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cassP

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Latest Celiac Disease News & Research:

Everything posted by cassP

  1. cassP
    wow- i cant believe your doc- usually the docs refuse to test UNLESS u have the diarreaha... geez... 1st of all- it is your body and your health- just takes a simple blood test- demand it- your doc has no right to refuse a celiac test to u.. thats just ridiculous!!!!! absolutely ridic 2nd- it could just be classic celiac... or a parasite ... or BOTH...
  2. cassP
    jessica- i recently read that using butter makes a flatter cookie, and shortening makes a fluffier cookie, tho i forget what exactly shortening is- is it all vegt. oil? or just crisco?? anyways- with this gluten-free mix i made- i used butter- BUT- i refridgerated the dough and the cookies were fluffy. i think u only have to refridgerate for maybe 6 hours...
  3. cassP
    u have dual citizenship?? usa & new zealand??? how exotic and exciting!!!! very very interesting. i always wanted to have dual citizenship... and i always thought NZ would be great to visit- plus there's no snakes, right? so cool..
  4. cassP
    i read an article once about a dermatologist who, before she got diagnosed with Celiac, had DH, but DID NOT know what it was- because she never learned about it in school!!
  5. cassP
    shroom- you're not in america??? how funny- i never even thought that you were overseas... or r u in canada?? hhmm.. no, i do not laugh at u at all- in fact i daydream about bringing in my own goat milk to starbucks - but afraid of everyone thinking im a freak or telling me it's illegal or something. and i LIVE on goat milk yogurt!!!!! love love love...
  6. cassP
    i believe u yes- with the different types of dairy- i do know there are certain cheeses that im completely fine with, etc.. when i said "40% of the time"- i meant with the same product- like 1/2 cup of whole milk in my mocha- 1/2 the time- it doesnt do a thing to me, other times- if i take a lactaid i'll be ok, and then other times- im in so much pain, im...
  7. cassP
    no you're not a freak- but rather quite normal i think. and i think you may be misunderstanding what you're reading on here... maybe?? Celiac & Non Celiac Gluten Intolerance are not exactly the same thing- but they are both very serious and require strict adherence to the diet. so far the medical community only seems to be able to have a label & a...
  8. cassP
    tru dat
  9. cassP
    omg!!!! exactly how frustrated i feel with all the corn crap they put in EVERYTHING and soy & soy lecithin thats in EVERYTHING... it's like the government and their subsidies are poisoning us and we cant do s about it AND YES- all the grains they feed the animals sucks cause i eat a more paleo diet... i try to get grass fed beef & dairy products...
  10. cassP
    u said u dont have any digestive issues but then u said you get nauseaus a lot??????
  11. cassP
    is this rash perhaps DH??.. if that's the case, then u probably were glutened from the testing
  12. cassP
    could be ... from what i understand-> gluten intolerance can lead to severe B12 deficiency which leads to nerve damage. a lot of people on here have had nerve damage & ataxia. and gluten intolerance leads to D deficiency- and u need D for your bones and teeth, ya? i didnt know the teeth link was a theory- everytime i read it- it just seemed like...
  13. cassP
    oh i know- its very difficult.. i am STILL eating things that mess me up.. hard to give up enjoying my food. years ago- i was completely grain free & sugar free- but havent gotten back there yet. i am ok with moderate amounts of rice & gluten-free oat products. i can also do quinoa & some millet. all the other grains mess me up- especially corn...
  14. cassP
    so have u been 100% gluten free for a long time?? were u sick for many years before finding gluten free??? im asking because-> teeth problems can totally be because of Celiac. ive got some dents & holes in mine. that actress Jennifer Esposito (who has Celiac)- she said that by the time she was diagnosed- parts of her teeth would chip off when she...
  15. cassP

    ARCHIVED I Am So Dumb

    cassP replied to adab8ca's topic in Coping with Celiac Disease

    dont feel dumb- i could totally imagine me doing that, but hope i dont. i just had my 1st nightmare about a month ago- where i ate gluten and only realized after. hilarious
  16. cassP
    i use this kind: Open Original Shared Link (it's organic, and uses sugar instead of HFCS, and im pretty sure it's gluten free). i dont have any reaction at all to this kind. if i use the nakano brand i react to the HFCS- it makes my heart pump, and sometimes makes me sick to my stomach-
  17. cassP
    we've got the same ridiculous problems over here with our health care system and our "in the box" doctors. we all understand your frustrations. the gluten-free diet can be expensive of course- i know. what about sometimes just simply making a pot of basmati rice instead of gluten-free rice pasta.. its really yummy. sometimes i even love it with my bolognese...
  18. cassP
    YES Newbie! gluten intolerance can give u the worst depression & anxiety- i KNOW big time- in fact anxiety was my BIGGEST symptom when on the "gluten challenge" before testing- i was ready to run someone over. ive also dealt with depression & clinical depression thruout my life. i am so much more balanced off gluten, and so so much more happier after...
  19. cassP
    mostly from my experiences- gluten free baked stuff goes stale much quicker- i would say the fresher the better
  20. cassP
    i wouldnt be nervous at all.. you're now on the path to feeling much much better and being healthy. just go over it all with your doc- ask if everything else looked okay. and if you have any other concerns- ask him if and when u should maybe also get a colonoscopy. most of the time everything is great down there, but i had a colonoscopy before i self diagnosed...
  21. cassP
    i think it would be a good idea for you to eat a healthy wholesome and gluten free diet for the rest of your pregnancy for sure.. (and after too)... but especially during your pregnancy- and i wouldnt do the endo while you're pregnant. if you feel ok with it- u can post your results up here- we would love to analyze them for u
  22. cassP
    the pill can totally cause water retention. the pill can also bind up t4, but your thyroid numbers look good. when i was in my 20s- and ate whatever i want (including gluten)- i would always swell up on the pill- putting on 8-10 lbs every period. but in my 30's when i was MOSTLY gluten free & feeling great on the atkins & bloodtype (pretty paleo...
  23. cassP
    ya- i would assume uncle ben's would prolly have cc- they have SO MANY boxes with the vermicelli in them. i always by rice that's certified gluten free... and ive bought several brands of basmati & texmati and have been fine (no uncle ben's). i also live on Tinkyada brown rice pasta- never a problem. there's a gum called "Glee" and it's pretty free...
  24. cassP
    unfortunately- just like celiac... h.pylori can sometimes thrive without u ever feeling any symptoms... of course, right? :/ i THINK they can also do a blood test for h.pylori? i think my sis had one... but idk. h.pylori are very stubborn, and require stronger antibiotics and for longer- and they love to return in a low-acid stomach. so, all of burdee's...
  25. cassP
    hey- 1st off- you may want to research more (idk)- but i THINK butter may not be a problem... either it doesnt have lactose- or it doesnt bother a lot of people with lactose issues. it's NEVER bothered me EVER.. and i dont use it sparingly either.. out of all the alternatives- in my honest opinion, i think butter is the healthiest. ghee is even better- but...
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