Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thinking Whether To Go Grain Free?

adambryant

By adambryant
in Coping with Celiac Disease

Recommended Posts

adambryant Explorer
adambryant
Posted

Just a few questions. Why do people go grain free and can people with celiac not tolerate them? I know that when I eat gluten free bread and pasta I feel very bloated, compared to potatoes for example.I know I can't tolerate rice so could it be the grains? Should I go grain free? Anyone have any grain free options?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skysmom03 Newbie
Skysmom03
Posted

No people with celiac can have certain grains. The protein in the grain sets off an autoimmune reaction which can make them very sick. Long term exposure can even lead to different types of cancer and other diseases and possible even death. If you do go grain free you need to make sure you take a good vitamin to make up for vitamins lost from not eating grains.

AVR1962 Collaborator
AVR1962
Posted

After over a year off wheat I was still having trouble with inflammation....it was like my body was on fire and I never knew what was going to happen next....it was like my body was still being attacked by something.....so I went completely grain and sugar free. It made a huge huge difference for me. I found when I was completely grain free though I would after a good length of time have to almost binge to get my carbs or I would find myself very tired. Now I allow 1/2 cup grain from time to day, not even every day. I had to find the right balance for me. I do allow some sugar but again very little. I went to juicing, replacing one meal a day with freshly juiced veggies with some fruit and that has helped my energy levels a great deal. So I think it depends on each person and what they are dealing with as to whether grain free is good for you. Grains are important if they are not causing the body issues.

GottaSki Mentor
GottaSki
Posted

For me - removing all grains, dairy, legumes,, nightshades and histamines was essential - my digestive system was destroyed by decades of undiagnosed Celiac Disease.

We are all different - my nutrient levels are all better than ever without these foods. I am actually absorbing vitamins and minerals from mmy food and no longer need supplementation.

IF and this is a big IF - you are not improving after months gluten-free or as in my case are getting worse with strict removal of gluten - I strongly encourage you to look to other high lectin foods.

Hang in there.

adambryant Explorer
adambryant
Posted
  • Author

Thankyou. Do celiacs who go grain free generally go back to grains and are able to tolerate them in the future? And if so how long? I just can tell I feel different after some foods, not just me thinking it!

Skysmom03 Newbie
Skysmom03
Posted

No, Celiacs must follow a Gluten free diet for life. Even if they eat it and feel 'fine', they are still damaging their digestive systems. Gluten is toxic to a celiac!

mushroom Proficient
mushroom
Posted

No, Celiacs must follow a Gluten free diet for life. Even if they eat it and feel 'fine', they are still damaging their digestive systems. Gluten is toxic to a celiac!

I believe Adam was referring to alternate grains, not gluten.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


adambryant Explorer
adambryant
Posted
  • Author

Yeah I meant grain equivalents, or for example gluten free bread/pasta..

GottaSki Mentor
GottaSki
Posted

Hi Adam-

For me - I have been grain free for over a year - had major setback during that time - am doing much better this past month so I plan to hold firm on my current diet for at least six more months then I will trial my removed foods VERY slowly - again some can add things back more quickly.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,224
    • Most Online (within 30 mins)
      7,748
    Sherre Skeen
    Newest Member
    Sherre Skeen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Watch this space!  😊
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Low iron and vitamin d

      By lizzie42 · Posted

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.