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Latest Celiac Disease News & Research:
Everything posted by Amyleigh0007
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ARCHIVED New Here....just Found Out Today...
Amyleigh0007 replied to dreamindarlin's topic in Parents, Friends and Loved Ones of Celiacs
It is my understanding that McDonalds fries are okay. But, I know that is a big debate ... My son eats them without problems and so do I. When my son was dx it felt like the end of the world. I spend many months in mourning. I was mourning for our old carefree life. But, when I saw the awesome results from the gluten free diet I snapped back into... -
ARCHIVED Feeling So Sick After Going gluten-free
Amyleigh0007 replied to climbmtwhitney's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It is much easier to have a completely gluten free home. That's what we did after my son was dx. -
ARCHIVED Glutino Frozen Pizza Crusts
Amyleigh0007 replied to LuvMoosic4life's topic in Gluten-Free Foods, Products, Shopping & Medications
Sorry to be a downer but I didn't like them and neither did my son. I thought they were too chewy and hard to bite into. I made one with sauce and cheese and the other with BBQ sauce, chicken, and cheese. They were both gross -
ARCHIVED New Glutino Crackers
Amyleigh0007 replied to buffettbride's topic in Gluten-Free Foods, Products, Shopping & Medications
My son likes the cheddar. He says they taste like goldfish crackers. -
ARCHIVED Glutenated By Alka-seltzer Plus Day And Night
Amyleigh0007 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Cold and flu season is fast approaching so I thought I'd share my experience with Alka-Seltzer Plus Day and Night. I have a terrible cold and I really, really needed to get some sleep last night so I took the above meds (the night ones) without checking to see if they were gluten free. I was desperate. Sure enough, I was sick all day today running to the... -
ARCHIVED A Good Way To Cope!
Amyleigh0007 replied to LuvMoosic4life's topic in Coping with Celiac Disease
I agree! Raising awareness is a wonderful way to cope. I am making gluten free chocolate chip cookies for a school fund raiser dessert auction next month. For a few minutes, everyone at the auction will be thinking of Celiac disease. I even wrote a small blurb about Celiac for the auctionier to say before the bids begin. Maybe it will open some eyes and... -
ARCHIVED Confused And Depressed
Amyleigh0007 replied to angieInCA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What Momma Goose said is right on. If gluten makes you sick and you feel better not eating it then you have a problem with gluten and you shouldn't eat it. It sounds like you already know the answer to your health problems - gluten free! You could be doing your body more harm then good by eating gluten for the next 6 weeks. Your body is telling you something... -
ARCHIVED Celiac V.s. Gluten Intollerant
Amyleigh0007 replied to sugarsue's topic in Parents, Friends and Loved Ones of Celiacs
My allergist dx me with gluten intolerance based on my family history (son has Celiac), symptoms (severe stomach pains and D after eating, fatigue, headaches), and a positive response to the gluten free diet. As soon as I took all gluten out of my diet I felt 100% better. My allergist said that my negative Celiac bloodtest was most likely a false negative... -
ARCHIVED Swelling Tongue
Amyleigh0007 replied to one more mile's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with ravenwoodglass. I would see an allergist right away. You don't want to mess around with that. -
ARCHIVED Very Cute Experience
Amyleigh0007 replied to jennyj's topic in Parents, Friends and Loved Ones of Celiacs
Where are you in Missouri? -
ARCHIVED Really Sad... Testing Update
Amyleigh0007 replied to jayhawkmom's topic in Parents, Friends and Loved Ones of Celiacs
My son was tested around age 3 for Celiac and was negative. He was tested again at age 8 and his numbers were off the chart (his doctor was shocked at how high) and as you can see from my signature, he has many food allergies. I believe he had these problems (or at least Celiac) when he was 3 but the test was a false negative because he was so young and... -
ARCHIVED New, She's Not Diagnosed Yet
Amyleigh0007 replied to sugarsue's topic in Parents, Friends and Loved Ones of Celiacs
My son was very picky. He had his 10 foods that he ate and they were filled with gluten (mac and cheese, chicken nuggets, cookies, crackers, etc.). Since he has been gluten free and his body is healing he is much more open to different foods. Maybe when your daughter begins to eat gluten free and she begins to feel better she too will be more open to trying... -
ARCHIVED Lunch Swap.
Amyleigh0007 replied to Juliebove's topic in Parents, Friends and Loved Ones of Celiacs
The teacher should have sent a note home at the start of the school year explaining that there is a child in the class with food allergies. The note should have listed acceptable treats (information she can get from you) that kids can bring in for birthdays, etc. It is her responsibility to make sure her students are safe and treated as equals. If one... -
ARCHIVED Lunch Swap.
