Celiac.com Sponsor:
Celiac.com Sponsor:




Get email alerts Get Celiac.com E-mail Alerts




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

squirmingitch

Advanced Members
  • Content count

    3,728
  • Joined

  • Last visited

  • Days Won

    63

squirmingitch last won the day on January 8

squirmingitch had the most liked content!

Community Reputation

430 Excellent

About squirmingitch

  • Rank
    Advanced Community Member
  • Birthday

Profile Information

  • Gender
    Female
  • Interests
    Gardening, birds, bees, butterflies and nature in general. Nature is a genius!
    "If there are no dogs in Heaven, then when I die I want to go where they went." ~~~ Will Rogers
  • Location
    United States

Recent Profile Visitors

17,988 profile views
  1. Wooooooooooooooooooooooooo Hooooooooooooooooooooooooooooooo!!!!!!!!!!!!!!!!!!!!!!!!!!!! That IS indeed fantastic news!!!!!!! Great job!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
  2. Good girl! I think it's real smart to find a new specialist.
  3. Again: http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Can a skin biopsy for dermatitis herpetiformis (DH) confirm celiac disease or is an endoscopy still needed? A skin biopsy should be done on a non-affected portion of the skin near the rash when there is an outbreak. It’s not necessary to perform an intestinal biopsy to establish the diagnosis of celiac disease in a patient with DH; the skin biopsy is definitive. July, 2012 The intestinal biopsy is NOT the gold standard when dealing with dh!!!! NO intestinal biopsy needed! You would have to eat gluten for at least 2 weeks prior to an endoscopic biopsy or else you'll get a false negative. AND you know what eating gluten means for the dh right? Do you want to go through the rash again???? PLUS, those of us with dh tend to have patchier gut damage than "regular" celiacs so it's entirely possible he will miss the "sweet spots". Then he'll feel vindicated in saying you don't have celiac disease even though he doesn't know his head from his @$$. There is no reason for him to doubt your previous & longstanding diagnosis! I think you should print out copies & send them to this idiot & tell him to get up to speed!
  4. I am wondering why you're asking specifically about NCGI. Have you been tested for celiac disease?
  5. And make sure to keep him on a normal gluten diet!!!!!! VERY important!!!!!!
  6. You don't NEED to eat more than what cyclinglady linked you to but by all means, if you want to have a gluten farewell glut in case you DO have celiac, then this is your chance. Cyclinglady didn't tell you but she makes no secret of the fact that she went whole hog on sourdough bread in the time leading up to her endoscopy. If I recall correctly, she said she ate a loaf per day. So pick your favorites & pig out.
  7. I am with GFinDC's interpretation of your test results. That is a positive result. Know how I know? Learned that little piece of information in grade school in math class. This mark: < preceding any number means less than; it does not mean = to. Thus, <20 means any result below 20 is a negative result (that would be 0 through 19) and any result that is equal to or greater than 20 is a positive result. I say fine, do whatever you want to do; it's your life and your health and you will be paying the piper, not us. You are adamant in your beliefs and nothing anyone has said or linked you to has changed your mind so go ahead & do what you seem to want us to tell you to do. Don't have the endoscopy & find out for sure if you are celiac or not. Instead go your route & go gluten free for a few years & then have a little bit of gluten now & again. I hope it doesn't kill you.
  8. Furthermore, you were gluten free for 5 long years & unable to complete the gluten challenge for the endoscopic biopsies so of course it was negative. The specialist is an idiot! As Karen linked, you had a positive biopsy for dh & that is definitive. No further testing is needed to confirm a dx of celiac. You might wish to teach the specialist though by sending him a copy of what Karen linked as well as this: http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/
  9. Could you please give a link to that information DebNC84? What kind of supplements? For what purpose? My husband & I were beekeepers and never were the bees given any supplements other than sugar water to tide them over during lean times. The only other thing they were given to eat were antibiotics if needed and those were administered by mixing with powdered sugar. Bees don't eat wheat flour or soy flour so that's why I am asking where you found that information.
