Jump to content

dilettantesteph

Advanced Members
 View Profile  See their activity

  • Posts

    2,862

  • Joined

  • Last visited

  • Days Won

    30

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by dilettantesteph

  1. dilettantesteph
    I'm with Peter. May contain does not mean definitely does contain. I hope that you thanked her for trying even if you can't eat it safely. It is not her fault that she doesn't understand how careful you have to be about cross contamination. It is easy to get grumpy about these things and important not to take it out on others.
  2. dilettantesteph
    How long has it been? How long since the last accidental gluten ingestion? You may need more time. It may have a different cause. Not everything is caused by gluten.
  3. dilettantesteph
    I think that is a serious problem, and I think that is why some are working to find a way to diagnose without the necessity of a gluten challenge. It is also why people here are always encouraging people to get diagnosed before trying a gluten free diet.
  4. dilettantesteph
    I think that it could happen. Can you take the day off next Sunday and see what happens?
  5. dilettantesteph
    Renegade, as you keep on with figuring out this condition you will realize that some of us are sensitive to lower levels of gluten than others. One might say "I eat that all the time and I never react" while another might say "that makes me sick and isn't safe". When you read someone's posts enough you might realize that person is like you, or more sensitive...
  6. dilettantesteph
    For me, depression and a lack of ability to handle much of anything is a big part of a glutening. I was fairly non functional upon diagnosis from depression as well as other symptoms. Some days I barely got out of bed. I can't say if it is normal for you. How long have you been gluten free? Does this not usually happen to you? It could indicate another...
  7. dilettantesteph
    I am very sensitive to trace gluten. It took me longer than 2 months to learn where gluten might be in my diet. It also took me longer than that to learn about cross contamination issues. It might be an idea to work on that more before looking for other sources of problems. Occam's razor seemed to apply to me.
  8. dilettantesteph
    In hindsight, I wish that I had known about the possibility of super sensitivity being an issue. I would have to liked to heal faster by having a diet heavy in fruit, vegetables and unprocessed meats. I would have rather left processed foods and restaurants to try after healing. I think that would have speeded things up. Anyone could benefit from fewer...
  9. dilettantesteph
    There are quite a few people on here who were very sick on diagnosis, myself included. It can take some time, but we got better. It was like I was aging in reverse for a long while. I couldn't believe all the things that got better. I had no idea that all these things could be caused by celiac disease. Enjoy it, and be patient with yourself as you learn...
  10. dilettantesteph
    I'm sorry that you got so sick. I can only tell you that I react to trace gluten more than I used to. I haven't eaten anything with actual gluten ingredients since I was diagnosed almost 6 years ago. I hope it doesn't take you too long to get over it. I am sorry that your family members aren't being more supportive. Feeling terrible and having people...
  11. dilettantesteph
    It can be very hard. You need to figure out how long it takes you to have a reaction. My son and I are both celiac. It takes him two days to notice a reaction and I usually notice the next morning. Then it can be anything I ate the day before. I keep track with a food/symptom journal. I keep my diet simple and try to only add one new thing per week...
  12. dilettantesteph
    That happened to me too. I got more sensitive to trace gluten contamination as time went on and I had to make modifications to my diet for the first year or so. What really gets me is when the manufacturer changes something and I start reacting to something that was formerly safe. It can take a long trial of elimination/challenge diets to figure out the...
  13. dilettantesteph
    I have worse reactions if I get more contaminated and more minor reactions when I get a smaller dose of contamination. If I haven't gotten glutened in a long while, so I am well healed, my reaction will also be different.
  14. dilettantesteph
    One thing to determine is if your problem is an intolerance to these foods, or a reaction to some contamination of these foods. I reacted to all sorts of foods, but found that I could eat them if I sourced them carefully. Tomatoes was one of the bad ones, and I happened to have some growing in my garden and I could eat those without any issues. That's...
  15. dilettantesteph
    It took about a year for my symptoms to go away, but it also took me that long to figure out my diet because I am sensitive to very small amounts of gluten. As long as you are improving, I would feel good about it, but if now, I would suspect that some gluten contamination is getting in to your diet.
  16. dilettantesteph
    If you are having problems, there are some other possible causes. One is the contamination issue revealed nicely in a study by Tricia Thompson: Open Original Shared Link With oats, there is a fraction of celiacs that react to it as to gluten: Open Original Shared Link
  17. dilettantesteph
    I read before on here how it made someone's glutening symptoms better. What was your source? I heard on a podcast recently about a poisoning outbreak that came from marijuana that was spiked with manure. Maybe it was was contaminated with gluten. Spiked with flour. I imagine flour is a lot less expensive than pot. I know cocaine is often cut with stuff...
  18. dilettantesteph
    Look carefully into the education and credentials of the sources of your information. There is a lot of misinformation available on the internet.
  19. dilettantesteph
    That's what happened to me, and I have read about it happening to loads of others. It does seem to stop after a time. Thank goodness. What has helped is to keep a food/symptom journal and to try to make only one change per week as it can take that long for symptoms to show up. When something in my current diet starts to bother me, I need to find...
  20. dilettantesteph
    I had the same problem. What helped me was to eat mainly produce and unprocessed meats. I tried to only add one new thing per week, and keep a food/symptom journal. Those snack bars are good, but you won't starve without them! I hope you work things out soon.
  21. dilettantesteph
    Some of us are sensitive to lower levels than others. If the restaurant usually caters to those who are a little less sensitive than you are, they could think that the food is very gluten free when there is a tiny bit of contamination in it that got to you. I finally gave up on going to restaurants as I got cc'ed even from ones that were recommended by...
  22. dilettantesteph
    It could be from gluten, but it could also be from something else. Time will tell. You need to see if it goes away again when you recover from your glutening. I had a lot of joint pain and swollen joints before I was diagnosed. I had stopped wearing rings because my fingers were so swollen. After diagnosis and the gluten free diet the joint pain went...
  23. dilettantesteph
    Somehow it escapes peoples understanding that testing negative with a detection limit of 5 ppm is not the same as containing none of the contaminant tested. I have faced this since I started testing food for contaminants professionally back in 1985. Clearly there are those who react anyways. It would be nice if they would be more upfront about the possibility...
  24. dilettantesteph
    That happened to me at first. I think that it was gluten withdrawal. I can't remember how long it went on, maybe a couple of months. Later, I got just like I used to be in the old days. I could skip meals and not even notice it. I know that's not a good idea, but sometimes I get busy or forget to pack something to bring along. It should get better....
  25. dilettantesteph
    With me it was the opposite. My allergies have become much better gluten-free.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.