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mushroom

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Everything posted by mushroom

  1. mushroom
    Sending prayers and loving thoughts to heal your mom. Hang tough, both of you.
  2. mushroom
    You are lucky! The new celiac clinic MGH has opened is being run by Dr. Alessio Fasano, the renowned Dr. Fasano, the "King" of celiac (or at least its most famous researcher)!!! He used to be in Maryland and has apparently been lured away.
  3. mushroom
    Okay, now I see it is the gastro that is blocking any further celiac testing. And, as I recall, the pediatrician won't do an end run around the gastro. I don't blame you for having second thoughts about her. I seem to remember that your daughter was referred to her for a scope in the first place.
  4. mushroom
    Thank you for answering my questions! That helped enormously. It would appear that based solely on a negative tTG IgA they think they have completely ruled out celiac disease Can one of them be convinced somehow that they should run both the IgA and IgG versions of the DGP (deamidated gliadin peptide)? Before we go any further? I am aware that because...
  5. mushroom
    There are two kinds of Gliadin IgA and IgG antibodies. The first is the older Anti-gliadin Abs (AGA IgA and AGA IgG) which is not used so much any more. The second is the newer, more specific Deamidated Gliadin Antibodies (DGP IgA and IgG). It does make a difference which one we are talking about because the DGP has a very high specificity and sensitivity...
  6. mushroom
    April, I sat down and read your daughter's thread in its entirety today, which I have not done in the past because you were receiving good advice from good advisors I could not believe this whole saga has been going on for seven months practically unchanged except for the eventual elimination of soy (and apparently? with that the really hard belly). Although...
  7. mushroom
    Here is a recipe you could try. (I originally found this recipe on a forum without attribution, so I am sorry, I have to pass it on this way with apologies to the author) FRENCH BREAD ingredients * 2 cups rice flour (white) * 1 cup tapioca flour * 3 teaspoons xanthan gum * 1 1/2 teaspoons salt * 2 teaspoons egg substitute...
  8. mushroom
    It depends what kind of facility your GI's office is located in. If he is within an institution that maintains an overall file on a patient (i.e., from other doctors, hospitalization, lab work, etc.), then the medical records department would be the place to request the copy. If the doctor maintains an individual office and billing, then he should give...
  9. mushroom
    One of the few good things about celiac disease is that it teaches us to eat mindfully . that eating is not something that is done by just stuffing something in one's mouth and passing it down the esophagus while watching TV AND reading a book. That you have come to this realization, that we are what we eat, that food is designed to nourish the body and...
  10. mushroom
    I hate to be a Debbie Downer, but unless your doc is the exception to the rule, don't get your hopes too high about the help you will be offered. Many of them will refer you to a dietitian who may, or may not, know more about celiac disease than you do. Or he may tell you to do what you have done and consult Dr. Google Nutrition barely gets a mention...
  11. mushroom
    I am afraid that unless you yourself can bake something better, your daughter is going to be disappointed. It would probably be better to switch her to something completely different, like rice wraps, crackers, corn tortillas, and wait a while before retrying gluten free bread. Give her a chance to forget what gluten bread tastes like. She is going to...
  12. mushroom
    Wheat is one of the ten top allergens, as well as being one of the gluten-containing grains. It is required to be listed because of the allergen factor, not because it contains gluten.
  13. mushroom
    Just a thought ~~ don't know what antibiotic your wee guy was on but flucoxacillin is known to elevate liver function results.
  14. mushroom
    Don't forget all them little hobbits are running around down here in Middle Earth. Funny little guys they are, too
  15. mushroom
    Yay, Sylvia (for my breakfast ~~ good to see you) and Peter here too!!! I had also been asking myself, where is Sylvia???? Hubs has been getting a bit creative with food - with things like stuffed fillleted chicken thighs wrapped in prosciutto, cauliflower cheese bake, German potato salad for him and my sis (not all at once). What more could a gal...
  16. mushroom
    Just to add another welcome to the world of gluten free Yes, the supermarket meltdown is practically a mandatory rite of passage ~~ the full realization of "the reading of labels". So it's generally better when you first start out not to get too involved with processed food and labels - just do the basics like pasta, bread, baking mix until you feel...
  17. mushroom
    Thanks. I'm planning on it
  18. mushroom
    An EDG with biopsy performed five weeks after beginning a gluten free diet is not to be relied upon. Healing begins to take place immediately upon the removal of gluten, and by five weeks could be not observable as damage. If you combine that with the element of luck involved in the GI doing the biopsy of the damaged areas (the damage often has a patchy...
  19. mushroom
    I guess that explains the arrrival of my cat into my life five years ago
  20. mushroom
    Living out of toiletries bag this past week ~~ almost brushed my teeth with hydrocortisone cream which actually works much better on psoriasis!
  21. mushroom
    Ramblin' Rose - Nat King Cole
  22. mushroom
    The Immunoglobulin A, Qn, Serum is a measure of the total amount of IgA antibodies a person makes. The normal range for your son's age with that lab is 77-278, and your son's score is below that. That alone increases his risk of having celiac disease. Failure to thrive is the one sign that every doctor who has been paying attention at medical school should...
  23. mushroom
    TTG is not that specific for celiac - that is why they like to do the EMA if tTG comes up positive. Here is what Wiki says: Antibodies to Open Original Shared Link (ATA or anti-tTG) are found in patients with several conditions, including Open Original Shared Link, Open Original Shared Link,Open Original Shared LinkOpen Original Shared Link,Open Original...
  24. mushroom
    Lucy In The Sky With Diamonds - The Beatles
  25. mushroom
    A few crackers a day should be enough.
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