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Gemini

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Everything posted by Gemini

  1. Gemini
    But do you think they really felt well before the diagnosis? Sometimes, the downhill slide is so slow, you do not realize how bad you really are and then it's hard to make a comparison. It really can take a long time to heal well and that is something people don't really understand today. I went 3 full years before all of my symptoms went away. I have...
  2. Gemini
    Who is arguing? I was making a point but, apparently, it was lost on you.
  3. Gemini
    God does have a plan.....maybe you don't see it? The world is not supposed to be perfect, otherwise, people would never learn from their mistakes. Life is a learning process. I have never considered this a BS disorder because I have adapted well and live a normal life. Is it convenient? No, but that's the worst thing I can say I've encountered when learning...
  4. Gemini
    I haven't even bothered to look at this article because there has already been enough alarmist stuff printed about Celiac without adding to it with another. I do agree with you Tom and if people have the expectation that they probably won't heal, then they probably won't. I was in pretty bad shape at diagnosis with virtually no villi left yet, after...
  5. Gemini
    With that many rounds of antibiotics and from the symptoms you describe, it sounds like you have a whooping systemic candida infection. I have been through this twice, pre-Celiac diagnosis and needed to do the Candida diet with anti-fungals to make it all better. However, this is your second problem. Were you diagnosed with Celiac via blood work? I ask...
  6. Gemini
    Cathey....you stayed in a lighthouse? May I ask where? I used to go to Newport a lot but haven't been in a long while. I did not have any experience with finding gluten-free places so was really impressed with what you found. I had no idea you could stay in a lighthouse, though.....very cool!
  7. Gemini
    I missed this reply you made and wanted to clarify the problem with Lindt chocolates. The gluten in Lindt is from barley and in the States, barley is not one of the 8 major allergens that require label warnings...that's where the ingredients listings come into play. This is the learning curve we are talking about and it can seem confusing and daunting at...
  8. Gemini
    If you haven't been on the diet very long, then you may want to wait a bit before considering surgery. All of your symptoms and blood work issues scream of Celiac Disease but can all be calmed down and improved upon over time. I have been doing this for just 7 years, next month, and with each passing year, am getting better and better. You may even have...
  9. Gemini
    The information came from a hematologist/immunologist I saw for wonky blood results. As ANA is a general test for inflammation, anyone could have an out of range ANA today because inflammation from various sources is rampant. Her explanation was that as Celiac can cause such widespread damage and inflammation, her experience has been that most of her autoimmune...
  10. Gemini
    I have never gotten the results from any other kind of exercise that I am seeing and feeling now from weight training. Plus, as a Celiac, you need to do bone building exercise to avoid osteoporosis. The other stuff you are doing is very good and should be kept up as you enjoy these but maybe add some weights while you are walking? Hand held weights or a weight...
  11. Gemini

    ARCHIVED Are All Gastro Dr's Inept?

    Gemini replied to Littllemel's topic in Doctors

    Yup...you sound like me. I would say you have Sjogren's. I would suggest trying Biotene mouthwash. It's for dry mouth and has a nice light minty flavor. Use it whenever you feel the need and especially before bed. It does help but you will still wake up with a dry mouth. 7-8 hours is a long time for a mouthwash to keep working. There will be...
  12. Gemini

    ARCHIVED Are All Gastro Dr's Inept?

    Gemini replied to Littllemel's topic in Doctors

    I have Sjogren's Syndrome and have a few questions for you. Are you diagnosed with it or are your symptoms making you believe you do? Like Celiac Disease, the antibody testing for Sjogren's, called SS-A and SS-B, does not always show positive, even if you have the disease. It's the way things go with autoimmune diseases. I tested VERY positive for Sjogren...
  13. Gemini

    ARCHIVED Are All Gastro Dr's Inept?

    Gemini replied to Littllemel's topic in Doctors

    No...you are not overreacting at all and I can completely identify with your experience, as many others on this forum will most likely chime in on! I could diagnose Celiac Disease better than most GI docs out there, without the endoscopy. Rather pathetic, isn't it? Always, always trust your inner voice with regards to Celiac because the GI doc population...
  14. Gemini
    Not all soy is GMO....you have to do your homework. It also does NOT mess up hormones in all men and women. Those who are sensitive or intolerant of soy definitely should avoid it but there are many people, myself included, who can tolerate good soy products without issue. I am post menopausal..there are no hormones left to mess up! As far as Chipotle...
  15. Gemini
    Yes, that was exactly what I was trying to convey, IrishHeart. My goodness, I don't have a Ph.D. and it's perfectly self explanatory to me. I am extremely serio-positive in all my autoimmune problems so using the available testing methods work well for me and for anyone else in the same shoes. My last testing came as close to zero as you can get, I am completely...
  16. Gemini
    Two words......weight train! I have never had to worry about my weight, either, but needed to weight train to battle osteoporosis. The lovely little side effect of serious weight training is once your muscle mass becomes leaner, you burn a hell of a lot more calories. I can literally eat whatever I want, whenever I want, and my weight stays stable...
  17. Gemini
    Takala...you need to lighten up and not take yourself so seriously! Do you always become so highly insulted over basic information? As far as what you think "my job" is here, let me correct your incorrect statements. I defend reputable companies from malicious Celiac rumors that perpetrate nonsense they are not safe. News flash....the world is not...
  18. Gemini
    Actually, having Celiac can cause elevated ANA levels. ANA only tells you that you have inflammation in your body and any number of autoimmune problems can elevate numbers. Mine has been elevated for years and has been slowly coming down the longer I am gluten free. Having any autoimmune problem can elevate it. As far as plastic surgery is concerned, from...
  19. Gemini
    Yup, that is correct but it's no different than any other tea out there. The herbal flavored and some of the green flavored tea's are not but the black tea is OK. If you do your research, this information is readily available. I always ask for Starbucks ingredients listings and never had a problem getting that info from them. I go to Starbucks at least ...
  20. Gemini
    Alissa.....that is just a CYA statement from Starbuck's. There are plenty of cold drinks that you can safely have there and are gluten free. Ice coffee, the unflavored ice tea's, their shaken lemonade/ice tea (with black or plain green tea) are all gluten-free. That would be the one made at the counter, not the bottled lemonade/ice tea drink. If you tell...
  21. Gemini
    In people with elevated IgA pre-diagnosis or who were diagnosed via blood work, the AGA IgA/IgG and DGP tests for dietary compliance are extremely reliable and can be trusted upon to prove dietary compliance. If a person is symptomatic and had negative testing on re-test, it most likely is another problem not related to gluten ingestion. It may not be so...
  22. Gemini
    Oh.....this is very good, Skylark! I think all your suggestions work better than being over the top concerned about sensitivity and worrying about all the gluten in the world. You need to relax if you want to heal and absolutely exercise. I took my recovery up a few notches when I started weight training and cardio. I can go into a session feeling crappy...
  23. Gemini
    I am a sensitive Celiac also...very, and I am careful as I have to be without becoming OCD about it. Yup, there is a lot of that going around and you cannot just keep blaming sensitivity. No one has to worry about being glutened from doing someone's laundry, unless you ingest clothing with gluten on it. We are straying way off topic from how this disease...
  24. Gemini
    Yeah, baby! I love fig newtons!
  25. Gemini
    This is good advice! I weight train and let me tell ya......I have had to go back to eating more grains and bread because it's the grains and bread that make people gain weight, not meat, veggies and fats. When you exercise, you are just burning it all off. Carbs put the pounds on. Although I have to admit, I can eat anything and everything because of...
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