TrillumHunter
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Latest Celiac Disease News & Research:
Everything posted by TrillumHunter
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ARCHIVED Stand Mixers Vs Hand Mixers
TrillumHunter replied to FranDaMan's topic in Gluten-Free Recipes & Cooking Tips
Dissenting vote--I have a six year old Ultra I don't like. After about two years the motor quit changing speeds. It basically has slow and medium but no in between speeds. I'm looking at a Bosch now. -
ARCHIVED Do I Need To Have The Biopsy Done?
TrillumHunter replied to pinksmashing's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I forgot to say that I think you have a pretty savvy doctor. If your only symptom is Hashimoto's and she did a celiac panel then she is way ahead of the curve on autoimmune issues. I would trust her. -
ARCHIVED Do I Need To Have The Biopsy Done?
TrillumHunter replied to pinksmashing's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I learned a lot from Celiac Disease: A Hidden Epidemic by Dr. Peter Green. It is well worth having. My dr. did not think an endoscopy was necessary. Many physicians agree with this approach. I think it is up to you. One thing to remember is that a negative endoscopy DOES NOT mean you don't have celiac. The pillcam may be the answer to the positive... -
ARCHIVED Newbie Here
TrillumHunter replied to Soccerspin's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Biopsy as the only true way to diagnosis celiac is very questionable. Biopsy does not always catch the patchy damage that celiac causes. This is the focus of a number of researchers and isn't true in other countries that have a far better track record for diagnosing celiac. Biopsy is a tool to be used in companion with the celiac panel and a trial of the... -
ARCHIVED I'm A Proud Momma!
TrillumHunter replied to amybeth's topic in Introduce Yourself / Share Stuff
Congratulations to you both! Grow, Nathaniel, grow so you can go home to Mom and Dad! -
ARCHIVED What Does Weak Positive Really Mean?
TrillumHunter replied to WorryMom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think in your heart you know the answer. Fidddle-Faddle is right about all of it. It is an either or not situation not a matter of degrees. If you retest in a year and the levels are high enough to satisfy the drs, that means you've spent a year of your son's life poisoning him. It sounds like he did get the panel but only broke the threshold on the... -
ARCHIVED Scope Coming Up Really Nervous
TrillumHunter replied to ravenwoodglass's topic in Coping with Celiac Disease
The Special K20 protein water is gluten-free. Maybe you could try that? The prep is very unpleasant. I think the liquid diet is a great idea beforehand. If you can stand it, you might go low residue the week before as well. Also, my dr said once what's coming out looks the same as what went in, you can stop. As far as the procedure, it's one of those... -
Oh, can I come!!? It all sounds really wonderful and delicious. Have a great time and enjoy yourself! Do think someone will ask, "Is this really gluten-free?"
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ARCHIVED New Celiac Vaccine Video
TrillumHunter replied to irish daveyboy's topic in Publications & Publicity
Nope, not for me. I wouldn't want to be a guinea pig and I'm eating much healthier on a gluten-free diet. I feel better at forty than I did at twenty. -
ARCHIVED Peripheral Neuropathy And Heat
TrillumHunter replied to schmoogilah's topic in Coping with Celiac Disease
Sounds familiar. PN was my first symptom. It was much worse when I got hot. I was told it was most likely MS as I did have abnormalities in my MRI. That or just nothing. After suffering with it, and it is painful, for about eight years a neurologist diagnosed me with pernicious anemia--b-12. Her words were, "I don't know how you're walking around with... -
ARCHIVED Weakly Positive-waiting For Doc's Explanation
TrillumHunter replied to Seamuskitty's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with Momma Goose. She seems pretty unfamiliar with celiac. GI's typically manage celiac patients as it is a gi disease---that affects your whole body! If you decide to see a gi, I would recommend getting in touch with a local group to find the most celiac friendly dr. Otherwise, you could just be wasting your time. -
ARCHIVED I Need Some Advice Please!
