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GFinDC

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Latest Celiac Disease News & Research:

Everything posted by GFinDC

  1. GFinDC
    Hi, It's fine to go gluten-free without positive test results. There are no tests for non-celiac gluten intolerance (NCGI) yet, so the only way to know is to trial the gluten-free diet. And there are probably a lot more people with NCGI than with celiac disease. Do stick with the gluten-free diet for at least 6 months and record your results. A food...
  2. GFinDC
    Hi Michael, Celiac can certainly cause mucus in stool. Recovery from a glutening can take weeks for some people.
  3. GFinDC
    HI, It might help to avoid sugars and carbs. Also try taking pro-biotics and digestive enzymes when you eat.
  4. GFinDC
    Since you are in a shared kitchen, you have to have separate butter, mayo, peanut butter etc from the other people. Also a separate toaster. You could start your elimination diet with beef (or chicken), peas, mushrooms (wash them), sweet potatoes, and parsley. That will probably be ok, although there is no guarantee you won't have reactions to one of...
  5. GFinDC
    Hi SuperS, Yes, your symptoms could be celiac disease related. You should not stop eating gluten yet though. Your doctor didn't tell you to do that did they? The usual test process is the blood antibodies first, and then an endoscopy to get biopsy samples. Celiac disease causes villi blunting in the small intestine, and they look at the biopsy samples...
  6. GFinDC
    Hi Amber, It makes sense to look back at your test results from the original celiac disease diagnosis. But any tests you are doing now for celiac disease will automatically be negative since you have been gluten-free for a while. The only way to get good celiac testing for now would be for you to do a gluten challenge for some period of time. The whole...
  7. GFinDC
    Hi Arplasma, Here are a couple threads that might be interesting to you. There are not scientific studies, but real life accounts of what happens to celiacs who cheat. The 2nd link has story from a woman who cheated on the diet and some pretty sever consequences. Surgery to remove part of her intestines. How bad is cheating? https://www.celiac...
  8. GFinDC
    @HavaneseMom You are very welcome HM. There are several other threads on meal ideas, some very long and full of things to cook. Yep, gluten might be all there is too it if you were diagnosed right away and went gluten-free right then. But over time our irritated guts tend to start reacting to other foods too. It's not for sure those other food reactions...
  9. GFinDC
    Hmm, well, it's hard to be sick too! Yeah, the list format makes it easy to check and verify. That's why I like it. Some people have reported problems when eating Amy's meals. I gave them up years ago after I had reactions to them and haven't tried them since. Maybe they are ok now, maybe they aren't, I am not sure. But I get along just fine...
  10. GFinDC
    Hi Greg, Have you been tested for food allergies? I don't think it is super reliable testing really, but might show up something. I don't think you listed what foods you are eating? It's best to stick to a very simple whole foods diet when troubleshooting food issues. Things like meats, veggies, fruit, nuts. Single ingredient foods are easier...
  11. GFinDC
    Hi HM, That's pretty typical symptoms I think, for many people. Eating a simple, whole foods diet is a good way to avoid cc and gluten. After you have healed up and are doing well, branching out and adding some processed gluten-free foods is fine. The amount of gluten it takes to cause a reaction or flareup of symptoms is very low. Plus our guts need...
  12. GFinDC
    I've read that some people in mixed households have a separate counter space set aside for gluten food and gluten-free foods prep. That seems like a real good idea. Also putting the gluten-free foods on the top shelf so crumbs of gluten don't fall down on it from above is a good idea. Checking pet food for gluten is also worthwhile. There are gluten-free...
  13. GFinDC
    You could also try taking some Betaine HCL when you eat greasy foods. It turns into hydrocloric acid in the stomach. The digestive enzymes are a good idea too. If you take both, look up the suggestions for taking them. I think they say to take the enzymes 30 minutes after eating. Prolly the Betaine at the beginning of the meal. But you should do some...
  14. GFinDC
    Welcome to the forum Amanda! That sequence of tests is pretty much standard in celiac disease testing. First they test the blood for anti-bodies to gliaden, and if those are positive they do an endoscopy to look for villi blunting. Where they did screw up though is telling you to go gluten-free before all the testing was done. That was bad advice...
  15. GFinDC
    Well, looks like they got to their fundraising goal. So banana flour is on the way. Certainly sounds like it would be worth trying anyway.
  16. GFinDC
    I've brought along fruit before, an apple, orange, banana or such like. And a Lara Bar or some nuts. Sometimes I've ordered side dishes like cooked veggies to eat, and get a couple of them. My friends have never given me any weirdness about it, except to maybe ask why. Or comment that "wow you eat so healthy!" ha ha! If she tells you she is uncomfortable...
  17. GFinDC
    Looks like this company is trying to introduce gluten-free banana flour in the UISA. they say it is similar to wheat flour in cooking. Open Original Shared Link WEDO- The first and only banana flour company in the US delivering a healthy, superior alternative to the gluten free community. WHAT IS BANANA FLOUR? Unique- Banana flour is a fresh...
  18. GFinDC
    Some pro-biotics have dairy in them. As you can see, there are a lot of suggestions for what could be the problem, because the reality is any food can be a problem. That's why you need to consider an elimination diet. If you want to try some simpler things first, try eliminating all processed foods for a month. If that helps, then you know one or more...
  19. GFinDC
    Some people have problems with coconut. Actually, you can become sensitized to any food. There are a few tests for intolerances, but not many. It is better to do an elimination diet, since you can't get a test for all those foods anyway. You didn't mention any tea or coffee or soda, so if you aren't drinking those it is not a problem. How about vitamins...
  20. GFinDC
    Running away! Not fair! I guess you are safe from test tickles then!
  21. GFinDC
    I think these are the corn-free vitamins Barty found. They do have 100% of the RDA for iodine, so that's good. They are very short on selenium though. But I guess you can't have everything, and trade-offs are necessary. You could always eat a Brazil nut once a week to get your selenium. They are, thankfully, corn-free. So you could get your basic iodine...
  22. GFinDC
    Have you checked your vitamins and meds for gluten? Also, gluten-free beers that remove the gluten (but still might have some) may be a problem. I suppose you have checked your teas and coffee or other drinks as well? If not that is possible problem area.
  23. GFinDC
    Hi BM, It might help to think about the basics of celiac disease. Celiac is an autoimmune disease. That means the bodies own immune system attacks it. The immune system is very sensitive, and doesn't mind attacking in force any forgein, dangerous invaders like germs or gluten. And it doesn't stop making immune cells to attack until the invaders...
  24. GFinDC
    Hi SK, Welcome to the forum! If you call your doctor and ask for a blood test right away, you may get an answer without having to go back on eating gluten. It's simple thing to have the blood drawn, only takes a few minutes. Otherwise if you decide to get tested later you will have to eat gluten for up to 3 months before getting tested. Remember...
  25. GFinDC
    You are certainly welcome Nicole! That forum has a chat feature, I think near the top. There were some very helpful people available in the chat section in the past. This may sound weird, but one of the things that most affected my glucose levels was a suagr free orange flavored tea. I don't remember the brand etc. But when I stopped it my glucose improved...
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