Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh Rash Bleeding Now


GFreeMO

Recommended Posts

GFreeMO Proficient

I've managed to scratch my DH that is all over my back at night and now it is itchy AND bleeding. Nothing like having a bleeding back! UGH. Any ideas on what I can do for this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

Walgreens sells metal back-scratchers that are easy to clean and keep you from having blood under your finger nails. Wait, is that not the type of help you were looking for? :lol:

It took me all of about 2 days to scratch myself to bleeding. I saw my doctor immediately and got put on steroids. I think it was 20mg prednisone twice a day for 5 days. This with a low iodine diet didn't clear me up right away, but it really made a big dent in the itching and pain within days and made it bearable until it did clear up. These days, while I have to remain mostly low iodine, I have determined that I can infrequently indulge in a little bit of the "forbidden" foods without flaring up. I also caught it and recognized the rash immediately as it started and had the appointment with my doctor before a week was up. Few are so lucky. Do not forget to call the manufacturer of your prescription (if you go that route) before filling to verify that it is gluten free and free of whichever red dye it is we can't have. Not that I've ever seen red dyed steroids. Steroid creams can also help, although I doubt a doctor will want to prescribe both. I found some relief with calamine, only the pink one! but I've seen others say that it isn't particularly great. The best relief was standing in warm showers.

I haven't been paying much attention over this way, but if someone hasn't already told you this it is super important to make sure your soap, shampoo and lotion are all gluten free. While it may not be the world's biggest deal for other people as long as they aren't eating it, rashy people have to be careful.

rosetapper23 Explorer

You might want to test for staph--sometimes it invades the DH. If this is the problem, antibiotics will help resolve the rash. (Sorry about the bleeding--ouch!)

squirmingitch Veteran

It's red dye #3 that has the iodine in it (in the USA). Sometimes they coat pills with red coloring & remember that red is used to make orange coatings.

GFMO, I did the same. I have no answers except to get OxiClean Max Force stain remover to get the blood out of the sheets. The CVS brand of Caladryl (copycat) worked for us pretty well but you have to put on 2 or 3 coats. And then sometimes it just doesn't dent the itch.

Adalaide ---- you say Walgreens has the metal back scratchers? :lol: :lol: :lol:

Adalaide Mentor

It's red dye #3 that has the iodine in it (in the USA). Sometimes they coat pills with red coloring & remember that red is used to make orange coatings.

GFMO, I did the same. I have no answers except to get OxiClean Max Force stain remover to get the blood out of the sheets. The CVS brand of Caladryl (copycat) worked for us pretty well but you have to put on 2 or 3 coats. And then sometimes it just doesn't dent the itch.

Adalaide ---- you say Walgreens has the metal back scratchers? :lol: :lol: :lol:

I just knew it wasn't the #40 that was the problem. I swear my mind is going. I'm not old enough for that yet! You can get blood stains out of sheets? Who knew! Meh, they're soft and comfy and no one else looks at them so whatever. I'll worry about that next time when I haven't perma-stained them by putting them through the dryer 100 times by now.

Yes, yes they do. Wooden ones too, but those get blood stains. I am not telling you how I know this. :ph34r:

squirmingitch Veteran

I know which red dye b/c my hubs must ask me 50 times a day! :lol: :lol: Every time he starts to eat something that is red he asks me. I feel like tattooing it on his hand so he won't keep asking me. And then he always says ---- are you sure? You're pushing it buster!

Oh yes! The Oxi Clean Max Force works like a charm for blood but you have to put it on for a few minutes before they go in the washer. Before I had dh I used to use something called S 32 for blood stains & it worked great too.

You keep me laughing Adalaide! Maybe the Oxi Clean will get the blood out of wood too. :lol: :lol: :lol: :lol:

Celiac Mindwarp Community Regular

It can help to wash/scrub in cold water 1st for blood stains, preferably ASAP. Hot water can set the stain. A quick scrub in cold, some oxy straight on then the washer is pretty good.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

My DD got me a metal back scratcher about 3 years ago ( the best present she ever got me :wub: )

You can get blood out of sheets ?? who knew :P

To the OP ,

staying low iodine is the only thing that works for my DH

L.J. Rookie

Hi All of my GFF's! Welcome GFreeMO!

Some familiar names I see here! Oh the rash. It is wicked, yes?

For me, a metal back scratcher brings visions of horror movies into my mind! :D

I was on Prednasone for quite awhile...months--at the 20 mg...then tapered down. My dr. gave me Fluocinonide--prescription--it has been a great help--if I "catch" the rash early, the symptoms are *much* better! I wear gloves at night still...and have cut down on any spicy foods, tomatos, and did the "low iodine" for as long as I could...

SquirmyItch and others here gave me great advice regarding my rashes--I too bled on the sheets--but the stains come out like they say! If I scratch my rash, it becomes *much* worse--so I use the cream mentioned above...For me, a Lifesaver!

I also watch what I eat carefully! Changed ALL of my shampoos, creams, lotions, soaps, hair dye, and even makeup. My rashes (oh, dare I say this???? :D are better)!!! :wub: Not gone--but much improved.

Great advice being given to you above (although, the metal back scratcher is definitely a scarey one for me :D :D !

Keep checking back--never did I believe that the rash could get as good as it is now--Do not give up! And keep your head up! ;)

sisterlynr Explorer

I've managed to scratch my DH that is all over my back at night and now it is itchy AND bleeding. Nothing like having a bleeding back! UGH. Any ideas on what I can do for this?

I have taken baths with Epson Salts and soaked my back. I use Sarna (sensitive) anti-itch lotion, it works better for me than any OTC product. It was less expensive at Wal-greens. I have read that you can add 1 Cup of bleach to a full tub of water for relief. I didn't do that but did go to the pool. I use a back scratcher and it doesn't tear up my skin as much as the finger nails. I use a teak wood scratcher and sanitize it with alcohol.

Peroxide will remove blood too. I had a surgeon's wife tell me she buys it in bulk for her wash. :unsure: I have ruined all of my sleepwear and my pillow covers. I stopped using pillow cases until my neck, shoulders and head lesions healed.

BTW, I have also applied athletic feet lotion to my lower back. It seems to work by drying the lesions. . . I know DH isn't from bacteria/etc. but, hey . . . also have used Prep H on my tail end and it soothed the lesions and gave relief to the itch. . . I guess if the Director of Nursing at the hospital I worked out could use it for wrinkle repair. . . :D I could use it for itchiness!

Dh122012 Newbie

I use Sarna (sensitive) anti-itch lotion, it works better for me than any OTC product. It was less expensive at Wal-greens.

I love Sarna! Its the best OTC product I have ever used for the itch!!! It literally saved my sanity during pregnancy when I had to stop all the topical corticosteriods, topical immunomodulators and sedative antihistamines (before I found it was DH and was being treat for severe eczema). I bought it at Walmart. Online too sometimes (free delivery) then I didn't even have to face the pubic :ph34r:

GFreeMO Proficient

Thanks everyone!! I'm going to try your suggestions. Hopefully I can get some relief.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,192
    • Most Online (within 30 mins)
      7,748

    DenisC
    Newest Member
    DenisC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.