Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Wear Medicalert?

gabby

By gabby
in Coping with Celiac Disease

Recommended Posts

gabby Enthusiast
gabby
Posted

Does anyone wear a medicalert bracelet for celiac disease? I'm wondering if it might help.

thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I still need to get it on mine.

bluelotus Contributor
bluelotus
Posted

Great idea, never would have thought of it!

BRCoats Enthusiast
BRCoats
Posted

I have heart problems, a pacemaker, and celiac. Gee.....ya' think I need to get one??? :lol::(:):blink:

Carriefaith Enthusiast
Carriefaith
Posted

I think the bracelet would especially come in handy for eating out. I have been thinking of getting one that says Wheat Allergy and Celiac Disease, since I am also allergic to wheat.

par18 Apprentice
par18
Posted

I wear a necklace. Got it at Walgreens. Cost about 10 bucks. I'm sure it will help at some point.

Lisa Mentor
Lisa
Posted

That might be a good idea.

Also, it might be helpful to pre-register at you local hospital, and indicate that you have celiac disease or other complications of the disease. That way your information is already logged on if you need to be admitted for other reasons.

Smart thinking.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

My mom is getting ready to order me one...I have a severe wheat allergy so I should have got one a while ago...I will add celiac disease on there while I am at it.

psawyer Proficient
psawyer
Posted

I do, and have done so since I started on insulin for diabetes almost twenty years ago. When I was diagnosed with celiac in 2000, I had that added to the engraved message, which now says:

NO GLUTEN

CELIAC DISEASE

INSULIN DEPENDENT

DIABETES MELLITUS

I'm not sure it is a really big concern, as gluten must be ingested by mouth to be a problem, and if I can swallow I can probably speak, but just in case... :o

frenchiemama Collaborator
frenchiemama
Posted
I'm not sure it is a really big concern, as gluten must be ingested by mouth to be a problem, and if I can swallow I can probably speak, but just in case...  :o

<{POST_SNAPBACK}>

I've been toying with the idea, but only because I can remember a few times that I was sedated for a minor procedure and was told by whoever came to pick me up that I was talking and seemed awake but I don't remember any of it. If someone had offered me something to eat at that time (who knows why they would, but you never know) I probably would have just taken it without question and not remembered!

Not that I'm planning to run around getting sedated all the time, but you never know what a sudden illness or accident could necessitate something like that.

psawyer Proficient
psawyer
Posted

Carolyn, good point! I had not thought of that.

celiac3270 Collaborator
celiac3270
Posted

Unless you have a severe allergy to wheat IN ADDITION TO celiac, I would not wear one. If you lose consciousness and a doctor needs to give you a medication to save you, gluten is the least of your concerns...

BRCoats Enthusiast
BRCoats
Posted
Unless you have a severe allergy to wheat IN ADDITION TO celiac, I would not wear one.  If you lose consciousness and a doctor needs to give you a medication to save you, gluten is the least of your concerns...

<{POST_SNAPBACK}>

That's a very good point, celiac3270. Better to be sick for a week over getting glutened than dead. :o

Merika Contributor
Merika
Posted

I've just been thinking along these same lines....my mom has one (has for years for other stuff, now celiac too). Jewelry tends to annoy me though...so I've been thinking, lol, do you think a tatoo would work where the breacelet would go?

Merika :P

nogluten- Newbie
nogluten-
Posted

I have one but don't wear it like i should. I worry about Iga, because if I get a blood transfusion, they need to know to wash out the Iga from the blood. Thanks for mentioning it. I need to start wearing it !

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.