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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    Great article, thanks for posting this.
  2. ravenwoodglass

    ARCHIVED Not Feeling So Good!

    ravenwoodglass replied to lillylou's topic in Doctors

    Although the bread mix is gluten free it does contain flours that most of us have not consumed a lot of before diagnosis. I would drop the bread for bit and see if you feel better then perhaps try it again after you have felt well for a month or so and see if it bothers you again. When I think of eating simple I think of foods that have a minimum of ingredients...
  3. ravenwoodglass
    260 is barely over the lower 'normal' lower limit for B12. It is very common for celiacs to be low in B12 because the area damaged by celiac helps us absorb it from our food or supplements. Have you had other B12 tests run before? I would be willing to bet that they show a steady drop over time. I could of course be wrong about that. When you are done...
  4. ravenwoodglass
    Yes your feelings are normal. ((((((((((((((hugs))))))))))))) If you haven't already you should add some sublingual B12 to your vitamins. You may not be able to absorb and utilize it yet through the ones you swallow.
  5. ravenwoodglass
    When you say they are allergen free does that mean no soy? I have wanted to order one but so much gluten-free stuff has soy too.
  6. ravenwoodglass
    I agree with the previous poster. It is highly unlikely that this would be cancer. You sound like you are really having some nasty effects from being off the diet. Why are you not going back to it?
  7. ravenwoodglass
    Welcome to the boards. You do sound like you very well could be one of us. They do not check for celiac in a colonoscopy as the small intestine is the one affected and the colonoscopy only checks the large. The test done for celiac is the endoscopy. If you think you may want to get an endo done for confirmation do NOT go gluten free yet. There is the...
  8. ravenwoodglass

    ARCHIVED Not Feeling So Good!

    ravenwoodglass replied to lillylou's topic in Doctors

    I am sorry you are still feeling so bad. Are you on any medications or supplements? If yes have you checked with the maker to be sure they are gluten free? Are you taking precautions against cross contamination? For example you need a dedicated gluten free toaster, your own condiments and nut butters etc to prevent CC from gluten eaters in your home ...
  9. ravenwoodglass
    You do need to be eating a full gluten diet for testing. You should get back on gluten now and then when all testing is finished give the diet a try even if the tests are negative.
  10. ravenwoodglass
    Yes continue eating gluten until you are done with all testing. The GI doctors are the people to speak to about testing. They will do blood testing and possibly an endoscopy. You may want to call the office and speak to a nurse now and ask if the doctor can order a full celiac panel for you. Tell them you strongly suspect that this is the problem and that...
  11. ravenwoodglass
    If a doctor defined diagnosis is not something you feel you need you could simply try the diet strictly for a bit and see if it helps. It would be a good idea to also avoid dairy at first as you may not be able to digest it well until you heal. You could also go with Enterolab testing for antibodies as a part of the diagostic process, they can be ordered...
  12. ravenwoodglass
    Celiac does not cause a weakened immune system, it does the opposite. It puts your immune system into 'hyperdrive' to such an extent that it attacks not only what it should attack but also the body itself.
  13. ravenwoodglass
    That is really the key. In my state you can call the office that deals with the jury pools if you have any type of question or concern. You don't have to stand up in front of everyone and talk about your issues, well unless you wait until the day you have to go to notify them. There are some of us that have other issues that have come from having celiac...
  14. ravenwoodglass
    I have used it with no problems. If you call the number on the package they can tell you for sure but last I checked, and it was awhile ago, it was safe.
  15. ravenwoodglass
    Celiac is covered under the ADA. It might help to have your doctor write a note and also let them know that once you are more used to the diet and your body heals the living in the bathroom effect should be over. If you are newly diagnosed you may want to consider trying to take a couple weeks sick leave until you are firmly knowledgeable about the diet...
  16. ravenwoodglass
    Unfortunately your reaction is not unusual. Oh how I, and I am sure many others here, wish that our body would just explode the gluten out and then everything would be over. Once those antibodies start reacting it can take a while for them to calm down again. For me the gut stuff takes from 3 days to a week to be totally over but the joint and muscle pain...
  17. ravenwoodglass
    Although distilled gluten grains are considered to be gluten free there are some of us who will react to them. If you are new to the diet I would advise passing on it until you are well healed and then trying some in small amounts daily for a week or so to watch for a reaction. Chances are you will be okay but there is the chance that you may be someone...
  18. ravenwoodglass
    It sounds like you are healing well. You are only a little over a month into the diet and it does take time for the antibodies to leave the skin. Make sure all your topicals are gluten free and if you do choose to go with dapsone make very sure they do blood work on you before you take it. It is not a nice med for some and can have some serious side effects...
  19. ravenwoodglass
    You need to go back to basics with the diet and avoid processed foods as much as you can. Also check all meds and supplements and check all your toiletries. Think back to when this began, what are you doing different? Have you started doing crafts or home remodeling? Many items used for those are not safe to use without protection in the form of gloves...
  20. ravenwoodglass
    IMHO it was too early for them to test you again. Most times it is advised to wait for 6 months to retest. It takes time for the antibodies to leave the system. If you are feeling better keep at it and try to go with as much fresh unprocessed foods as you can. If you still seem to be reacting to stuff a food log can help to pinpoint where gluten could...
  21. ravenwoodglass
    Gene testing cannot diagnose celiac. It can tell you what associated genes you may carry and can be part of the diagnostic process but they are not diagnostic in themselves. In addition many times only DQ2 and DQ 8 are currently tested for but there are at least 7 more genes that are associated with celiac disease. My DD was diagnosed by both positive...
  22. ravenwoodglass
    How about a nice warm loaf of crusty italian bread and a block of romano cheese. Oh and chicken noodle soap with oyster crackers. On a different note, please be sure not to take the results of the endo as 'gospel' if they should happen to come out negative. False negatives abound with both blood and biopsy. Since your blood tests were positive there...
  23. ravenwoodglass
    I agree with the others, any amount is too much. With celiac it is not the amount of gluten consumed that makes us sick it is the antibody reaction that it causes. Those antibodies are activated with even a tiny amount of a gluten grain.
  24. ravenwoodglass
    I hope you have a wonderful day!!!!
  25. ravenwoodglass
    The NIH is the National Institute of Health. If you do a search putting in NIH and the product name it may come up in the results if they have a listing for the product.
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