• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

squirmingitch

Advanced Members
  • Content count

    3,840
  • Joined

  • Last visited

  • Days Won

    65

squirmingitch last won the day on June 21

squirmingitch had the most liked content!

Community Reputation

465 Excellent

About squirmingitch

  • Rank
    Advanced Community Member

Profile Information

  • Gender
    Female
  • Interests
    Gardening, birds, bees, butterflies and nature in general. Nature is a genius!
    "If there are no dogs in Heaven, then when I die I want to go where they went." ~~~ Will Rogers
  • Location
    United States

Recent Profile Visitors

19,199 profile views
  1. Non alcoholic liver disease is associated with celiac disease. My liver numbers were elevated in the year or two before diagnosis and I was dx'd with fatty liver (non alcoholic). After I went gluten free, my numbers came right back down to normal. I also had microscopic blood in my urine & had all kinds of tests & scans run for that until the docs just threw up their hands & said, "That's just the way you are". Guess what happened when I went gluten-free? Yep. All clear. I will caution you that you will need to eat gluten every day for at least 2 weeks for an endoscopic biopsy and for 12 weeks for any further celiac serum testing. Otherwise, you'll get false negatives. It's MUCH easier to just stay on gluten until all testing is done because after going gluten-free, we tend to have much more severe reactions to gluten. I am in agreement with everyone else. You need a celiac savvy GI. One positive on the celiac blood is enough to move forward with an endoscopic biopsy. Celiacs can be fat, medium or skinny. We come in all shapes & sizes. These darn docs that think you have to be wasting away don't know what they're talking about. I can't tell you how many overweight people we've had on here who the docs were just plain nasty too telling them to stop eating twinkies & such as that. Inexcusable!!!!
  2. All first degree relatives should be tested every 2 years in the absence of symptoms or immediately if symptoms present. It is hereditary and can present at any age. Make sure they are eating gluten daily for at least 3 months before testing if they have been gluten free. Welcome to the club you never wanted to be a part of. Check out our Newbie 101 pinned to the top of the Coping section.
  3. jenna3, you are going to feel human again!!! Do not stop eating gluten until all testing is done & over with. Have a gluten glutton fest. As soon as all testing is finished, then go strict gluten free. Read our newbie 101 in the link below. It will tell you how to keep yourself safe. You'll need to get some new kitchen items and do a lot of cleaning out of drawers etc...
  4. My dizziness took a while to go away & when it began to go away, it became fewer times per day until it would only be once or twice on some days. Just slowly lessening in intensity and occurrence. It took months, maybe 6 months or more but I can't remember exactly & didn't write down exactly how long each symptom took to resolve.
  5. You might want to be aware of higher iodine foods as well. For instance, noting if seafood makes the rash worse --- also carrageenan aka sea kelp aka sea weed & all the other names it goes by. Foods from the sea are very high in iodine. Iodine often makes the rash flare.
  6. I react much stronger & much more quickly GI wise, whenever I am exposed to barley malt than to wheat. See? Everyone is different.
  7. You can buy gluten free beers online & have them delivered right to your door. This is one example: http://www.bringonthebeer.com/Ground-Breaker-Brewing.html Or you could ask your local liquor store to order gluten free beer for you.
  8. Futaba Sesame Hijiki Rice Seasoning There is a recall on this product because it contains wheat, soy & other undeclared ingredients. See: https://www.fda.gov/Safety/Recalls/ucm563950.htm?source=govdelivery&utm_medium=email&utm_source=govdelivery
  9. You're so welcome! Honestly, this rash can truly make you think you're losing your mind. Yes, it can take years. It can take a LOT of years --- longer than 2, OR it can take only months. We can only speculate it has to do with how long you actually had celiac but didn't know it & assume that the longer you had it, the antibodies were building up under the skin. They take their sweet time going away too. BTW, most of us with dh tend to have fewer, milder gastro symptoms yet we still get the damage to our villi. 60% of the time we test negative on the celiac blood panel and that's because the antibodies are sitting under our skin.
  10. Woooooo Hooooooo!
