Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened...or Paranoid?


granolagal

Recommended Posts

granolagal Apprentice

Hi All,

I've been diagnosed with celiac disease and have been gluten-free for a year now. Last night I went to my Mom's house for dinner (as I do on a regular basis). She normally makes "regular" recipes for everyone, and then my own special gluten-free version for me (e.g. scalloped potatoes with regular flour for everyone else, and a special pot made for me that is gluten-free). Everything I ate last night was TECHNICALLY gluten-free by ingredients. However about 10-15 minutes after I ate I started to feel really sick. I got a bad headache, I was so nauseous and dizzy and just felt awful. I ended up coming home and going straight to bed. I couldn't even see straight. Today I woke up and feel like I'm hung over (even though I don't drink) and am weak and irritable. I've never had noticable digestive symptoms or otherwise before. Even before I went gluten-free, the only symptoms I had were from malnutrition/malabsorption of my food. I wouldn't feel sick after eating a piece of bread, for instance. So this is all new to me. Could this possibly be a reaction to gluten?? Or am I just paranoid?? Also, does this make sense that I would react like this to a, probably, minor cross-contamination when I never reacted to eating full blown wheat/etc before?

Thanks for any replies...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

It could be gluten. Could be a bit of food poisoning or stomach virus.

I used to try to cook gluten-free and regular at the same time. It's very hard to do. You forget and use the same measuring spoon from the gluten flour to the gluten-free flour . You have 2 pots of pasta going and use the spoon from one in the other without thinking, and on and on. She could have drained all the potatoes in her colander she uses for gluteny pasta. It's hard to know.

Mdhriggin Newbie

It doesn't sound unreasonable that you could have been glutened. It sounds like how my daughter reacts to even just a little cross contamination.

granolagal Apprentice

Interesting. Thanks guys. I don't know if it would be food poisoning, since no one else got sick, but I guess there's a chance.

I guess it's hard to say. I worried right away "maybe I've been glutened!!" but I also didn't want to jump to conclusions. The good news is that I'm feeling better today. I just wondered if those were some signs I could look out for in the future. Has anyone ever done anything possibly stupid like take a bit of regular cake or something just to see what your reaction would be?? Or is that just crazy talk?

frieze Community Regular

Interesting. Thanks guys. I don't know if it would be food poisoning, since no one else got sick, but I guess there's a chance.

I guess it's hard to say. I worried right away "maybe I've been glutened!!" but I also didn't want to jump to conclusions. The good news is that I'm feeling better today. I just wondered if those were some signs I could look out for in the future. Has anyone ever done anything possibly stupid like take a bit of regular cake or something just to see what your reaction would be?? Or is that just crazy talk?

Food poisoning can hit anywhere from hours to days after exposure...
Dukebanta Newbie

You were glutened. I have celiac, diagnosed 6months ago. Sounds like you caught yours early because of how you describe your symptoms. I did not have digestive problems for a long time but eventually did. The way you describe what happened describes many months for me until finally diagnosed. I would say don't try to figure it out because you can't. Anytime you eat in a group setting you increase you chance just because there is more people. I tell my family not to make something for me because there is always someone there that is a "picker"...they gotta try everything, and they use the same spoon. I have watched my family accidentally cross contaminate my gluten free meals. Their response is sorry and I am done eating. And these are the ones I saw. So that is a gluten hang over, it is real and I still get it. I also think you can refuse the symptoms with water and electrolytes'

1desperateladysaved Proficient

Well, I had a simalar response last evening to eating somewhere else. I brought my own food. My foods were lamb, kelp noodles, and an almond muffin. All of the foods I have been okay in the past. All foods made at home from scratch. I am having some for lunch, but not the ones I took alongs, but some I left home. I am thinking that rules out a problem with the particular foods.

On the way home I felt a pain in my abdomen and nausea, I also swelled up my abdomen and had general other swelling.

To heat the foods I placed them in a toaster oven. They were in a stainless steel small bowl with a lid. I put foil over the lid to keep it together in trainsit. I also had noodles cooked in a stainless steel pot which we brought from home. I rewashed a stainless fork that I used.

Some possible problems I could conceive of is:

The well used potholder I used dropped bits onto my lid which spilled into my meat as I removed the lid. Or

The stirring spoon touched something in the kitchen and went back into the pot.

Or the paper plate I used may have had gluten flour settle upon it in its history.

I am not saying that everyone has to be this careful, but it sure seems like I better be really careful.

I didn't have all of these symptoms in my glutenful days either. But I think my body is better able to complain. I mean I couldn't hear it complaining when it complained all of the time. Now, I have a peaceful existence contrasted with groanings. Does that make any sense?

Diana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,916
    • Most Online (within 30 mins)
      7,748

    Ykat
    Newest Member
    Ykat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.