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Gemini

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Everything posted by Gemini

  1. OK...now I have to get into this deeper than I thought I would! I have a wooden block that I store my knives in and in no way is it harboring bacteria. I could see from some other kitchens I have been in that this could happen because some folks do not care about cleanliness. I am anal about it and if someone wanted to call me anal regarding my cleanliness...
  2. Good answer, Sylvia! I, too, have a nice set of knives and did not ditch the block because it cost too much to do so but I wash the knives well before putting them away. Can't harbor gluten that isn't there!
  3. They always do that! They blame the patient when they can't figure it out. I think it wrong to just measure tTg over a certain number because then you don't know if it is coming down unless it dips below that threshold. Yours could have been 300 for all we know. If you feel like a new person, then congratulations on a job well done. That is the sign that...
  4. You can absolutely have false negatives on your thyroid panel. I never did but I know many people with classic low thyroid symptoms and their blood work doesn't look bad enough for most doctors to treat. My TSH was only 7 when I was diagnosed and that is not that far off the scale but I could literally not get out of bed in the morning. I was the walking...
  5. Hi Carla, Your IgA/IgG antibodies are coming down very well, which means you are not ingesting gluten so stop worrying about that. If you were, those numbers would still be higher. The vast majority of people also do well with processed gluten-free goodies...they are not as contaminated as some claim they are. If they were, no one would heal. It's...
  6. Every single one of your symptoms screams of very low thyroid....had all of them at one time or another myself. I doubt it's a vitamin deficiency. Have a full thyroid panel done because you need thyroid hormone! You also need health insurance because you have many symptoms that cannot be ignored. If you go to the ER, you cannot be turned away.
  7. I think you explained food intolerances quite well, IrishHeart, and your explanation was 100% correct. If some choose not to believe the truth, then there isn't much you can do to help them. The hardest part is getting across to people how long recovery can take and in that process, you may not be able to tolerate other foods for awhile. There is evidence...
  8. Rice is gluten free so there is no cross reactivity with it. The reason people become lactose intolerant with Celiac is because lactase, the enzyme that breaks down lactose, is produced in the tips of the villi and when they become damaged, you cannot produce it so you cannot digest milk. This can reverse itself in some people but not everyone has that experience...
  9. Sounds like you need another dental office and it's not because of the gluten issue...they are just plain rude. I will tell you that going to the dentist should not be a problem. I have had tons of dental work done....implants, crowns, fillings...you name it, I have had it done. I have researched dental products as completely as anyone can and never came...
  10. It is not mandatory for you to eat a 100% whole foods diet initially when diagnosed. I was as sick as sick gets with this disease at diagnosis and weighed 97 pounds, soaking wet. I always ate a lot of unprocessed foods and continued to do so after diagnosis but I needed to gain weight. You don't gain weight easily on a whole foods diet. So I ate gluten...
  11. Here is a small guide to help those new to the diet.....Open Original Shared Link
  12. You can trust Annie's salad dressing. I am extremely sensitive and generally will not buy products from shared lines as I get sick but I have never gotten the least bit sick from any of Annie's products. They label the gluten-free ones as such and do a good job of making sure there is no cc problem. You may have additional intolerances if you are not...
  13. Gemini

    ARCHIVED Why, Oh Why?

    Skin testing is for IgE allergy issues, not intolerances. Looks like the doc thought she had an allergy. You have to eat gluten to provoke a reaction so putting it on your skin is a joke. That's as bad as US doctors running the wrong Celiac blood panel tests and they do it all the time. Let's face it folks...doctors want to diminish the prevalence of...
  14. Bob's Red Mill allows no more than 19ppm, according to their website, but as they are a dedicated facility and go to great lengths to ensure their oats are not cc'd, the 5ppm is probably more in line with what they produce. Just because a company tests to a certain standard, does not mean that amount of gluten exists on a regular basis in their product....
  15. Thank you for your insight on this....it makes perfect sense to me so why a doctor can't figure this out is beyond my understanding. Your last sentence pretty much said it all....we should be wearing T-shirts with this on it! My brother takes a pill for every problem he has. He's up to about 12 pills a day and his kidneys are a mess. Most likely,...
  16. OK....his IgG is inching towards the higher end of normal there and his tTg is really high. I am confused about the EMA (the first test listed) as that is usually not a number but a positive or a negative. It is highly specific for Celiac and when you have a positive EMA and a positive tTg, you have Celiac Disease, regardless of what a doctor may tell you...
  17. I have never heard of a diabetic requiring less insulin after using probiotics! That is so interesting and like you, Irish, my brother is a Type 1 who I just know has Celiac also. Why? Because his health has always been poor in the way Celiacs suffer before diagnosis. He had bouts of diarrhea so severe, it debilitated him but his doctors claim that's from...
  18. Stephanie...I have pointed this out a million times on this forum and still am surprised to hear that doctors mistakenly use the tTg test to monitor for gluten ingestion. Are they running the AGA IgA/IgG or the Demeadiated Gliadin Protein test also? Those are the ones that will tell you if he is ingesting gluten, if he was diagnosed via blood work. The...
  19. This is excellent advice! I, too, have Hashi's and although I was very positive as far as my blood work went, not everyone has that experience. It's an autoimmune disease and like all the others, you can have symptoms long before it shows in your testing. That's why it's so hard to diagnose sometimes. Doctors are trained to only look at test results and...
  20. The reason they do these invasive tests before blood work is, quite simply, they make a lot of money from them. It is always prudent to do blood work or other less invasive tests first but that's not the mind set of the medical community these days. It's up to the patient to request those first. The remark he made about it not likely being Celiac because...
  21. Lupins are only a problem for people with peanut allergies, not gluten free folk. You never know what people may be allergic to but that's not a good enough excuse to prohibit food from the food chain. You cannot please everyone and people should not expect the food industry to make food that is safe for everyone out there (from an allergen point of view...
  22. I have only found Bi-Aglut on-line also. The place I buy it from is an Italian importer out of NY. Company name is Quattrobimbi...if you google it you'll find the website. There is another pasta they sell, Le Venezianne, that is absolutely delicious also. It is a corn pasta for those who fear lupin flour! I eat these 2 and I just cannot eat any other...
  23. I'm sure a few Celiacs have had villous atrophy from eating oats but I am pretty sure it is in the minority, otherwise oats would be excluded from the diet by most Celiac organizations. I think I made a point of saying you should include this grain in your diet but go slowly and stop if you have any problems with it. If I am feeling well after many times...
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