  11. DH is extremely sensitive to the tiniest little trace of cross contamination. It's imperative that you make sure you get a solid handle on those accidental weekend glutenings. You see, with dh, the antibodies deposit under the skin and they can lay there for long times. They can lay there dormant so to speak ~~ where you don't have an outbreak ~~ & then one day BOOM! they decide to go nuts on you. That's the most crazy, mind blowing, make you nuts thing about dh. With dh, you can have outbreaks when you're not eating gluten OR not have outbreaks when you're eating gluten. In other words, the rash comes & goes at will. It will make you nuts. You can't figure it out, you can't predict it. I get that you want to know what it looks like when it's healing but I'm trying to let you know that even when the outbreak you're currently experiencing heals, that doesn't necessarily mean you will never get any more outbreaks. OK, for the short answer as to healing, it's kind of self evident. The lesions will scab & depending, you may scratch them back open again & this may happen several times & then one day it stops itching & the place(s) heal often leaving a purple coloration (sometimes white) that may fade to brown/tan & then eventually even that mark will go away.
  12. Thank you Scott.
  13. I just tried to quote Karen's last post about who fed the forum gluten. Great line Karen!!! Thanks for the laugh. Alas, the quote feature doesn't work for me either. Safari on a Mac.
  14. Hi & welcome Raelynne! I agree with the previous posts. I was dx'd with blepharitis of the eyes prior to discovering celiac. I also, for years, had a lot of clear to whitish mucous accumulation in my eyes all the time. I don't recall how long after going gluten free, all that went away. I want to mention one thing. My best friend (non celiac) had inflammation of her eyes & ended up being diagnosed with Rosacea although the ONLY place it presents is in her eyes. I never knew that before she was dx'd. Heck, I had no idea rosacea could affect the eyes at all. Here's some info. on rosacea. I'm going to copy & paste some interesting portions & also provide the link. Demodex mites[edit] Studies of rosacea and Demodex mites have revealed that some people with rosacea have increased numbers of the mite,[10] especially those with steroid-induced rosacea. On other occasions, demodicidosis (commonly known as "mange") is a separate condition that may have "rosacea-like" appearances.[13] A 2007, National Rosacea Society-funded study, demonstrated that Demodex folliculorum mites may be a cause or exacerbating factor in rosacea.[14] The researchers identified Bacillus oleronius as distinct bacteria associated with Demodex mites. When analyzing blood samples using a peripheral blood mononuclear cell proliferation assay, they discovered that B. oleronius stimulated an immune system response in 79 percent of 22 patients with subtype 2 (papulopustular) rosacea, compared with only 29 percent of 17 subjects without the disorder. They concluded that "[t]he immune response results in inflammation, as evident in the papules (bumps) and pustules (pimples) of subtype 2 rosacea. This suggests that the B. oleroniusbacteria found in the mites could be responsible for the inflammation associated with the condition."[14] Intestinal bacteria[edit] Small intestinal bacterial overgrowth (SIBO) was demonstrated to have greater prevalence in rosacea patients and treating it with locally acting antibiotics led to rosacea lesion improvement in two studies. Conversely in rosacea patients who were SIBO negative, antibiotic therapy had no effect.[15] The effectiveness of treating SIBO in rosacea patients may suggest that gut bacteria play a role in the pathogenesis of rosacea lesions. https://en.wikipedia.org/wiki/Rosacea Here's some info. on ocular rosacea: https://www.rosacea.org/weblog/ocular-rosacea-what-your-eyes-may-be-trying-tell-you
  15. My dog watches TV but she is discriminating in what she watches. She likes it when horses are on the screen. She will watch movies for long periods & then seems to get bored with them & takes a dog nap. She watches dogs when they are on the screen but not all dog breeds. She is a terrier breed & when she sees a terrier of any kind on TV then she perks right up & watches. She definitely recognizes all of the terrier group even if it's a mixed breed. She is apparently in love with "Eddie" on Frasier. So much so to the point that when she hears the theme song for Frasier, she runs to the TV to watch. She knows Martin's voice & knows Eddie is almost always in scenes with Martin. She hears Eddie's dog tags & perks up, watching attentively. I do an imitation of Daphne with her British accent saying "Eddie" and my dog runs to the TV (even if it's not turned on) to get a glimpse of Eddie. She comes to me sometimes when I'm at the computer & asks me to put on YouTube videos of terriers. She makes it perfectly clear that she wants to watch things on the computer.