Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is The Deal With Quinoa? Gluten Free Or Not?


livelifelarge24

Recommended Posts

livelifelarge24 Enthusiast

I was under the impression that quinoa is gluten free. At our last CSA support group te leader mentioned that there is a new study out saying many varieties of quinoa are now found to have gluten in them. She is out ofte country kow for the next couple of meetings but I'm curious if anyone has heard of this or has any info? I love quinoa and quinoa pasta but have put off purchasing any until I'm educated further.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



designerstubble Enthusiast

Really??? Are you sure it's not just down to manufacturing? I've been eating quinoa since diagnosis nearly every other day and I have had no gi problems? Like you, I also hope it's gluten free! Apparently it's not even a grain, so we should be ok!

GF Lover Rising Star

I eat quinoa pastsa and have never has any problems with is and had never heard of bad gluten being in it.

shadowicewolf Proficient

If you wish to be technical, yes it does have gluten in it, just not the type that celiacs react to.

I believe i heard something about that. Some strands may be cross contaminated or something. One of the other members on here would know more.

psawyer Proficient

Biologically, "gluten" refers to the prolamine protein in a grain--any grain. Grains are members of the grass family, Poaceae, also known as Gramineae. This family includes the grains we refer to as gluten: wheat, barley and rye. Oats are also in this family.

Quinoa is not a true grain. It is a member of the Amaranthaceae family. As such, it does not contain gluten in either sense of the word.

Contamination with a gluten grain is possible. I eat quinoa with no problems.

Juliebove Rising Star

If you wish to be technical, yes it does have gluten in it, just not the type that celiacs react to.

I believe i heard something about that. Some strands may be cross contaminated or something. One of the other members on here would know more.

Yes. A lot of people get stuff like that wrong. When my daughter tested as intolerant not only to wheat but gluten, I remember the Dr. going off on me when I questioned him about the gluten thing. He told me that a lot of food has gluten in it, including corn. Which it does. But again, not the same gluten that people here have to avoid. Unless of course they have other issues with corn. But he himself was very confused and told me to feed her spelt. Which I did and of course she got sick. Because not only is spelt a form of wheat but it contains the gluten we refer to here! Another Dr. told me that she could have sprouted grains because once they were sprouted they became a live food. And yes, she got sick from that too.

Sadly she is now intolerant to quinoa! Corn and quinoa pasta was a favorite for making pasta salad.

AFAIK there is none of the gluten that needs to be avoided in quinoa unless of course it is cross contamination from the way it is grown, processed or packaged.

livelifelarge24 Enthusiast

I know that's she was talking about cross contamination on a regular basis, I am just not sure which brands or types of quinoa. She will be back I'm January and I will definitely ask for the info that she had found.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
livelifelarge24 Enthusiast

Our group leader is back from her trip now so here is the link for anyone that was curious. It looks like a couple of the varieties of quinoa don't have gluten but cause an immune reaction.

Open Original Shared Link

DougE Rookie

I saw a story on this on this very website. http://www.celiac.co...iet/Page1.html. I was wondering if this would raise a discussion. Could have started the thread myself, but I'm not particularly fond of quinoa.

GottaSki Mentor

Quinoa is safe and gluten-free. Some of us have problems with other foods - the extremely high lectin in quinoa is the reason my damaged gut can not digest it now - I hope to add this nutritous food back into my diet at some point.

cavernio Enthusiast

Quinoa is safe and gluten-free. Some of us have problems with other foods - the extremely high lectin in quinoa is the reason my damaged gut can not digest it now - I hope to add this nutritous food back into my diet at some point.

The linked abstract says that 2 types ("cultivars" as it puts it, whatever that means) of quinoa activate T cell responses like gluten does in labortary cultured tissue taken from celiacs.

GottaSki Mentor

The linked abstract says that 2 types ("cultivars" as it puts it, whatever that means) of quinoa activate T cell responses like gluten does in labortary cultured tissue taken from celiacs.

Perhaps...I have heard of this T-cell response in Celiac Disease with other foods, but cannot find any science to back this up right now. What I know for certain is many foods that are high in lectins are difficult for my damaged gut to process - quinoa is one of these items for me.

gatita Enthusiast

Well, this AJCN study report is enough science to give me pause. This conclusion says two varieties of quinoa could trigger an immune response in some celiac patients.

Open Original Shared Link

Since I'm still in the early, super-sensitive stages, I'm staying away for now (like I do with oats).

livelifelarge24 Enthusiast

I agree with gatita, after so many accidental glutenings and setbacks last year I always prefer to be safe rather than sorry. I don't even consider oats. I have had quinoa pasta with no issues three times in the past year and a half but this definitely gives me pause. The leader of our CSA support group said that you could call the manufacterer to see what strains of quinoa they use but I don't see the guilty parties listed so I wouldn't know what to compare it to anyway.

GottaSki Mentor

not sure...think I'm being misunderstood -- I am not dismissing the cited journal -- I meant I could not take the time right now to look up the other research I have seen that agrees with proteins other than wheat/barley/rye causing T-celll reactions in some with Celiac Disease.

sorry for any confusion -- my main laptop crashed so i will refrain from discussing such matters for now.

sisterlynr Explorer

I had a bad reaction when I ate Quinoa. I did find an article that although it is gluten-free it is not recommended for Celiacs.

I know I cannot eat Quinoa.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Oh my goodness medication causing pain !!!!

    2. - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    3. - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    4. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,843
    • Most Online (within 30 mins)
      7,748

    K M
    Newest Member
    K M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.