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- YoshiLuckyJackpotWinner888 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications7Reverse Osmosis (RO) Water
I found out the hard way that water filters can have starch binders that bind the charcoal used in the filter. Grain starch or gluten can be present in the filter. I’ve been exposed and had reactions. Steam distilled water is safe. Not all places have the distilled gallon containers commonly sold, but smart water is steam distilled and has been safe s... -
- YoshiLuckyJackpotWinner888 replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease13
9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?
I was diagnosed celiac 5 years ago. I know for certain that casein, grains, beans, seeds, and some other famous lectin issue foods are problems for me. When I was newborn, I had a huge issue with intolerance to milk. Five years ago before my celiac diagnosis, I had Irish cheddar cheese sold by Kerrie and it felt like an explosion in my intestines. I’m not s... -
- YoshiLuckyJackpotWinner888 posted a topic in Gluten-Free Foods, Products, Shopping & Medications0
Water filters are a potential problem for Celiac Disease
We really need to become more aware of this. When I first had my celiac diagnosis 5 years ago, I searched out all possible sources of gluten. I only recently became aware of filtered water being a potential source of gluten and other grain starch contamination. Gluten exposure in the past, for me, has brought upon distinct repeatable points of bodily pain... -
- knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease16Pain in the right side of abdomen
@Heatherisle, I'm so happy that your daughter had her B12 checked! B12 needs all the B vitamins to work properly. A B Complex should be taken to ensure there are plenty of B vitamins to allow B12 to function properly. It's very rare to have only one or two low vitamins in Celiac Disease. B vitamins are water soluble, so any excess is easily excreted... -
- knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms39
Blood results
I'm so glad your daughter got her B12 level checked at last!
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By YoshiLuckyJackpotWinner888 · Posted
I found out the hard way that water filters can have starch binders that bind the charcoal used in the filter. Grain starch or gluten can be present in the filter. I’ve been exposed and had reactions. Steam distilled water is safe. Not all places have the distilled gallon containers commonly sold, but smart water is steam distilled and has been safe so far. -
By YoshiLuckyJackpotWinner888 · Posted
I was diagnosed celiac 5 years ago. I know for certain that casein, grains, beans, seeds, and some other famous lectin issue foods are problems for me. When I was newborn, I had a huge issue with intolerance to milk. Five years ago before my celiac diagnosis, I had Irish cheddar cheese sold by Kerrie and it felt like an explosion in my intestines. I’m not sure if the casein was worse or the naturally occurring cheese mold in aged cheddar did it. I am IgG sensitive to yeast. Casein, yeast, or mold in the cheese might have been part or equally bad. -
By YoshiLuckyJackpotWinner888 · Posted
We really need to become more aware of this. When I first had my celiac diagnosis 5 years ago, I searched out all possible sources of gluten. I only recently became aware of filtered water being a potential source of gluten and other grain starch contamination. Gluten exposure in the past, for me, has brought upon distinct repeatable points of bodily pain which I am now aware of. If I purposely expose myself to gluten, I seem to have antibodies attack certain areas of my body which cause this reaction within 30 minutes of exposure. I can tell rather quickly if I was exposed and it never happens, unless gluten is present. In the past 5 years since my diagnosis , I may have noticed occasional pains or odd sensations after drinking bottled water that was filtered. It never made sense to me why this was happening. A few months ago I was at a gas station and purchased a Gatorade filtered water bottle product. Within 30 minutes, I had pains associated with gluten exposure that I had not felt for years. I knew it had to be the water bottle contents because nothing else was consumed all day. This was a wake up call for me. I searched and found out a thread about water filters containing starch binders to bind charcoal, which is used commonly, and I found out that grains are potentially used for the starch source. Gluten is in certain grains, and according to a study in the past two years, many grain proteins and casein from dairy can cross react with celiac. This Gatorade water bottle had water that was likely filtered with a filter that may have had actual gluten. I am also sensitive to the other cross reactive proteins from grains and casein, but the pains that day were distinct. I can absolutely tell the difference if I come into contact with corn or other grains. The reaction is different. My point is bottled water that has been filtered can potentially be exposing us, if they use starch binders from grain products. We have no real practical way of knowing what water filters may have inside of them, unless a law requires disclosure on the label. This is not only going to affect bottled water, but also all products that were made with filtered water. Since cross reactions to other grain proteins is now a real issue, simply stating gluten free is not enough. How can you know if your store bought lemonade does not have filtered water with gluten or other grain protein contamination? Did that kombacha you just drank happen to have filter contamination of corn and you suddenly feel a headache and odd chest pains? Distilled water may be the only safe bottled water. We can’t trust water filters until the law changes and requires processing plants to disclose these contaminants. I don’t ever have a problem with distilled water as long as it was steam distilled. Regular bottled water has set off noticeable sensations and pains over 5 years of observing these. The Gatorade water was the worst and most alarming. Stay safe. -
By knitty kitty · Posted
@Heatherisle, I'm so happy that your daughter had her B12 checked! B12 needs all the B vitamins to work properly. A B Complex should be taken to ensure there are plenty of B vitamins to allow B12 to function properly. It's very rare to have only one or two low vitamins in Celiac Disease. B vitamins are water soluble, so any excess is easily excreted in urine. Tingling in feet and hands is symptomatic of deficiencies in B vitamins like thiamine, Pyridoxine, and niacin. September 19 2025, "Your daughter needs to be checked for Vitamin B12 deficiency as soon as possible! The nitrogen compounds in anesthesia can precipitate a B12 deficiency resulting in severe depression. Please have her checked immediately! The nitrogen compounds in anesthesia (both gas and injected anesthesia) bind irrevocably with the Cobalt in Cobalamine Vitamin B12. This precipitates a B12 deficiency in people with a low B12 level. This can happen immediately, within days or weeks or months depending on B12 stores. I've had medical procedures that required anesthesia and been struck down by deep dark depression and uncontrollable crying immediately, and also within weeks of the exposure. My doctor put me on antidepressants which only made things worse. Antidepressants don't correct a vitamin deficiency. Please have her checked for B12 deficiency as soon as possible!" -
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