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ElseB

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Latest Celiac Disease News & Research:

Everything posted by ElseB

  1. ElseB
    I'm the only one with Celiac and my sister is the only one with Crohn's. Both genetic diseases. And no one else in the immediate or extended family has anything.
  2. ElseB
    We don't get Rudi's here in Canada, but we do get Udi's. It must be good because everytime I buy a loaf my non-Celiac husband eats at least half of it! Granted we have no regular bread in the house, but he's not much of a bread-eater so if he didn't like it, he wouldn't eat it!
  3. ElseB
    Not so. From the Open Original Shared Link: Causes of false positive celiac serologic tests The endomysial antibody test is virtually 100% specific for celiac disease. However anti-tTG has been reported to be positive in the presence of liver disease, especially cirrhosis [33], diabetes [34, 35] and severe heart failure [36], as well as arthritis [...
  4. ElseB
    I can't find the reference now, but I remember reading somewhere that yeast extract could contain gluten, and should only be considered safe if in a product labelled gluten free.
  5. ElseB
    My sister and I both have autoimmune diseases (Crohn's and Celiac, respectively) and we were both born via vaginal births. And I know lots of people born via c-section and none of them have any autoimmune diseases. I also call bs.
  6. ElseB
    Our house is 100% gluten free. I'm the celiac, but it was my husband's choice to not keep gluten food in the house. He just didn't want me to have to constantly worry about what was and wasn't safe or to worry about having to be extra careful in my own kitchen. He'll sometimes buy something a sandwich or something and bring it home, but he's extra careful...
  7. ElseB
    Well, I guess I'm just one of those "negative" people who doesn't buy the stories of people being "cured" of Celiac. But then again, I'm also someone who doesn't find the gluten free difficult (and I follow the diet very strictly and never cheat). If they developed a pill for us to take everyday, I wouldn't take it.
  8. ElseB
    What do I think? That you need a new accupuncturist. Or that she should stop dispensing advice about something she isn't qualified for. If you are diagnosed as celiac, eat gluten at your peril. Celiac Disease doesn't go away. Our bodies react differently at different times. Just because you feel fine doesn't mean the internal damage isn't taking place.
  9. ElseB
    For me, constipation is what happens when I eat gluten. If I've been glutened, I take magnesium oxide pills and self massage my abdomen area (its supposed to stimulate peristalsis). Even when I'm 100% gluten free I still have some problems and the only thing that keeps me "regular" is about a litre of vegetable smoothie a day.
  10. ElseB
    I'm still amazed that hospitals - medical institutions! - cannot accommodate a medically necessary diet! If we were diabetic I'm sure they could accommodate. If it were a nut allergy I"m sure they could accommodate. But gluten, noooooooooooo way! I had to go to the ER last year due to a blood clot and I made sure to stop off on the way there to fill my bag...
  11. ElseB
    I'm curious - why do you want to know? Are the leaves even edible?
  12. ElseB
    Udi's makes great toast and grilled cheese. So good that my non-Celiac husband ate half of the last loaf I bought! But in his defense, we keep the house 100% gluten free so there is no normal bread for him to eat. But Udi's is the only gluten-free bread he'll eat. I've never had Rudis - we don't get it in Canada.
  13. ElseB
    I totally agree. And the professional athletes pretending to go gluten free doesn't help. Like Novak Djokovic who proclaimed after his last big win that he was going to pig out on gluten that night to celebrate. It downplays the seriousness of the issue for those of us with a real medical condition. (I'm not saying Djokovic doesn't have real issue with gluten...
  14. ElseB
    After I was diagnosed my parents got tested and both were negative. But at least one of them must have the genes that they passed on. As others have noted, you can have the genes but not develop the disease.
  15. ElseB
    It depends.....sorry, no easy answer here! I have successfully converted gluten recipes but it required much experimentation. I have found that generally, the less flour a recipe has, the easier it is to convert. If it does have a lot of flour, you may need to increase the liquids a bit because gluten-free baked goods are inherently drier. Also, you may...
  16. ElseB
    Check out the "My Gluten Facts" website www.myglutenfacts.com/events/gluten-free-halloween-candy-list-2011. They have halloween lists that are updated every year, and have different lists for both Canada and the U.S. (not sure which country you're in but hopefully one of these will help).
  17. ElseB
    Look at the bright side - living gluten free and being healthly requires being able to cook from scratch. So many people have no idea how to cook so you've already got a leg up! Remember that there is a lot of food that is naturally gluten free. Learn about what foods do and don't contain gluten; learn about gluten free cooking; learn about gluten free baking...
  18. ElseB
    I get it all the time but its got nothing to do with gluten (at least not in my case). Just that I drank a lot of water.
  19. ElseB
    The second the aluminum foil suggestion. We have a new bbq too so nothing containing gluten has ever touched it. But when visiting other people I always ask them to cook my food in foil and use separate utensils.
  20. ElseB
    Also remember that just because someone feels fine after eating gluten doesn't mean that internal damage isn't being done. What matters is the effect on the villi and not how someone feels.
  21. ElseB
    Bob's sells gluten free oats and regular oats. The gluten free oats are processed in the gluten free facility, separate from the regular oats. The regular oats are processed in the other facilities.
  22. ElseB
    My mother in law constantly comments that she truly believes that since my illness came on so suddenly, one day it will just as suddenly go away and I'll be cured. Oh yeah, and did I mention she's a doctor? No wonder we all have such bad experiences with doctors! My husband and I have politely told her on many occasions that it will never go away. But next...
  23. ElseB
    I actually was going to declare it, and had written it on the arrival card, but a cute little dog sniffed me out before I even made it to the quarantine officers!
  24. ElseB
    I actually did have food confiscated once. I arrived in Australia with trail mix and hadn't realized that the nuts were raw and not roasted. Roasted nuts are okay, raw are not (I guess because they can carry disease).
  25. ElseB
    Getting stuck on a plane without food because you're trapped. On one occasion, they gave away my gluten free meal to someone else, but I had lots of food with me so I was okay. But on a previous flight, due to delays, problems with the plane, etc., I was stuck on a plane for 16 hours. The flight was only 8 hours. Luckily, I had some food with me but was already...
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