TrillumHunter replied to Tiff's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Why keep guessing? If you are still eating gluten, go and have a celiac panel drawn. It's no big deal, just a blood draw. Your symptoms are consistent with celiac. Also, you'll find lots of folks with a dual diagnosis of celiac/Hashimoto's thyroiditis. I wouldn't do any detox until I had the panel run for celiac. Just my .02. Best wishes for... -
ARCHIVED For Those Who've Had Peripheral Neuropathy Or Still Does
TrillumHunter replied to mindyandy420's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Left here, as well. -
ARCHIVED Weakly Positive-waiting For Doc's Explanation
TrillumHunter replied to Seamuskitty's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's positive. You don't have degrees of celiac, you just have it or you don't. So, WELCOME TO THE CLUB! It sounds like you've already seen the positive impact avoiding gluten can have on your life. As you heal and adapt to the diet change, you'll be surprised at the issues that will clear up. You'll have lots of questions and times when it seems... -
ARCHIVED My Brother Makes Fun Of Me By...!
TrillumHunter replied to Gluten-free-for-me's topic in Parents, Friends and Loved Ones of Celiacs
At 15, that is remarkably immature behavior. I disagree with your dad's take on it. Like someone else told you, I would talk to your dad again and tell him how it makes you feel. Try to do this at a time away from when the taunting has happened. You're twelve and we're asking you to be very mature about this. Also, please try to keep any hint of a whine... -
ARCHIVED Positive Side Effect!
TrillumHunter replied to digmom1014's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am noticing that as well. They are super hard now. I used to have a funny curve to a couple of them but no more. I have to cut them down every two weeks to keep them a reasonable length. I think I will go get a manicure! -
ARCHIVED Ezekiel Bread / Sprouted Bread
TrillumHunter replied to TiffLuvsBread's topic in Gluten-Free Foods, Products, Shopping & Medications
David, your recipes are FANTASTIC! You're site is a go-to for me! That's a great place to start if you're looking for recipes. -
ARCHIVED Bob's Red Mill?
TrillumHunter replied to darkmoonsinger's topic in Gluten-Free Foods, Products, Shopping & Medications
Good thinking! I have never tried oats at all so that wouldn't have crossed my mind. You get the Sherlock Holmes Award of the day! Jamie, hang in there. It gets easier and you can find stuff you like and can tolerate. It just takes longer for some. -
ARCHIVED Ezekiel Bread / Sprouted Bread
TrillumHunter replied to TiffLuvsBread's topic in Gluten-Free Foods, Products, Shopping & Medications
Begging your pardon, my dear. I thought you were looking for alternatives. Unless a commercially produced bread states that it is gluten-free, you can assure yourself it is not. No variety of wheat, barley or rye, no matter how ancient the strain or preparation method, is safe for people with celiac disease. Additionally, consuming low gluten foods on... -
ARCHIVED Bob's Red Mill?
TrillumHunter replied to darkmoonsinger's topic in Gluten-Free Foods, Products, Shopping & Medications
Bob's Red Mill is one of the mainstream companies that takes extra steps to ensure our safety. If the product says gluten-free then it is produced in a dedicated facility and batch tested. Perhaps you are having trouble tolerating one of the flours in the mix? Bean flour is hard on the tummy for most newly diagnosed folks. I don't work for BRM. ... -
ARCHIVED Ezekiel Bread / Sprouted Bread
TrillumHunter replied to TiffLuvsBread's topic in Gluten-Free Foods, Products, Shopping & Medications
A third no. For variety you could try waffles, wraps, or lettuce leaves. No need to limit yourself to traditional bread! -
ARCHIVED I Truly Wonder If All The Worry About Food Is Worth It?
TrillumHunter replied to peacebwu's topic in Coping with Celiac Disease
Unless your specifically buying gluten free ones, rice krispies contain gluten in the form of malt from barley. They're are also pretty empty nutritionally speaking. I would encourage you to consider what tarnalberry has said. You CAN branch out from your short list. And please consider giving up commercially processed foods for a while. A... -
ARCHIVED I Truly Wonder If All The Worry About Food Is Worth It?
TrillumHunter replied to peacebwu's topic in Coping with Celiac Disease
So, you ate chicken bullion cubes and arrowroot cookies? Well, I'd tell you both those things are pretty crappy foods. Could you dedicate yourself to eating whole foods for a while? No msg, so chemical soup, no complex thickeners and binders, just food. The rule would be that it needs to look exactly like it did when it came off the plant, tree or out of... -
ARCHIVED In A Food Rut
TrillumHunter replied to GlutenGalAZ's topic in Gluten-Free Recipes & Cooking Tips
Frozen grapes. Really, they're a different from unfrozen. They're so yummy as they thaw a bit. -
ARCHIVED Anybody Else Sensitve To Light
TrillumHunter replied to srthomas21's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's something that cleared up for me as I have healed. I do think it was related to deficiencies.