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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

squirmingitch

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  1. An autoimmune disease can occur when the body's immune system mistakenly perceives a nonthreatening substance. In the case of people with celiac disease, gluten (a protein found in wheat, barley, rye, and oats) is seen as a foreign invader and is attacked by the immune system. This immune system response in celiac disease also involves the production of antibodies directed against an enzyme normally present in the intestines called tissue transglutaminase (tTG). In celiac disease, the body produces two types of antibodies that attack tTG: immunoglobulin A (IgA) and immunoglobulin G (IgG). Measuring the IgA form of tTG antibody in the blood is more useful in detecting celiac disease because it's made in the small intestine, where gluten causes inflammation and irritation in sensitive people. Levels of the IgG form of tTG antibody, on the other hand, are less specific to celiac disease, but may still be useful in diagnosing the condition in people who are unable to make normal amounts of IgA antibodies. From: http://kidshealth.org/en/parents/test-ttg.html
  2. You need to get copies of your medical records & especially of the celiac blood tests. Are you sure the correct tests were done? This is why you need to get those records. Here is the current FULL celiac serum panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA Also can be termed this way: Endomysial Antibody IgA Tissue Transglutaminase IgA GLIADIN IgG GLIADIN IgA Total Serum IgA Deamidated Gliadin Peptide (DGP) IgA and IgG If you didn't get all those tests then you didn't get the full panel. Sometimes your insurance won't allow but a couple of them for screening purposes & you have to get a GI to order the entire panel. It's not unusual for people to test negative to the screening. A number of people on here only test positive to the DGP tests. 10% of celiacs are sero negative. Call the GI every single morning & ask if there has been a cancellation so you can get seen sooner. You sure have a shipload of symptoms that fit celiac! Add your grandma's celiac diagnosis & it's more than likely you are celiac too. Yes, keep eating gluten -- I know you don't want too - HUGS --- until all testing is done & then DO give a strict gluten free diet a try for at least 6 months.
  3. Don't go gluten free until you find out if they want you to get an endoscopy which they should schedule. Eat gluten every single day until the endoscopy is done.
  4. From the Chicago Celiac Disease Center which is one of the premier celiac disease research & treatment centers in the world: Are you scheduled for a biopsy? Are you eating gluten? Any changes in your diet can affect the accuracy of your biopsy results. It is necessary for you to be eating gluten every day for at least 4-8 weeks before the procedure. If you are scheduled for a biopsy and are not eating gluten, talk to your doctor about what is necessary to obtain accurate results. If you have a biopsy and have eaten gluten only a short time before the test, you and your physician will not know if a negative test result is accurate or due to your diet. Here's a link: http://www.cureceliacdisease.org/wp-content/uploads/341_CDCFactSheets5_Diagnosis.pdf Also, you might want to read this: http://www.cureceliacdisease.org/faq/can-an-allergist-help-with-celiac-disease-or-does-a-better-specialist-exist/
  5. He only did 2 of the full panel & you are positive on one of them, the DGP IgG. It only takes one positive to move on to an endoscopy. Here's the full celiac serum panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA Also can be termed this way: Endomysial Antibody IgA Tissue Transglutaminase IgA GLIADIN IgG GLIADIN IgA Total Serum IgA Deamidated Gliadin Peptide (DGP) IgA and IgG You should get the rest of the panel done OR be referred to a GI for an endoscopy. DO NOT STOP EATING GLUTEN UNTIL THE ENDOSCOPY HAS BEEN COMPLETED. Eat gluten every day. EVERY DAY.
  6. That's about the most definitive positive across the board that I've ever seen. You're way positive on every one. Keep eating gluten every single day until the endoscopy! You don't have to eat a ton, 1 or 2 slices of gluten bread per day will do it. Orrrrrrrrrrr you could take this time to pig out on all of your favorite gluten foods to say goodbye to them. Ultimately, those foods will become a distant memory. There are gluten free replacements for literally everything but for 6 months to a year, you will need to eat whole foods & none of the processed stuff so you can heal.
  7. 3 is GOOD! Better than 4. So now you are in the normal range. Good work girl!!!! Now celebrate. I'm so happy for you!
  8. We have also noticed wait staff carrying glasses or coffee cups 3 or 4 at the time by putting a finger down inside each one & then grasping them altogether. This just after picking up dirty dishes from other tables. Certainly weren't back in the kitchen long enough to wash their hands before grabbing the glasses or cups. We used to, before celiac, try to shrug it off as a few germs won't hurt you & you need to be exposed to things once in a while in order to strengthen your immune system. It always still grossed us out though! Now is a whole other matter. Gluten fingers inside glasses & cups. No, just no!
  9. Intolerant to lots of foods

