Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do I Know If I'm Healing Or Ingesting Gluten?


megsybeth

Recommended Posts

megsybeth Enthusiast

I've been gluten free for just over two weeks and overall I feel great. I feel so much happier and more energetic. But my digestive system is definitely working some kinks out. I'm not in a lot of pain but I have more gas and cramping than I ever had before going off gluten. I know changes and discomfort are par for the course but I also want to know that I'm healing.

I think I'm doing pretty well on the diet. I can't do the whole stay at home for months and eat squash and chicken breasts but I'm careful about where I go out and talk to the people there and I think I'm on top of the foods. Is discomfort and gas and well, not quite diarrhea but not quite not diarrhea, if that makes any sense, normal after the diet?

I know a lot of us have lactose intolerance. Like I said my discomfort isn't that bad but am I damaging my gut if I ingest lactose before my body's ready? Should I cut it just in case?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Quit worrying, you're fine (no seriously, stressing out about it does NOT help at all). It takes time for the body to heal. Most of us take months before we resemble anything normal. If you have no issues with dairy, then don't cut it. Some do, some don't. Just because they do, doesn't mean that you have to.

1desperateladysaved Proficient

If you are be careful with your die,t and keep on working your analytical mind, sooner or later you will figure it out. I am 6 months gluten free and I can sympathasize with the confusion. I am having more of what I think is my body working on repair. I am only guessing what is going on. If the guess doesn't seem to still be flying tomorrow I will make a new guess.

Diana

GFinDC Veteran

HI,

Are you taknig probiotics and using digestive enzymes? The start of the diet can be rough. Things are changing in yuor gut and that can lead to upset/poor digestion. If you don't improve in a month you should consider changing something.

megsybeth Enthusiast

Thanks, everyone. I don't mean to seem like a worry wart but I'm one of those people who didn't really have GI issues recently befor the diagnosis (I think I've had celiac undiagnosed for thirty years and had stomach pains when younger). So I've gone from pretty much nothing to being very aware of the lower region of my digestive system. Very aware.

I am taking a probiotic. I have my first appointment with a celiac specialist on Monday and have been waiting to invest too much in supplements and probiiotics until she weighs in.

SMDBill Apprentice

Megsybeth, I've been lactose intolerant my whole life. I avoided milk and suffered the consequences when I had cheese (plain, processed, block, pizza, tacos, etc.). When I went gluten-free I hoped that the probiotic and changes in my diet would lessen the lactose intolerance, but it seems to have actually enhanced it, unfortunately. I drink Lactaid instead of regular milk but the cheese still gets me. What I did was tried a dietary enzyme for lactose intolerance. They come in different strengths, but I tried the Up & Up from Target because it was pretty strong. I had zero issues after having an egg and cheese omelet, which previously would have caused quite a few issues. Could that be a possibility that could help you enjoy the dairy without harm? I think mine were 12 pills for less than $3 and they have larger quantities available. I just wanted a small one in case they didn't help.

Pegleg84 Collaborator

Hi Megsy

2 weeks is early days. A little gas and (almost) D is nothing to worry about too much. Keep at the diet, and things should settle down. You're healing, and your gut is adjusting to the fact that you aren't feeding it what you used to.

You can, as others have suggested, take probiotics and a good digestive enzyme (make sure both are gluten-free). That will help you digestive system adjust.

I'd wait 6 months until you worry about whether something else (like milk) is bothering you. But to be honest, even if you're perfectly gluten free, we all get a little bloated sometimes.

Happy Healing!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kater Rookie

Hi!

I'm new here, I was just officially diagnosed last week after a positive blood test and biopsy. I've been eating gluten-free for about a month, since right after the biopsy. I can sympathize...people keep asking me if I feel so much better now, but I haven't really noticed any change yet. I'm hoping that I'm not eating anything cross-contaminated, but I have heard that it can take a while for everything to heal up!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748

    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.