  10. When you get home from work, turn the oven on @ 400 degrees, line a pan with tin foil, throw chicken wings on it, salt & pepper & go get changed out of work clothes etc.... 30 minutes is all it takes for the wings to be done. When cool, throw them in a ziplock & toss in the freezer. Take out as many as you want & nuke them when you want to eat them. For that matter, you could skip tin foil in the pan & just buy some of those disposable foil pans. It's so simple & requires almost no effort. If I'm going to have some of the wings right away, then I wash a potato, dry it, slice into 4 quarters lengthwise & rub with olive oil. I lay those in the pan with the chicken. All done at the same time.
  11. Dear egs1707, Please read this with an open mind. My intent, truly, is to try to help you. Until now, I have pretty much stayed out of the fray here on this thread although I admit to having been tempted many, many times to say my 2 cents worth. I will preface my remarks by admitting that I am not good at diplomacy. I tend to be blunt but please believe me when I say that I am not trying to hurt you in any way. Here goes...... I have rarely "seen" anyone as consistently negative as you. You take every single thing in the most extreme negative possible. Over the course of reading your posts I have gotten the feeling that you have always been this negative. If not always, then for many, many, many years. You talk of how quickly your friends dropped you when you said you have a problem with gluten and how they made fun of you & made you the butt of jokes. We all said those kind of people are no friends at all & you are well rid of them. Now I rethink that and have to think your negativity for so many years is the true reason these people have turned on you. Perhaps it really isn't about your food intolerances at all but that just provided the final excuse for them to "get rid of you" & kick you to the curb for once & for all. I still don't agree that being so mean & nasty is a good way to treat anyone but they may feel they have been driven to it by the way you are such a major downer 24 hours a day, 7 days a week, 365 days a year. Ones mental state affects their physical state in a huge way. If you continue to look at everything through a black cloud then I fear you will never be healthy physically. You need to try very hard to turn your outlook around. Can you try to say ONE good thing each day? Start with just ONE thing. Then make it 2 positive things each day. Then 3 and so forth. Then also begin to NOT make a negative statement that you were going to make. Just keep that comment to yourself & don't voice it. Then try to keep 2 negative comments from being voiced, then 3 & so forth. You see, we get into habits and it seems your habit for negativity is deeply ingrained at this point. IMHO, I believe you can wean yourself off if you try hard.
  12. HI Shollie, soory I'm so late to the party but I've been pretty busy with some things in my life & didn't have time to post. 60% of those with dh test negative on the celiac blood panel. You'll need to find a derm who is experienced in dh. So very many derms dismiss it out of hand and say it's eczema, psoriasis, bed bugs, & so on & so forth. They prescribe creams & pills that don't do any good if one has dh. The problem is that it's usually steroid creams or meds & the use of those skew a dh biopsy & give a false negative. If you've taken oral steroids or steroid shots within 2 months prior to a dh biopsy then you most likely will get a false negative. The biopsy MUST be taken ADJACENT to a fresh lesion NOT ON ONE!!! This is of the utmost importance. Scratching can destroy the pattern pathology will be looking for so try not to scratch. yeh, I know, easier said than done. You still have to be eating a regular gluten diet even for the dh biopsy or you'll get a false negative. Why go for a dyed in the wool dx? Because you're going to have a child and you might end up having many children. Celiac is a genetic disease, so your kids could present with celiac at some point. If you have an official dx of celiac then it will be sooooooooooooooooooooooo much easier to get your kids tested. All first degree relatives should be tested every 2 years in the absence of symptoms and immediately if symptoms present. The best way to learn is just to read thread after thread after thread in this dh section.
  13. Try ditching the oats. Something like 8% of us can't tolerate oats even purity protocol grown oats. Also I will echo what cyclinglady said about whole foods. Eat strictly whole foods for a good 3 months & see how you feel.