Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Celiac's Have An Odor?


*Daniella*

Recommended Posts

*Daniella* Apprentice

The other day my boyfriend said he can tell when I have been glutened because I admit a distinct odor through my skin. He said it's NOT foul smelling but more medicinal. Has anybody else been told that?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Could you do us dinosaurs a favor and not make the font so small so we can't read it without our "cheaters"? :lol: Thanks, honey!

Okay, to answer your question: Nope.

So, I asked the hubs.... and he said " huh? No!"

and I honestly cannot imagine how this would provoke a "medicinal smell" by emitting it through your skin, BUT it is very interesting!! As the wife of a chemist, I am intrigued.

For it to be an exact science of course, he would have to sniff you daily for weeks, reporting what he smells, then without his knowledge, you gluten yourself and as the days pass, he would continue to sniff you and report what he smells.

In other words, a controlled study would be your best bet. He may think you smell differently, because he knows you've been glutened. See what I mean? Maybe he is biased based on what he knows?

not that he is lying, of course, but because he may "anticipate" a change?

It would only be a valid response if there is control in the experiment....so......who wants to try it? (not me!)

cahill Collaborator

Could you do us dinosaurs a favor and not make the font so small so we can't read it without our "cheaters"? :lol: Thanks, honey!

Okay, to answer your question: Nope.

So, I asked the hubs.... and he said " huh? No!"

and I honestly cannot imagine how this would provoke a "medicinal smell" by emitting it through your skin, BUT it is very interesting!! As the wife of a chemist, I am intrigued.

For it to be an exact science of course, he would have to sniff you daily for weeks, reporting what he smells, then without his knowledge, you gluten yourself and as the days pass, he would continue to sniff you and report what he smells.

In other words, a controlled study would be your best bet. He may think you smell differently, because he knows you've been glutened. See what I mean? Maybe he is biased based on what he knows?

not that he is lying, of course, but because he may "anticipate" a change?

It would only be a valid response if there is control in the experiment....so......who wants to try it? (not me!)

Not me either,, I will take the word of the fool ,, I mean test subject,, that agrees to perform that controlled study :rolleyes:,

I have known people who drink a LOT of alcohol to have the odor of alcohol come thru their skin after a particularly rough binge .

JNBunnie1 Community Regular

HAHAHAHAHAH!!!!!!

I do know that in my experience living with a man for six years, he would most definitely smell

different when he was sick, like with a cold or something. And my mother always said she could

smell when we were sick. It's not out of the realm of logic that the chemistry in your body

would change enough when glutened to affect your odor. Especially to someone with a very

sensitive sniffer, I smell things most people don't notice. Interesting topic!

IrishHeart Veteran

I agree on the "alcohol smell" after a binge. No question!! I agree on the "sick smell" too. That's perspiration coming out your pores, right?

but if we're gonna ooze after a glutening, wouldn't we smell like a bagel??

Just sayin.

I can smell things no one else can, too. Really, I have "super nose" (the hubs thinks I am nuts sometimes.) but I am "fine tuned".... same with taste and hearing. Super Sonic.

That said, I bet I may probably smell like OTHER things besides "medicinal" after a gluten hit.....because you can bet I am going to probably heave or be in the loo for a bit.... :ph34r:

GFinDC Veteran

People who smoke certaintly have an odor. Some people smell like cinnamon too. Don't ask me why. Rose water is medicinal right? So maybe we smell like rose water. Otherwise I can't imagine why we would have a particular odor, so there, says FP.

JNBunnie1 Community Regular

Well, haven't a lot of people reported hormone disruptions from glutening? Night sweats,

hot flashes, booby tenderness, cycle issues... I have read of pregnant women smelling

different, as reported by their husbands or mothers. So why not a glutening? Nobody

would ever fund the study of something like this, but it sure is interesting!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

My hubs' aunt said she could smell people who had cancer :blink:

JNBunnie1 Community Regular

Dogs can smell cancer!

cahill Collaborator

I also have an extra sensitive sniffer ,,,

Maybe we should have a study done to see if celiacs have more sensitive sniffers then non celiacs ? That could be fun or not :P (depending on the smells involved :lol:)

Celiac Mindwarp Community Regular

I am à sensitive sniffer :)

I can sometimes smell when a diabetic is out of whack. It is the classic sweet pear drop smell that people say is on the breath, but I smell it on the skin. I had a boyfriend with diabetes, but I had to pretend it didn't happen, it used to annoy him that I knew. Mind you, it annoyed me that he used to get drunk and expect his mates or me to get him out of fits. Hence ex.

Another friend was freaked out when I asked if he was diabetic. Turned out he was prediabetic.

Not sure about celiac. I think there is a general sick smell.

IrishHeart Veteran

I also have an extra sensitive sniffer ,,,

Maybe we should have a study done to see if celiacs have more sensitive sniffers then non celiacs ? That could be fun or not :P (depending on the smells involved :lol:)

The startled skunk walking by the open window in summer just about kills me. <_<

ncdave Apprentice

Eat some chocolate an smell the skin on your arm, pretty amazing !

cavernio Enthusiast

I've often wondered this. I wonder why we don't get dogs to diagnose all sorts of diseases for us, we trust them to find bombs and drugs.

I personally haven't noticed a celiac odor, but have wondered a lot if it's contributed to my own pretty strong BO.

mommida Enthusiast

We had a dog that loved everybody. She would growl at anyone who had cancer (most times pre diagnoses).

I honest to God can smell ice (ice rink ice).

A lot of us mid westerners can smell spring. (it smells like black dirt and it is not the first day of uncovered ground from snow melt)

The boyfriend just has a really good sniffer, very well in tuned to you. He will probably know your pregnant before you do.

Celiac Mindwarp Community Regular

My cat knew I was pregnant and went bananas.

Mind you, cats are not much good for training :)

nvsmom Community Regular

I too have a sensitive nose. As a mom to 3 boys and a red neck husband, I consider this to be a curse. LOL

I'll have to pay attention to that. I know my smells change throughout the month and when I am unwell. I've never noticed a gluten smell. Neat.

And yeah, why don't they use dogs for cancer sniffing. It's got to be cheaper than MRI's and tonnes of tests.

CaliSparrow Collaborator

My hubby has a sensitive nose. If I've spent several days in bed, he says the room begins to have "that smell". He also says it's not particularly bad, but stale. The skin is an organ and I don't think it's outside the realm of possibility that we give off an odor when our organs are taxed. He hasn't really said that much since I've been gluten-free.

Cali

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,203
    • Most Online (within 30 mins)
      7,748

    Sarahmegan
    Newest Member
    Sarahmegan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.