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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    BTW, the fact that 1 in 2 of us are getting cancer is also related to our longer lifespans now. You have to die of something, and the longer we live, the more likely we are of getting cancer or heart disease.
  2. Scott Adams
    The increase in the average lifespan, especially over the last 100-200 years, has been dramatic in most countries. Clean water, vaccines, antibiotics, etc., can explain a lot of this, but now subtle differences in lifespans between people in different countries are, more and more, being attributed to the differences in their diets...for example in Europe...
  3. Scott Adams
    It would be of interest to me if I were a doctor, at least to not disagree about doing a periodic blood screening to make sure your gliadin antibodies don't one day shoot up. I know that first degree relatives of celiacs have an ~44% chance of also having it, and should be screened each year, but I'm not sure of the interval in your case. My guess would be...
  4. Scott Adams
    It would not hurt to ask for the actual results and the reference ranges, as recent studies do indicated that elevated gluten antibodies are not something to ignore, which is what many doctors do. Not to create a clash with your doctor, but why not rule out DH by doing a biopsy for it?
  5. Scott Adams
    Whether you have celiac disease, which you could due to your genetics, or NCGS, you would need to avoid all gluten for life, if you wish to avoid the negative health effects and/or symptoms caused by gluten. Note that many celiacs don't have noticeable symptoms at all, and are often diagnosed due to a blood test that shows low iron levels (anemia),...
  6. Scott Adams
    Celiac disease can manifest as a gut, skin, or brain/neurological disease, or a combination in those who are genetically susceptible. The reasons why are very complex, and we've summarized many studies here on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and...
  7. Scott Adams
    One positive blood test, combined with the genetic marker for celiac disease, should be enough to diagnose you, and I realize that some doctors may still not give you a diagnosis if you have a negative biopsy. If I were you I'd go gluten-free based on what you've shared, but be sure to discuss this with your doctor as they may want to run more tests.
  8. Scott Adams
    To me it looks very much like DH, and if you have symptoms it still could be. You should ask them to biopsy it for DH. Also, do you have your celiac disease blood test results to share? I'm curious if you had any elevated levels of antibodies, which could put you in a gray zone. Also, were you eating gluten daily for 6-8 weeks leading up to your blood...
  9. Scott Adams
    I would definitely use my own sponge, as it could definitely get contaminated with gluten. Hand washing your own dishes may not be necessary if everyone rinses off their dishes before loading them, but some here would definitely argue against using a shared dishwasher, and just doing yours by hand. I'm no expert on how to wash sponges, but to simply...
  10. Scott Adams
    While foods that are higher in histamines can be an issue for some people, most people can tolerate them just fine, and in countries that consume large quantities of them like Japan, Korea, Italy, France, Singapore, etc., they have some of the longest life spans on Earth (https://www.worldometers.info/demographics/life-expectancy/). In fact, many studies...
  11. Scott Adams
    If your diet has been 100% gluten-free, it can still take much longer than a month to heal, depending on the level of villi damage you have. The average time to recovery is 2 years, but definitely double check everything in your diet. It's also possible you have additional food intolerance issues, and you may want to keep a food diary to identify them.
  12. Scott Adams
    Welcome to the forum, and there is definitely a connection, and in many people celiac disease manifests itself as a brain/nervous system disorder, and here are some scientific studies we’ve summarized on this: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/schizophrenia-mental-problems-and-celiac-disease/ ...
  13. Scott Adams
    We are publishing a book, chapter by chapter, that really covers many of these issues, and may offer you help. Here is chapter 3, published last week:
  14. Scott Adams
    I would simply add that "IBS" isn't a real diagnosis, it's a set of symptoms that often has an underlying cause or trigger. To be diagnosed with IBS, in my non-medical opinion, basically having a doctor tell you exactly what you already knew when you went into his/her office...that you have IBS. To recover from IBS you'll need to determine whether or not...
  15. Scott Adams
    I and other doctors like Dr. Kenneth Fine and Dr. Rodney Ford, have always believed those with elevated antibodies are actually in a pre-celiac stage (some call it non-celiac gluten sensitivity, although elevated antibodies are not required for someone to have NCGS), and that should you keep eating gluten you'll likely end up with full blown celiac disease...
  16. Scott Adams
    Since you had a positive tTG IgG blood test, AND you appear to have "with increased lamina propria chronic inflammation," it seems pretty likely that you do have celiac disease. Definitely discuss it with your doctor when they're back, as well as when to start a gluten-free diet.
  17. Scott Adams
    After searching for the article I highlighted the link in the top of my web browser and did control-C on my keyboard to copy, them control-V to paste here.
  18. Scott Adams
    I just want to mention that in many cases such additional food intolerances are often temporary, and can go away if someone maintains a strict gluten-free diet. On my case it was dairy/casein, corn, chicken eggs and tomatoes, and after around 1-2 years I was able to add them back, with the exception of chicken eggs, which I can tolerate once per week, but...
  19. Scott Adams
    It sounds like an issue with iron metabolism, but I'm definitely not an expert in that area. Did you find the article below by Ron Hoggan? He also wrote a book on iron metabolism as well (https://www.amazon.com/Iron-Edge-Ron-Hoggan-ED/dp/0973628448):
  20. Scott Adams
    This is very interesting because when I was ~12 I was diagnosed with Achilles Tendonitis and had to have special shoe inserts made to lift my heel up to decrease the pain so that I could play on a soccer team. The pain could be severe, and the inserts didn't really work that well. It wasn't until my mid-twenties when I finally got diagnosed with celiac disease...
  21. Scott Adams
    Is this the link? https://www.ncbi.nlm.nih.gov/books/NBK1727/
  22. Scott Adams
    Hi Lynn, welcome to the forum! Is it possible she's still getting small amounts of gluten via cross-contamination, perhaps at restaurants, which is very common? You didn't mention her age, but is it also possible that she cheats on her diet (my teenage daughter used to do this due to peer pressure, for example at a soccer team party where all they had was...
  23. Scott Adams
    I agree, it would be great to hear from anyone in the study to see how it's going. There may be non-disclosure agreements that prevent this, who knows. We'd like to do an article on their experience if possible.
  24. Scott Adams
    If my memory serves me correctly, Finland has the most celiacs per capita, but the rate is higher in Northern Europe and Ireland, and speculation as to why often includes the theory that the people in those areas were last to adopt farming, and therefor the last to start eating wheat regularly. As I understand it, in Finland you can order a hamburger at McDonald...
  25. Scott Adams
    Some people get a follow up antibody test to verify that their levels have gone down, and that their diet has been gluten-free, although that isn't what the tests were designed for. If you doubt your original diagnosis and want to be retested, this article may be helpful:
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