Amyleigh0007 replied to Juliebove's topic in Parents, Friends and Loved Ones of Celiacs
Wow! I can't believe your school would allow students to exchange lunches! My school would never dream of doing that. We are very big on not sharing food and prepackaged birthday treats only. Speaking as a teacher and a Celiac mom, I really get angry when teachers use food/candy as rewards. It is very unfair to the children who can not participate... -
ARCHIVED Could My Daughter's Celiac Symptoms Be Different Than Mine?
Amyleigh0007 replied to ginadalan's topic in Parents, Friends and Loved Ones of Celiacs
Yes, symptoms can be different. My son's symptoms and my symptoms were totally opposite. Mine were all gastro and his were slow growth (no growth, really) and leg cramps. He was tested for Celiac around age 3 but tested negative. He was tested again at age 8 and was positive. I think he had Celiac back when he was 3 but it was too early to get a positive... -
ARCHIVED Need Enterolab Help - Test Was Negative? Newbie.
Amyleigh0007 replied to luciddream928's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the false negative club! I'm not sure about the accuracy of Enterolab, but bloodtests for Celiac are wrong often (false negatives). I would say that if the diet works for you then follow it. If you eliminate gluten and you feel better then that tells you that you have a problem with gluten (according to my very wise allergist). Good luck! -
Yes! Fatigue was one of my biggest symptoms! I would go to sleep around 8. I would also take naps as often as I could. It's totally different now. I have much more energy.
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ARCHIVED Scratch Test For Food Allergies
Amyleigh0007 replied to Caseysmommy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had the scratch test done. It did not hurt although not touching the spots where the oil is would be hard for a toddler. I just got my statement and it was $280. -
ARCHIVED Catch Up Growth
Amyleigh0007 replied to bear6954's topic in Parents, Friends and Loved Ones of Celiacs
My son was 8 years old and 41 pounds when he was dx in March. He was very small. It has been almost 6 months and he now weighs 53 pounds. He has grown a few inches in height although I'm not sure how many. I know that he has gone up two pants sizes (from 5 slim to 7 slim) and his feet have grown from a size 10 to a 1 1/2. His GI also told us to put butter... -
ARCHIVED Gluten-free Gift Basket
Amyleigh0007 replied to buffettbride's topic in Parents, Friends and Loved Ones of Celiacs
I am doing somthing similar for my school's teacher dessert auction! I am making gluten free chocloate chip cookies. I branded it as "The perfect treat for somewith with Celiac, gluten/wheat intolerance, or allergies." I hope it brings in lots of $$$ because no one has made a "specialty" dessert before. -
ARCHIVED Fruits Vs. Rice Cereal
Amyleigh0007 replied to Q1821's topic in Parents, Friends and Loved Ones of Celiacs
I think rice cereal is easier to digest. I was always told that if you give babies fruit first they develop a taste for sweet stuff and they are more prone to reject veggies and other not-sweet food. I haven't given my daughter (12 months old) any other grains besides rice. She is gluten free along with the rest of the family. -
ARCHIVED If He Has Celiac Does He Need An Epi-pen?
Amyleigh0007 posted a topic in Parents, Friends and Loved Ones of Celiacs
I am just venting to people who understand.... In the school I work, the school nurse sends out a list of all students who have medical issues so everyone on staff is aware. It's a pretty detailed list. My son was on the list (he attends the same school) and all it said was Celiac disease. There was no mention of his food allergies or his strict diet... -
ARCHIVED Help! Don't Know What To Do Next....
Amyleigh0007 replied to vthuskies's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Like Lori, my Celiac and allergy tests were negative. My allergist suggested I stick with the gluten free diet. She seemed to know much more about Celiac and gluten intolerance then my regular doctor. I feel better then I have in years. And, like Lori, I "tested" myself by eating chicken strips about 3 weeks into my gluten free diet and I will never do... -
ARCHIVED Newbie..need Help With Bread Please
Amyleigh0007 replied to Mandy2's topic in Gluten-Free Foods, Products, Shopping & Medications
Gluten free bread can be so gross! You really have to experiment and try several different brands. I like Kinnikinnik brand white bread. It doesn't crumble as much. I toast it and that seems to help it hold its shape a little better. -
ARCHIVED When A Friend Is In Denial About Her Child's Symptoms
Amyleigh0007 replied to callalily's topic in Parents, Friends and Loved Ones of Celiacs
If you or any of your family have Celiac or gluten intolerance use your/their experience to help your friend. Tell her your/their symptoms and what the gluten free diet did for you/them. People are so closed minded when it comes to Celiac and getting tested. I think it's because of the huge lifestyle change and they are scared. When people hear success...