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RollingAlong

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Everything posted by RollingAlong

  1. RollingAlong
    My other concern with the safe threshold study is that it lasted for 90 days. Is that long enough? Open Original Shared Link
  2. RollingAlong
    Since you suspect egg, the first thing you can try is to prepare the bisquick without egg. Not tasty, but possibly educational. If you know applesauce or banana work for you, you could replace the egg with one of those. If that works, then you could try preparing the pancake mix with only the yolk or only the white. (This is a not a perfect test since...
  3. RollingAlong
    On the other hand, perhaps Bisquick is gluten free enough for the "vast majority" but not quite gluten free enough for you. At least, not at this point in your healing process. Another possibilty is that your system can't handle refined carbs just yet. How do you do with potatoes?
  4. RollingAlong
    Open Original Shared Link This is a statement from 2 biochemists who oppose the proposed standards along with a detailed explanation of why.
  5. RollingAlong
    I hadn't realized it was your doctor who introduced you to the idea of super sensitivity; that's heartening. I would be thrilled to see a standard of 5ppm. It is within the reach of testing and there are some products now that are certified to that standard by CSA. They could change their program to certify to 3ppm and the rest of the market could stay...
  6. RollingAlong
    well said. What really concerns me, is the idea that only a third of all celiacs are healed after 5 years on the gluten free diet Open Original Shared Link If you look at celiacs with "good adherence" to the diet, the number goes up to 43%. The unhealed celiacs have a higher mortality rate than the healed as it says here - "The researchers found that...
  7. RollingAlong
    My spouse eliminated eggs for about a year, the first time he challenged them, his main reaction was a pronounced negative mood that seemed to last most of the day. He had mood/motivation issues before going gluten free; the digestive stuff came after he went gluten free. So now, if he makes a mistake, he is edgy, anxious with D and then heartburn for about...
  8. RollingAlong
    ahh, he's an experiential learner - I married one of those too!
  9. RollingAlong
    You've only been on the diet for 6 months, but what are you eating? Are you eating whole foods or a lot of gluten free versions of the Standard American Diet (SAD) foods? The fasting blood sugars are a concern, but actually I am more concerned about the #'s over 140. Anytime that anyone goes over 140, (diabetic or not) they are damaging beta cells and...
  10. RollingAlong
    You might find Dr Wangen's website helpful; he specializes in IBS and has celiac himself. Open Original Shared Link
  11. RollingAlong
    Well, you've given the docs a good try. They've looked and they can't find any medical proof that gluten is an issue. So, if you went gluten free and that didn't help, they could try again and it wouldn't be anything but a temporary inconvenience for you. If you go gluten free and it does help; that would be ok, but you won't have any medical proof. Only...
  12. RollingAlong
    my husband was tested for pituitary problems; but everything cleared up, hormone wise, once he went gluten free (all his tests for gluten/celiac were negative).
  13. RollingAlong
    The Evolutionary Psychiatry blog has a lot of posts about depression and diet. Open Original Shared Link She's a proponent of a Paleo diet and getting some sunshine/vitamin D.
  14. RollingAlong
    My spouse had many of the same issues: tinnitus, fatigue, mood/motivation issues, trouble with weight, etc. But we had been married a very long time before his behavior changed. He wasn't ill; he just seemed "off." If I hadn't known him for many years before the fogginess/irritability/inability to cope without 9 plus hours of sleep; I don't know what would...
  15. RollingAlong
    Did you see this recent study on celiac disease in patients with MS AND their first degree relatives? Open Original Shared Link
  16. RollingAlong
    when my spouse went gluten free, I went along for support. I got the biggest surprise of my life - no more migraines, no more headaches! I am off of Topamax. I eat a Paleo style diet, see Mark's Daily Apple blog for info.
  17. RollingAlong
    There's a good Failsafe group on Yahoo that focuses more on the diet in the US. Many of the internet resources are based in Australia.
  18. RollingAlong
    Questions: 1) Is it safe to assume I have NCGS and not celiac? No. Enterolab offers another test, the anti-TTG which is specific for celiac, but there's no published research to support that test as a stool test. There is research that supports anti-tTg as a blood test. So you have ruled in gluten intolerance and you have not ruled out celiac, which is...
  19. RollingAlong
    The blood tests are known to have a high rate of false positives. I have not heard a lot about the Cyrex tests, but I doubt they are any more accurate. I think these sorts of tests can be helpful if some one needs encouragement to look into dietary issues, ad they can give you a place to start, but you still have to confirm the results with an elimination...
  20. RollingAlong
    My spouse went to the doctor for erectile dysfunction and the checkup showed his blood sugar was a little off. He did not seem to have any risk factors for diabetes or ED. He's always been slim, could eat whatever and how much he liked (and did!) but ate a good diet, (brown rice, whole grains, etc) no soda, plenty of exercise. He started a low carb diet to...
  21. RollingAlong
    You are not barking up the wrong tree. First, the doc should have run more than one test. There's a whole celiac panel. And get a copy of the results and post them here. You can read about the celiac panel here Open Original Shared Link The Rheum can probably do this panel for you. Are there any autoimmune diseases in your family, like rheumatoid arthritis...
  22. RollingAlong
    Your symptoms could be caused or aggravated by dairy and/or gluten. If you want more testing, be sure to get it for gluten before you take gluten out of your diet. Testing could be important for you, your family. You could take the dairy out right now, per your allergist's suggestion. You paid for that advice, and it is good advice. Plenty of anecdotal...
  23. RollingAlong
    You might like to check over at the Bernstein Diabetes forum; people there who are working with insulin and food intolerances, including celiac, may have some advice for you. Could delayed digestive transit (gastroparesis) be part of the problem? It could create a mis-match between the carbs and the insulin. Open Original Shared Link Most of Bernstein...
  24. RollingAlong
    Stop all the supplements for at least 2 weeks and then add them back in one at a time, very slowly. My spouse felt so much better after doing this.
  25. RollingAlong
    You might check in with the "salicylate sensitivity" forum. They have similar issues and may be able to offer some advice. Open Original Shared Link I find that my sensitivity to fragrances improves when my vitamin D levels are good; that would be a test worth paying for. You can get a home test kit and save the doc visit. Open Original Shared Link ...
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