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What Did I Eat Wrong?

DavinaRN

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DavinaRN Explorer
DavinaRN
Posted

I know it's advised to eat at home in beginning, but lunch date planned months ago. Had my blood work thins am (already decided going gluten free today-not willing to do biopsies when it doesn't change treatment). So I had Mexican buffet-lettuce, cheese, refried beans, beef with onions, chicken with onions/peppers, tortilla chips. That's it other than diet coke. Any ideas?

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frieze Community Regular
frieze
Posted

just the fact that it was a buffet would be enough. no control on CC.

GottaSki Mentor
GottaSki
Posted

It could have been anything. There is no way to know on your first day gluten-free. I would not consider a buffet to be gluten-free. The food could also just have been hard on your system. Eating out takes time to learn to do safely and even when all precautions are made, accidental gluten ingestion is a very real possibility.

Read the "Newbie 101" thread and ask questions where there is confusion. The transition to gluten-free living is not an easy one. You will make mistakes and you will likely become frustrated. It will get much easier with time.

Hang in there!

tylerevelyn Newbie
tylerevelyn
Posted

I know it's advised to eat at home in beginning, but lunch date planned months ago. Had my blood work thins am (already decided going gluten free today-not willing to do biopsies when it doesn't change treatment). So I had Mexican buffet-lettuce, cheese, refried beans, beef with onions, chicken with onions/peppers, tortilla chips. That's it other than diet coke. Any ideas?

I had a very bad reaction to restaurant corn chips not too long ago. They're fried with flour tortillas. And, I highly doubt that they're made of JUST corn.

DavinaRN Explorer
DavinaRN
Posted
  • Author

Thanks everyone. I'll read 101 thinking this may be a lot harder Than I thought

1desperateladysaved Proficient
1desperateladysaved
Posted

Oh, sorry. I hope you will be feeling better soon.

Yes, it is quite a trip on the road to better health. Keep treking, though.

Diana

Skysmom03 Newbie
Skysmom03
Posted

I would stay away from foreign foods in restaurants! I would do thd endoscopy. It is better to know. No reasOn to do the diet if you don't really have to.

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mushroom Proficient
mushroom
Posted

I would stay away from foreign foods in restaurants! I would do thd endoscopy. It is better to know. No reasOn to do the diet if you don't really have to.

If you react to gluten it doesn't matter what the tests say -- you have to do the diet.

Skysmom03 Newbie
Skysmom03
Posted

That isn't necessarily true. There are false positives. There is a reason the drs make you do the endoscopy. That is the only thing that confirms diagnosis. If blood work was all it took there would be no need for her to even go to the specialist. Also the endoscopy can also indicate whether there are other issues other than the celiac.

mushroom Proficient
mushroom
Posted

That isn't necessarily true. There are false positives. There is a reason the drs make you do the endoscopy. That is the only thing that confirms diagnosis. If blood work was all it took there would be no need for her to even go to the specialist. Also the endoscopy can also indicate whether there are other issues other than the celiac.

No, Sky'smom, I'm not talking about testing or diagnosis at all. Not saying you shouldn't try for a diagnosis either. Just saying, no matter what turns out, as a general rule if gluten bothers you it makes eminent sense to avoid it :)

psawyer Proficient
psawyer
Posted

That isn't necessarily true. There are false positives. There is a reason the drs make you do the endoscopy. That is the only thing that confirms diagnosis. If blood work was all it took there would be no need for her to even go to the specialist. Also the endoscopy can also indicate whether there are other issues other than the celiac.

There are several possible blood tests, some of which are more accurate than others. DGP IgA is the newest. It is sensitive and highly specific to celiac disease. Many doctors will now diagnose celiac disease based on a positive DGP IgA result.

Yes, the endoscopy can find other conditions besides celiac disease.

ETA: mushroom and I were typing at the same time.

kareng Grand Master
kareng
Posted

That isn't necessarily true. There are false positives. There is a reason the drs make you do the endoscopy. That is the only thing that confirms diagnosis. If blood work was all it took there would be no need for her to even go to the specialist. Also the endoscopy can also indicate whether there are other issues other than the celiac.

Even if you don't have Celiac, you may have gluten intolrance and would need to eat gluten-free.

Fromthe Univ of Chicago Celiac center:

"What is gluten sensitivity?

Gluten sensitivity is an adverse food-induced reaction, possibly immune-mediated, but for which we have no diagnostic test available. This is a reaction in the digestive tract that causes gastrointestinal symptoms just like irritable bowel syndrome (IBS). It may also lead to other body systems problems, such as fatigue, headache, etc. Unlike celiac disease however, it’s not restricted to people that are HLA-DQ2 and/or DQ8 (the genes that must be present for celiac disease to exist), and it might be transient. Also, there is no known association with autoimmune conditions, and it’s not known to be associated, if untreated, with long-term risk of malignancies.

Although there is currently no diagnostic test (even an intestinal biopsy would be normal), we’re actively involved in research to define a biological marker that could be used to support a diagnosis of gluten sensitivity."

Open Original Shared Link

ravenwoodglass Mentor
ravenwoodglass
Posted

That isn't necessarily true. There are false positives. There is a reason the drs make you do the endoscopy. That is the only thing that confirms diagnosis. If blood work was all it took there would be no need for her to even go to the specialist. Also the endoscopy can also indicate whether there are other issues other than the celiac.

False positives are extremely rare however false negatives are common. There are doctors who are now diagnosing with just positive blood tests now that the newer tests that are very specific for celiac have come out.

If I had waited for a positive blood test I would be dead. And my GI wouldn't do an endo without one. There are also false negatives on endoscopy for a variety of reasons.

IMHO response to the diet and reoccurance of symptoms when injesting gluten after being gluten free is one of the most reliable tests there is.

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    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Thank you, really.  I took a test for DGP-IgA and DGP-IgG. Effectively, it is not enough to discard Celiac Disease. I was consuming gluten until then, I only started gluten-free some days ago, when the symptoms became horrible and now I feel considerably better, which is a second confirmation that gluten is the main problem. It's been more than 4 years I have the same suspect, when I first thought gluten was causing me problems, I made a gluten-free diet for a year, I felt really good as never before. However, neither I or my parents were well informed about Celiac disease, so none of us tried to make further exams. My father suffer digestive problems and other members of my family as well. Unfortunately, no one have ever been tested for Celiac disease. I'll have to restart eating gluten in the next weeks, so I can make a serious blood test in laboratory, hopefully between two or three months.
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      As Scott said, in order for celiac disease testing to be valid, you need to be eating generous amounts of gluten on a regular basis for weeks or months before the blood draw. The blood tests are designed to detect antibodies that the immune system produces in response to the ingestion of gluten. It takes time for them to build up in the blood to detectable levels.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, neurological symptoms like migraines, and palpitations, coupled with being underweight—are significant red flags that extend beyond typical IBS. The negative home test is not reliable, particularly given your concern about sample contamination and the fact that you were likely not consuming sufficient gluten at the time for the test to be accurate, which is a common issue. While probiotics like Bifidobacterium Infantis can support gut health, they cannot resolve an autoimmune response to gluten or heal intestinal damage caused by Celiac Disease. Your declining blood test results, even if still "in range," further indicate a trend that needs a doctor's investigation. Please do not hesitate to seek a specialist; a formal diagnosis is the first step toward getting the correct treatment, allowing your body to heal, and finally addressing your weight and overall health concerns. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Buckwheat

      By Scott Adams · Posted

      I would only add that cross contamination with wheat may still be a possibility, so it's still best to seek out buckwheat that is labeled "gluten-free."
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