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Scott Adams

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Everything posted by Scott Adams

  1. Scott Adams
    Grindstone is great, here is their site: https://www.grindstonebakery.com/ Also, if you want to do homemade this is a hit recipe:
  2. Scott Adams
    This article might be helpful, however, I would not recommend #2, taking AN-PEP enzymes during a gluten challenge, as they are designed to break down gliadin and could taint any test results (even though it's doubtful they would fully break down that much gluten):
  3. Scott Adams
    My hope is that everyone with celiac disease would be able to decline eating gluten in social situations, but statistics have shown that around 15-20% of celiacs regularly cheat on their diets. I don't every knowingly cheat, but I do eat in restaurants regularly which means that I likely get cross contamination from time to time. For two years now I've been...
  4. Scott Adams
    Also, in Europe now they diagnose celiac disease using only blood tests when the tTG levels are 10x normal or higher, so it would be great if you can share your blood test results here.
  5. Scott Adams
    As mentioned, my symptoms included heart palpitations and vertigo that seemed to feed into panic attacks. Once I was gluten-free for a few weeks or months those symptoms went away. Clearly ER visits are expensive, so if you're still getting gluten in your diet that is causing you to go to the ER it would be worthwhile to be sure your diet is 100% a gluten...
  6. Scott Adams
    Welcome to the forum. Have you been diagnosed with celiac disease or dermatitis herpetiformis, or are you self-diagnosed? If your rash is related to gluten it will take a few weeks on a 100% gluten-free diet to see relief. To post an image click "Choose files" and select your image, then put your mouse cursor where you want the image inserted, then click...
  7. Scott Adams
    I'm not expert on the ketogenic diet, and don't believe that anyone needs to fast for any reason except when a doctor requests it, for example before a colonoscopy, but if you are gluten sensitive, or if you have celiac disease, you should not eat gluten at all. If you do, fasting won't reverse any of the possible negative health effects, but may help...
  8. Scott Adams
    I would like to add that I don't think that a traditional "Confectionary Art" education based on learning how to make bakery products using wheat flour will help you very much when it comes to gluten-free versions. Of course there are some things you can learn that may transfer over and be helpful, but in reality you need to be focused heavily on gluten-free...
  9. Scott Adams
    If your daughter is IGA deficient, yet still had a positive test using Tissue Transglutaminase IGA, then it's likely her score, if she were not IGA deficient, would have been much higher. I guess I'm not buying that she is "borderline," and for sure her results are not negative. It only takes one positive blood test to indicate celiac disease, and the...
  10. Scott Adams
    I also thought it was the standard of practice when doing a biopsy for celiac disease, however, we've seen a lot of strange things in this forum that doctors are doing that can't be explained, for example not telling patients to eat gluten for at least two weeks before a biopsy, or for 6-8 weeks before a blood test. Many doctors, don't know the protocol for...
  11. Scott Adams
    Please search the ingredients of any prescription medications here first, before taking them: https://dailymed.nlm.nih.gov/dailymed/
  12. Scott Adams
    You likely know this already, but be sure your diet is 100% gluten-free, and this often means avoid eating out, as that is the most likely source of contamination. If you're sure that your diet, makeup, medications, cosmetics, etc., are gluten-free, it's also possible you have some additional food intolerance issues, some of which might just be temporary...
  13. Scott Adams
    This recipe looks incredible...thank you Vonnie!
  14. Scott Adams
    If I am reading your results correctly, your daughter's tTG, which is the most specific blood test for celiac disease, was 5, and anything above 4 is positive. Her Gliadin (Deamindated) AB (IGG) was 29, and anything above 20 is positive. So it looks like she has two positive blood test, AND a positive biopsy, and this means she clearly has celiac disease...
  15. Scott Adams
    Authentic Foods (full disclosure, they are also a sponsor here), makes what I think is the best one on the market: https://www.glutenfree-supermarket.com/
  16. Scott Adams
    You might also look into high protein shakes to help you put weight back on, but be sure they are labelled gluten-free. I'm not sure how long you've been gluten-free, but if you were recently diagnosed with celiac disease it can take months for your villi to heal, but the main thing is to be 100% gluten-free and eliminate all sources of contamination...
  17. Scott Adams
    Welcome to the forum and hopefully you're glad to know about having celiac disease so you can treat it and avoid the many potential health issues that can come with untreated celiac disease. It's possible your doctor didn't go to the trouble of doing an official Marsh score simply because the damage was very obvious in your case. To me it sounds pretty...
  18. Scott Adams
    Celiacs still get bugs and viruses, or eat food that may have bacteria in it, so it certainly could be just some type of bug, rather than gluten. You also may have additional intolerance issues, for example if you eat gluten-free oats it turns out about 10% of celiacs also have an oat intolerance, so if you eat oats you may want to stop for a while...
  19. Scott Adams
    I think the recommendation is 2 slices of wheat bread per day, or the equivalent, and I think it would be fine to do it all at once:
  20. Scott Adams
    Among a long list of other symptoms, I had pain in my right-side, just below my rib cage, at least until I was diagnosed and went gluten-free. This pain went away over the first few months of going gluten-free. If you can get hold of your test results and share them here it might shed some light on your situation. It also might be time for a full celiac...
  21. Scott Adams
    Thanks for the tip...just to be sure, is this the company? https://www.pureknead.com/
  22. Scott Adams
    There are other viruses that have been shown to possibly be a trigger of celiac disease, so it would not surprise me if covid-19 ends up being a trigger in some people. Clearly more research needs to be done. Here are all of the articles we've covered so far on Covid-19: https://www.celiac.com/search/?q=covid-19&type=cms_records2&updated_after...
  23. Scott Adams
    I think the point that @trents makes, is that if you were officially diagnosed with pernicious anemia by a doctor, they would prescribe B12 injections, not eating lots of liver. If you look at the link he shared he's correct that taking B12 pills, or eating foods high in B12 won't correct pernicious anemia, and B12 injections are the standard treatment for...
  24. Scott Adams
    If you eat oats just be sure they are labeled “gluten-free,” as they are often cross-contaminated.
  25. Scott Adams
    Just to clarify, Orzenin is not an issue for the vast majority of those with celiac disease, but may be an issue for some. Anyone can have a food intolerance to almost anything, but rice and corn are considered safe for celiacs.
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