettuce, cheese, refried beans, beef with onions, chicken with onions/peppers, tortilla chips. That's it other than diet coke. Any ideas?

I had a very bad reaction to restaurant corn chips not too long ago. They're fried with flour tortillas. And, I highly doubt that they're made of JUST corn.

DavinaRN Explorer
DavinaRN
Posted
  • Author

Thanks everyone. I'll read 101 thinking this may be a lot harder Than I thought

1desperateladysaved Proficient
1desperateladysaved
Posted

Oh, sorry. I hope you will be feeling better soon.

Yes, it is quite a trip on the road to better health. Keep treking, though.

Diana

Skysmom03 Newbie
Skysmom03
Posted

I would stay away from foreign foods in restaurants! I would do thd endoscopy. It is better to know. No reasOn to do the diet if you don't really have to.

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mushroom Proficient
mushroom
Posted

I would stay away from foreign foods in restaurants! I would do thd endoscopy. It is better to know. No reasOn to do the diet if you don't really have to.

If you react to gluten it doesn't matter what the tests say -- you have to do the diet.

Skysmom03 Newbie
Skysmom03
Posted

That isn't necessarily true. There are false positives. There is a reason the drs make you do the endoscopy. That is the only thing that confirms diagnosis. If blood work was all it took there would be no need for her to even go to the specialist. Also the endoscopy can also indicate whether there are other issues other than the celiac.

mushroom Proficient
mushroom
Posted

That isn't necessarily true. There are false positives. There is a reason the drs make you do the endoscopy. That is the only thing that confirms diagnosis. If blood work was all it took there would be no need for her to even go to the specialist. Also the endoscopy can also indicate whether there are other issues other than the celiac.

No, Sky'smom, I'm not talking about testing or diagnosis at all. Not saying you shouldn't try for a diagnosis either. Just saying, no matter what turns out, as a general rule if gluten bothers you it makes eminent sense to avoid it :)

psawyer Proficient
psawyer
Posted

That isn't necessarily true. There are false positives. There is a reason the drs make you do the endoscopy. That is the only thing that confirms diagnosis. If blood work was all it took there would be no need for her to even go to the specialist. Also the endoscopy can also indicate whether there are other issues other than the celiac.

There are several possible blood tests, some of which are more accurate than others. DGP IgA is the newest. It is sensitive and highly specific to celiac disease. Many doctors will now diagnose celiac disease based on a positive DGP IgA result.

Yes, the endoscopy can find other conditions besides celiac disease.

ETA: mushroom and I were typing at the same time.

kareng Grand Master
kareng
Posted

That isn't necessarily true. There are false positives. There is a reason the drs make you do the endoscopy. That is the only thing that confirms diagnosis. If blood work was all it took there would be no need for her to even go to the specialist. Also the endoscopy can also indicate whether there are other issues other than the celiac.

Even if you don't have Celiac, you may have gluten intolrance and would need to eat gluten-free.

Fromthe Univ of Chicago Celiac center:

"What is gluten sensitivity?

Gluten sensitivity is an adverse food-induced reaction, possibly immune-mediated, but for which we have no diagnostic test available. This is a reaction in the digestive tract that causes gastrointestinal symptoms just like irritable bowel syndrome (IBS). It may also lead to other body systems problems, such as fatigue, headache, etc. Unlike celiac disease however, it’s not restricted to people that are HLA-DQ2 and/or DQ8 (the genes that must be present for celiac disease to exist), and it might be transient. Also, there is no known association with autoimmune conditions, and it’s not known to be associated, if untreated, with long-term risk of malignancies.

Although there is currently no diagnostic test (even an intestinal biopsy would be normal), we’re actively involved in research to define a biological marker that could be used to support a diagnosis of gluten sensitivity."

Open Original Shared Link

ravenwoodglass Mentor
ravenwoodglass
Posted

That isn't necessarily true. There are false positives. There is a reason the drs make you do the endoscopy. That is the only thing that confirms diagnosis. If blood work was all it took there would be no need for her to even go to the specialist. Also the endoscopy can also indicate whether there are other issues other than the celiac.

False positives are extremely rare however false negatives are common. There are doctors who are now diagnosing with just positive blood tests now that the newer tests that are very specific for celiac have come out.

If I had waited for a positive blood test I would be dead. And my GI wouldn't do an endo without one. There are also false negatives on endoscopy for a variety of reasons.

IMHO response to the diet and reoccurance of symptoms when injesting gluten after being gluten free is one of the most reliable tests there is.

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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
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      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
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      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
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