Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First gluten-free Trip Away This Week


Celiac Mindwarp

Recommended Posts

Celiac Mindwarp Community Regular

Hiya

Keep your fingers crossed for me - been gluten-free 2 months and this week is my first time away from home and my own kitchen.

I have a stack of stuff to take with me, cooler at the ready.

I am doing some workshops, so taking lunch with me each day, and enough snacks to keep me going if we decide to eat after, so I can join everyone for a drink and anything gluten-free which comes in a wrapper...

Taking my own pan and spatula for breakfast prep (been before and obviously dont want to miss the bacon).

So, apart from the fact that the food doubles my luggage, all good.

I have a ton of nuts as my son is allergic and I tend to catch up on them when away!

Thanks to all the posters on travelling gluten-free, not sure I would have had the confidence without you. I'd have gone anyway, but not necessarily successfully.

I'll let you know how it goes :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Bon voyage, sweetie!

You will be fine...you have done all your "homework"

All positive vibes sent your way.

hugs, IH

tom Contributor

Consider our fingers dutifully crossed, MW. :)

love2travel Mentor

You can do this. The first trip post diagnosis is always hard as you do not know what to expect but each subsequent time gets easier. If you plan well (which you have) you will be fine. More than fine. Your attitude surely goes a long way to a successful experience. It saddens me when I hear about those who do not travel (or do not do other things) because of celiac. That is called fear avoidance. Thankfully you are not in that position! I wish you well. :) Just do the very best you can. That is all we can expect of ourselves! :P

srall Contributor

Good luck! I checked out your post to see if I could offer any advice but you have got it covered! Have a great time!

Celiac Mindwarp Community Regular

So - I did it!!!

It feels so good.

I fed myself just fine. I think I took about twice as much as I needed. I took packed lunch each day, and chatted to others on the course. In the evening I popped back to my hotel, ate loads so I wasn't hungry, then joined the others who were eating and had a pot of tea. I told them I had a new diet and had already eaten and it was fine.

There was even another self diagnosed celiac there to chat to!

So - next time, plug in cooler or check if I can put blocks in a freezer, and not going quite so mad with nuts...

I even ventured into a cafe for a gluten-free cake back home.

Getting there.

Thanks all x

IrishHeart Veteran

Whoohoo! Good for you, MW

The car plug-in cooler has saved my butt many times.

You should have seen how much stuff we transported the first time we went away--as if we were going

to outer Mongolia and there would be no food ...anywhere!!.

It was just to Florida. They have lots of food in Florida. In fact, gasp!!....They have food everywhere along route I-95! :lol:

I was so worried---for nothing.

I always bring more food than I need, too, but eh?...so you bring it back home.

The last time I traveled, I had it down to a science. No worries, no big deal.

The first trip away from home is understandably filled with a bit of apprehension, but

each one gets easier.

You did GREAT!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Glad it worked for you!

I always bring more food than I need. Things never seem to go as planned. For example, A few weeks ago, we went to Colorado to visit oldest son and let younger one take a campus tour. I knew there was a place I could eat at the school food court, so I planned to eat a soup and salad for lunch. Just in case, I took a Go Picnic in my bag. Sure enough, the line to that place was nuts! We shopped in the bookstore, happened to meet up with big bro between his tests and went back to eat. I went back to the place and it looked like a hurricane had gone thru the salad part. I just got soup, which I enjoyed but was glad to eat the crackers, chocolate and protein from the Go Picnic with it.

Sometimes, I bring food back that I purchased in the new town. They might have brands or local products I can't get at home.

Celiac Mindwarp Community Regular

Thanks guys, not sure I'd have done it without you.

Feels good, getting some more me back :)

IrishHeart Veteran

Feels good, getting some more me back :)

Agree totally on the "getting me back", thing! ;)

IrishHeart Veteran

. Just in case, I took a Go Picnic in my bag.

The gluten-free cafe has those by the register for sale. You like those, K? any good?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.