    Nuts are high in protein so if you can eat them, then go for it. You may not be able to tolerate whole nuts. I found I can't eat almonds but I am fine with almond meal. Dried beans are great sources of protein as well. How about making re-fried beans from dried pinto beans? I get my almond flour from Barney Butter since I have an intolerance to peanuts. Barney Butter products are peanut free.
  10. Long before celiac diagnosis, my husband & I both were freaky about eating out. I can't even tell you how many times we got glasses or coffee cups that had lipstick on them, silverware that had food particles dried & stuck on, same thing with plates. The dishwashers don't do all that good a job of cleaning from what I've seen. For us, it took a lot of the joy & relaxation out of going out for lunch or dinner since after having found these things numerous times, we then learned to check everything every. single. time. Now? With as sensitive as I am, there's no way I would eat out.
  11. I'm just thrilled to hear how much better you're feeling now Fbmb!!! I know at first there, it was a bit rocky. You sound so much more relaxed now and much more sure of the diet. Wonderful news! I have not a worry in the world that your test will come back in normal range. You were only 1 point over last time the test was done. I know you are very careful & adhere to the diet strictly but I will wish you luck anyway even though I'm sure you don't need it.
  12. cycling lady has some great thoughts there! The things that stood out to me in your original post, were the gas station coffee pots & eating off the plates & using the silverware in the college dining area. This are things I would never consider doing & I am super sensitive. I don't trust anyone but myself! Well, I would trust cycling lady if I were at her house.
  13. First Biopsy

    I hope you get answers too but I'm really glad to hear he's willing to redo in a few more weeks. It sure sounds like you got extremely lucky with a dermatologist who actually knows what the heck he's doing when it comes to dh.
  14. The recipes in this cookbook are astounding!!! Sooooooo delicious! You really won't believe how much they taste like their gluten counterparts. Start with the original one & then later you can buy vol. 2. Seriously, I don't know how they figured out how to make these breads, pastries, biscuits, cakes, & so forth feel & taste like gluten food but they did. I bet your friends won't even notice it's gluten free! https://www.barnesandnoble.com/p/the-how-can-it-be-gluten-free-cookbook-americas-test-kitchen/1122425747/2678422088135?st=PLA&sid=BNB_DRS_Core+Catch-All,+Low_00000000&2sid=Google_&sourceId=PLGoP79700&gclid=Cj0KCQiAlpDQBRDmARIsAAW6-DNh-fx8Tm9KffJPd7Y5JIQ1nNqClji09TIXNZ29sf_Yv0fGgD2FZQAaAnaAEALw_wcB https://www.barnesandnoble.com/p/the-how-can-it-be-gluten-free-cookbook-volume-2-americas-test-kitchen/1121324127/2678424178353?st=PLA&sid=BNB_DRS_Core+Catch-All,+Low_00000000&2sid=Google_&sourceId=PLGoP79700&gclid=Cj0KCQiAlpDQBRDmARIsAAW6-DMx5BmbEgaOz8s34lQ3976nXvBWMylz6iLSr1L7zgAwW_cz1IBbAkwaAubPEALw_wcB
  15. Anxious about Biopsy (DH)

    Men are stubborn & don't know what's good for them especially when the wife tells them what's good for them. Ack! I told my hubs he had appendicitis but would he listen to me? HE blamed it on the turkey leg I had cooked & we BOTH ate. Ummmm, I was just fine so why was he so sick & in so much pain? He wasn't listening. 3 freaking days, 3 FREAKING days later he decides I'm right. He's one very lucky man that his appendix didn't burst on him. They took him straight into surgery from the ER.