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GFinDC

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Everything posted by GFinDC

  1. GFinDC

    ARCHIVED Coeliac Pain

    GFinDC replied to mick's topic in Coping with Celiac Disease

    Hi Mick, I hope you found some answer for the question. Here is recent thread about this issue: https://www.celiac.com/gluten-free/index.ph...mp;#entry534573
  2. GFinDC
    Happy Memorial Day Weekend! There is a thread on Columbus, Ohio linked below, it is in the Celiac Meeting Room forum on this board. The thread has some suggestions for stores to get gluten-free foods etc. You can develop some serious nerve conditions from gluten exposure, look up gluten ataxia for info. It's nothing to fool around with. Did I manage...
  3. GFinDC
    The advice to eat simply at first and cut out processed foods is good. When you are first starting out on the diet you want to give your body every chance to heal you can. That means not taking chances on food you aren't 100% sure about. If you can stick with whole foods you avoid lots of possible cross contamination issues, lots of preservatives, lots...
  4. GFinDC
    Totally agree here. I was very surprised to find my sensitivity to gluten got extreme after going gluten-free for a few weeks. I think of it as my body's immune system actually got a chance to rest and go back to a somewhat normal state for a while, as compared to pre-gluten-free when it was constantly fighting off the gluten invaders every day. Well rested...
  5. GFinDC
    Another thing to think about is what tests are recognized by the NZ health department or the evaluators who will review your case. That might be worth a phone call or letter to them to get a list of valid tests. And it seems to me maybe discussing your situation with them is worthwhile anyway. They may have run into similar situations and have some way...
  6. GFinDC
    I take DPP-IV for gluten cc incidents. I read somewhere that it might help break down casein. But, having tried it, I think it is minimally helpful for casein. If I eat dairy I can't get to sleep, which I think is due to the casein , not the lactose. The lactose doesn't really bother me if I take a few Lactaids pills now. I used to get GI problems from...
  7. GFinDC
    I think hard cheese also. You can also take come lactaid rand pills with the cheese and see if you still have a reaction. The Lactaid digests the lactose sugar, so it you take 3 or so Lactaid pills and eat a small amount of cheese that should be a good test. Around DC they have Lactaid milk in stores also but I don't know how much lactose is left in them...
  8. GFinDC
    I had a sudden onset of lactose intolerance. I used to work in an office building with a cafeteria. I ate their frozen yogurt several times a week. I got a kind of cold/bug thing that made my joints hurt and my neck stiff or a 4 or 5 days. The next time I ate the frozen yogurt I had the usual GI problems. So, yes, that symptom was sudden. I'd always...
  9. GFinDC
    Here is another recent thread about this issue: https://www.celiac.com/gluten-free/index.ph...mp;#entry534573
  10. GFinDC
    Hi Sylviann, I have a reaction to casein that is very pronounced. I just plain can't get to sleep if I eat dairy. It takes me 3 days to get over it before I start to feel normal again (or what I consider normal, others may disagree). I just wanted to mention it because I consider it a nuero reaction, but it definitely isn't due to gluten. I also have...
  11. GFinDC
    I haven't read the whole thing, but it seems like a good idea to have a sticky in the pre-diagnosis forum for new people to review info. There are some articles right here on celiac.com that would probably be helpful for newbies to review. People are often looking for the list of test antibody tests for instance.
  12. GFinDC
    I agree you really should stick with the diet another month or so before doing a challenge. Are you eating whole foods or processed foods?You can lower your potential for cross contamination to gluten by using whole foods and cooking them yourself at home. A little bit of gluten can have a big affect on us. Another thing to think about is other possible...
  13. GFinDC
    I take: black pepper on my food - supposed to limit leaky gut permeability turmeric on my food - supposed to reduce inflammation Garlic powder - to reduce bacterial activity L-glutamine supposed to help repair damaged tissue DPP-IV - supposed to help digest proteins. Sometimes Pepto Bismo, to reduce gut irritation. Simethecone and salty...
  14. GFinDC
    I think this could be related to a condition call sjogren's. You might try a search on it and see what turns up on the board. Quite a few posters seems to have it or symptoms like dryness.
  15. GFinDC
    Hi, I kind of wonder if you have had your vitamin levels checked recently? Could it be a B vitamin problem? 2nd thing to consider. Many processed foods have preservatives added. Some of us react to sulfites and I have seen some posters say that have problems with nitrates. So, this is another whole category of possibly problem ingredients you eliminated...
  16. GFinDC
    Well, yes, it is a problem, even a little bit. the FDA guidelines they have been considering are 20 parts per million to label a product gluten free. That's a pretty durn small amount. And the reason they were looking at that level was because it was considered a testable level at an affordable cost for food producers, not because it is safe for celiacs...
  17. GFinDC
    Well, I am not so sure it is the same thing, being skin sensitive to something vs having an intolerance when you eat the same thing. If they based your allergies on skin testing that is. The way I understand it, the skin type and breathing in reactions are a different immune system response than the gut responses are. So, unless you rub the food all over...
  18. GFinDC
  19. GFinDC
    Well, yes eggs are ok for me. Each person would need to determine their own safe group of foods, depending on their own body response. That's what the elimination diet is for really, to find foods that are safe for an individual's body, vs a general list for everyone, which we all know doesn't work for us. A general list of safe foods is not useful for...
  20. GFinDC
    Well, the UNO pizza thing sounds nice. I am curious about this organization though, ACDA. I guess I just haven't heard of them before. Their website seems kind of empty. Do we know what they have been up to for the last few years as far as supporting celiacs? It is a little hard to see what they are really about from their website. Not knowing a lot...
  21. GFinDC
    Sounds good AmyJoe. You are right, the diet is not bad, I think it is probably healthier than most people eat in fact. I wanted to just mention goitrogenic foods as something to be aware of. I don't know how big an effect they would have, but supposedly they can cause some thyroid suppression. I think soy is one of the bad ones for that. Just look up...
  22. GFinDC
    Oh, my poor ears! :-) Only thing I can think of would be to eliminate even the things that are supposed to be safe. Like the tea. Who knows after all? Got to try doing without to really know if it is a problem.
  23. GFinDC
    You might also try going dairy free for a while, and see if that helps. And another thing is to avoid most sugar. Poorly digested foods can cause the bacteria in the gut to get kind of extra happy, and reproduce quickly. So, cutting back most sugar may reduce the amount of bacteria growth. Dairy has lactose sugar in it, which is a problem for people with...
  24. GFinDC
    You might be having gluten withdrawal reactions from not eating gluten. There is a theory that people crave gluten can affect the brain after it enters the bloodstream. They say the gliaden protein can resemble or act sort of like opiates on the brain, and cause withdrawal symptoms. Least that's what I've read. So that might explain the headaches. I...
  25. GFinDC
    You can get Lactaid brand pills here in the US to take. They are gluten-free pills that contain the lactase enzyme to digest lactose sugar. One thing to watch out for is that some store brands etc contain wheat, so do check the ingredients. I have been mostly dairy free for 12 years now, although once in a while I get stupider then usual and try a little...
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