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dilettantesteph

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Everything posted by dilettantesteph

  1. dilettantesteph
    I am on a diet like yours OP, and so are my children. My daughter is a distance runner. She ran cross country in high school and is now in college. I work out a lot myself. I haven't done a century bike ride, but I will go longer than 2 hours bike rides and hour runs. I did a mini triathlon a few years ago and trained for that with miles swims in addition...
  2. dilettantesteph
    The link I gave above from the University of Chicago Celiac Disease Center says this: "What do you think of using L Glutamine to help heal? We do not recommend this product because no benefits from it have been documented in rigorous, evidence-based research." None of the links given in your post are to rigorous, evidence-based research. If you have...
  3. dilettantesteph
    I get down and feel lonely sometimes too. It is hard when so many social occasions center around food. You can change your activities to ones that don't. Take up a musical instrument, join a knitting circle, join a book club at your local library. Have social activities at your home and provide gluten-free snacks. It just takes some time to adapt. You...
  4. dilettantesteph
    There is no evidence for that: Open Original Shared Link
  5. dilettantesteph
    I know that one million years feeling. We all have bad days. Hope yours are looking up now.
  6. dilettantesteph
    That's what I was going to say. That works best for me. You can drive yourself crazy trying to compare your reactions to the reactions of others. This takes diligence but works.
  7. dilettantesteph
    There are many more things that you can do, but one month isn't a long time. You most likely need to give it more time. You ask what more one can do. Some of these apply to a few celiacs. Some of these apply to hardly any celiacs. You can change any dishes that might have gluten stuck in scratches or cracks. You can check toiletries, lotions and...
  8. dilettantesteph
    Good idea Gemini. If they have inaccurate information on their site, it should be changed.
  9. dilettantesteph
    It is still pretty early in the healing process. My neurological symptoms took longer to heal. Have you considered a produce and unprocessed meat diet? That was helpful for me. The fact that you had problems with eating at restaurants might indicate that you are more sensitive to cc than average.
  10. dilettantesteph
    If you can find that good link to DH information, I would love to see it.
  11. dilettantesteph
    I came across this yesterday at the University of Chicago Celiac Disease Center Webpage FAQ: Open Original Shared Link Kareng has been linking to them recently. They list: Toothpaste, mouthwash, breath mints, dental treatments As an answer to: What are some common ways gluten can sneak into my diet? If this is untrue, maybe someone should make...
  12. dilettantesteph
    SquirmingItch, I'm sorry about your pain. I hope you feel better soon. I noticed that the reference you gave was from 1995. I found "Guidelines for the diagnosis and treatment of dermatitis herpetiformis" from 2009 that may be in those bookmarks you can't find right now. It gives that 2 year statement too: "GFD alleviates gastrointestinal symptoms much...
  13. dilettantesteph
    That explains it. I noticed that the first three items were the same thing. Though they say that it can take 2 years for it to clear up, I don't know that I would interpret that study the same way that you did. It also says this: "On re-introduction of gluten the eruption recurs."
  14. dilettantesteph
    I just responded to you about quitting your job. I didn't realize that you are going through problems getting a diagnosis. My husband's doctor wouldn't test him despite the fact that our son had been diagnosed. My husband went elsewhere and he indeed tested positive for it. If you haven't been gluten free very long, you need to act quickly. It takes...
  15. dilettantesteph
    Mamatrois, how long have you been on the gluten free diet? It takes awhile to get things figured out. Sometimes during this learning process, my son and I blamed the environment when it was actually something that we ate. It also seemed that environmental gluten wasn't be as much of a problem once we git rid of all the gluten in our diet. This issue is...
  16. dilettantesteph
    It looks like not very well. In this study: Open Original Shared Link 13 biopsy proven celiacs were given 50 mg a day of gluten for 3 months. Damage was observed by biopsy, but blood tests were negative. The title of this study gives away the conclusions of this study: Open Original Shared Link "Disappearance of endomysial antibodies in treated...
  17. dilettantesteph
    Do you have a reference for a study for that 2 year thing? I've heard that a lot but never seen the evidence. Thank you
  18. dilettantesteph
    My best guess is that you need greater amounts of gluten than are present in these grains to invoke a reaction. Sensitivity levels vary. I think that if you ate a whole bunch to give yourself a higher dose, or maybe even if you continue to eat them for a longer period of time, you may see a reaction. Another possibility is that it isn't DH. Was the...
  19. dilettantesteph
    A link about fining: Open Original Shared Link Tricia Thompson's study showing negative tests with detection limits of 5 and 10 ppm of wine aged in oak barrels sealed with wheat paste: Open Original Shared Link My experience is that it isn't a problem unless you are extremely sensitive. As stated by others, I can't know for sure that any reaction...
  20. dilettantesteph
    I also had neuropathy symptoms that resolved on the gluten-free diet. However, I am super sensitive and had to do mainly produce and unprocessed meats. If gluten, then soy and corn elimination don't work for you, it may be worth giving that a try next. I hope you feel better soon.
  21. dilettantesteph
  22. dilettantesteph
    I am one of the fraction of celiacs that react to oats as to gluten. I would suggest trying just a little bit the first time in case you are also in that category. I wish that I had. I was so eager to have oats that I had more than a little bit and boy did I regret it. Don't be afraid, just be cautious.
  23. dilettantesteph
    You may need to try suspect items one by one to figure out which one caused the outbreak. I hope the itching stops soon. I am very sensitive and stick mainly to produce and pasture raised dairy products.
  24. dilettantesteph
    Don't feel stupid. I'm sure that your were following all the normal recommendations for celiacs. These work for the vast majority of celiacs. Also, as Gemini said, make sure that the right tests were run. Have you been feeling well? If you establish that your blood tests were correct and are showing that you are still reacting to gluten in your diet...
  25. dilettantesteph
    Gemini, You are putting strange words in my mouth. That is not my stance. The vast majority of celiacs have no need to eat the way I do. The whole food chain is not contaminated even when you do eat like I do. I buy some things in regular stores and markets like everyone else does. My stance is that some celiacs do not heal because they need a more...
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