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GFinDC

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Everything posted by GFinDC

  1. Hi chocchip, You are certainly welcome to eat gluten-free if you want to. There are some members of the forum who didn't pass the celiac disease testing with flying colors and a firm, bullet proof diagnosis. Like me for instance! ( I hope they don't run me out of here now... ). I read the article you linked, but I don't accept everything Chris...
  2. Hi Emily, I had joint pain years ago that went away when I eliminated nightshades. It took a month or more for the joint pain to go away though. I had joint pain in both shoulders and both knees. It wasn't related to injuries in anyway. More recently I had joint pain return which improved when I upped my Vitamin D intake. I've been gluten-free...
  3. Hi DummerGirl, I'd use them if they are not scratched. Plastic isn't really porus and absorbent like wood. It is a problem when plastic gets all scratched up because some gluten can get stuck in the little scratches, not absorbed. If you clean them well and don't cross contaminate them with the gluteny sponge you should be ok. Welcome to the...
  4. Hi Hazawaza, I am moving your thread to the Dermatiti Herpetiformins forumsubsection where you may get better response. And welcome to the forum!
  5. Hi Leotto, You may actually be in the majority, having nuerological affects from celiac disease but not much in the way of digestive affects. Below is an abstract of a paper by Dr. Hadjivassiliou a leader in the area of nuerological effects of celiac disease. You'd have to pay to read the whole article. Anyway, from what I remember reading it...
  6. Hi poorlypup, Your symptoms sure could indicate celiac disease. Perhaps you could ask for a referral to an expert in celiac disease? Or someone who has more experience diagnosing it. Celiac disease is not easy to diagnose at times. It is somewhat rare so doctors don't see cases a lot. And the testing is not perfect, although it is pretty good. ...
  7. I read a while back that kids brains don't fully mature until they are 18 to 20 or so. So their decision making skills are not really up to par as they say until then. I am not sure what excuse us older people have though...
  8. Hi chocchip, Welcome to the forum! I guess I don't understand being gluten intolerant because of hypothyroidisim? There is a an association between higher rates of Hashimoto's Thyroiditis and celiac disease. But hypothyroidism doesn't cause gluten intolerance to my knowledge. Regardless, if your daughter is gluten intolerant she probably...
  9. Hi Emily, Welcome to the forum! You may have celiac disease. Do you know what tests were done for it? Often the only test done is the ttg IgA, which is a common screening test. But it is not the only antibody test available, and should not be considered definitive if there are symptoms that point to celiac disease. The DGP IgA and DGP IgG antibody...
  10. Ok, diagnosis mystery on the thyroid then. Hashimoto's is an autoimmune condition. They test for TPO antibodies to diagnose it. The DH section of the forum is full of lots of info on it. Pretty scary stuff to us non-DH'ers tho! https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/
  11. Um, yeah. You could call them loud! Maybe deafening would be more accurate! Digestive conditions being in an uproar things don't go smoothly down there. I used to have projectile vomiting at times, and it was great for redecorating the walls. If you are in the testing process, he needs to continue to eat gluten until all testing is done. About...
  12. Hi Bevsiegirl, Here are the antibody tests for a celiac reaction. Each of these tests can be either positive or negative, or they can all be positive. If any is positive, then an immune system reaction is happening. Except total serum IGA, that is just a test to prove your immune system actually makes IgA antibodies. Some people don't make them....
  13. Hi DC Thanks for updating us. It looks like they only did the initial screening test for celiac disease, the ttg IgA test. There are other tests including DGP IgA and DGP IgG that would be worth asking for also. Not everyone tests well on every test. They may call that set of tests a celiac panel. Another gotcha is that people with DH sometimes...
  14. Hi Htxkid, I don't know of any medical tests for NCGS. But there is one test you can do yourself that always works. Go gluten-free for 6 months and see how your body responds. NCGS is a condition that isn't well understood yet. So nobody can say for sure what the results are if you continue to eat gluten while having NCGS. You are in charted waters...
  15. Hi rumberg, I often rinse things before I use them, just to be sure. It only takes a few seconds to rinse something off. But I live with gluten eaters so I know there is flour floating around sometimes. If I lived by myself I'd never intentionally bring gluten items into the house so I wouldn't worry about rinsing things. Unless I was buying something...
  16. Hi Axiom, Yep, nueropathy can be a an issue. Malabsorption of nutrients can be the cause. B12 is important for nerve health and is sometimes low in celiacs. *********************************************************** Open Original Shared Link Open Original Shared Link Iron, calcium, and Vitamin D are the most common deficiencies...
  17. Hi ware96, I like Pepto Bismol for gut pain. Also I drink peppermint tea when glutened and take aspirin. Peppermint tea can help relax stomach muscles and get gas out. I seldom drink it except when having digestion problems. Lots of water can be helpful too. Perhaps some Milk of Magnesia if needed. Symptoms can vary a lot. They may drag...
  18. I've eaten Vlasic pickles and Yoder's sauerkraut, no problems so far.
  19. Hi zenjess, Gluten (as the term is used by celiacs) is a protein in wheat, rye and barley that our immune system reacts to by making IgA or IgG antibodies. What we call allergies (like hayfever etc) are caused by an IgE antibody reaction. The different types of antibodies (IgA, IgG, and IgE) are different in how they affect the body and how they attack...
  20. Hi Axiom, Your symptoms sound like a normal day! Before I went gluten-free anyway. Yes, I had bloating and gas problems, along with side orders of gut pain, insomnia, dry skin, muscles twitching, pale mottled skin, joint pain, fatigue, brain fog, etc, etc. And those were the fun days! Thankfully, most of that has gone bye bye now. I suggest...
  21. Hi olesoulle, Interesting question. There's no way for me to know how safe that would be as far as cross contamination goes. It seems like you could sort through the grains looking for and removing any wheat, rye or barley that had snuck in. And then wash the grain and let it dry. I think that's what Quaker does with their gluten-free rice products...
  22. Hi zenjess, I don't fit that description myself (IMHO) or do weight watchers. But people with weight issues have posted before. Some people seem to gain weight with celiac disease, which seems all crazy-like but it does happen at times. That may be a temporary condition that would change with time though after further gut damage. Thyroid problems...
  23. Hi Taraz, You probably won't test positive for celiac disease if you are already eating gluten-free. Celiac testing requires a gluten challenge of eating, gluten for a time before the testing. Two weeks eating gluten for the endoscopy and 12 weeks for the blood antibody testing. About a 1/2 slice of regular gluteny bread is adequate per the University...
  24. Hi Ironic, Some celiacs do react to oats like they do to wheat, rye and barley. The thing to do is stop eating oats for 2 months and see if there is an improvement. Saying you think you are gluten-free makes me wonder what your confusion is? Maybe you can simplify your diet so you don't have any doubt about your gluten-free status anymore. I...
  25. Open Original Shared Link I read somewhere in the past that some of the testing they use for gluten does not accurately test levels of barley gluten. So the beers made with barley can test low in gluten because the testing doesn't really work for barley. Elisa test is the one they said is bad I think. It works for wheat protein, but not barley protein...
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